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I can't sleep again tonight so I am up on the computer. It gets so frustrating!

My jaw is sore so I'm sure that has a lot to do with it. Bad timing, Larry and

I are going on vacation next week.

Deb - I've been reading your posts about your husbands family situation. That

is so unbelievable! My family may not understand my ra, but we are a close

family. Larry's family isn't very close. He is the only member of his

immediate family still living. He has a lot of contact with his own kids, but

not with nieces and nephews like I do.

I'm off to do some more checking out web sites. Gotta do something since I'm

up.

in Minnesota

linda@...

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Sorry that you're having such trouble sleeping, . Please call your doctor

and tell him/her what's been going on. Explain, too, that you are going on

vacation soon. I know you've been trying to solve your sleep problems and it

must be maddening to not be able to get the rest you need.

Glad to hear in a previous post that Roxie is doing well in her new place!

Feel better soon,

[ ] can't sleep

> I can't sleep again tonight so I am up on the computer. It gets so

frustrating! My jaw is sore so I'm sure that has a lot to do with it. Bad

timing, Larry and I are going on vacation next week.

>

> Deb - I've been reading your posts about your husbands family situation. That

is so unbelievable! My family may not understand my ra, but we are a close

family. Larry's family isn't very close. He is the only member of his

immediate family still living. He has a lot of contact with his own kids, but

not with nieces and nephews like I do.

>

> I'm off to do some more checking out web sites. Gotta do something since I'm

up.

>

> in Minnesota

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  • 11 months later...
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Dear Lori,

Do not feel guilty. My daughter Amber was diagnosed with mild and I went through with the procedure. I was more concerned about her jaw alignment more than anything. What if that mis-alignment, however mild it may be, will cause her issues when she is older. I felt like do it now for peace of mind down the road.

Good Luck,

Can't Sleep

Well, Its 3:15 in the morning here in Germany and I can't sleep. I already did the dishes that I put off until tomorrow and I'm still wide awake. I was lying in bed thinking about Devin's head. Dr. Blecher said that Devin has a mild case and doesn't recommend the helmet. At first I thought that was great news, but now as I look at his head I still see his plagio and wonder if I'm doing the right thing by not getting him helmeted. My point is that he still has plagio. I don't want to regret this decision. He's still young, only 6 months, and I don't want to look back later and think "if only I would have gotten the helmet for him." If he only has a mild case, then, I think maybe he can get near 100% perfection. I also lie there thinking, If only I could turn back time. I know almost everyone thinks that. What we would have done differently if we knew at our child's birth what we know now. We really must get the word out. I've been talking to moms in my playgroup about it, and most have no idea. There is one mom whose daughter has probably moderate to severe plagio but does nothing about it. Her ped referred her to Dr Blecher but she refuses to go. She thinks her head will round out on its own. I tried talking to her about it and told her that I was going to see him, but I couldn't sway her. I guess its my guilt that makes me want to get the helmet also. I feel guilty that his head isn't perfect and if there's something I can do about it to help fix that, then I want to. Well, I guess writing this has "helped me see the light," I want to get him helmeted. I know you guys might think I'm crazy because he does have a mild case and I am making a big deal about it, but he's supposed to be my perfect angel, ya know? Sorry for rambling on, it is early here, but maybe after I write this I'll be able to sleep better. Oh, I'm also sorry for misleading you earlier. My husband isn't in the military, we were both in the army, that's how we met, but now he's a contractor and his job is working with equipment that some of the soldiers use and that's why he's in Baghdad. I thought we got out of the army just in time, but he's in Baghdad anyway. Thanks for listening to my rambles,LoriFor more plagio info

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I say if you want to get the helmet for Devin then go for it! It is your family's decision. I don't think you are crazy At all. I am glad writing this letter has helped you! You didn't mislead anyone about your husband. I made an assumption. Please still tell him thank you. If he wasn't working on the equipment for our soldiers than we would be in trouble. Maybe when you band Devin, the other mother will think about banding her child. Thanks for spreading the word about plagio! I hope you get some good sleep!!! Angie and Jenna Can't Sleep Well, Its 3:15 in the morning here in Germany and I can't sleep. I already did the dishes that I put off until tomorrow and I'm still wide awake. I was lying in bed thinking about Devin's head. Dr. Blecher said that Devin has a mild case and doesn't recommend the helmet. At first I thought that was great news, but now as I look at his head I still see his plagio and wonder if I'm doing the right thing by not getting him helmeted. My point is that he still has plagio. I don't want to regret this decision. He's still young, only 6 months, and I don't want to look back later and think "if only I would have gotten the helmet for him." If he only has a mild case, then, I think maybe he can get near 100% perfection. I also lie there thinking, If only I could turn back time. I know almost everyone thinks that. What we would have done differently if we knew at our child's birth what we know now. We really must get the word out. I've been talking to moms in my playgroup about it, and most have no idea. There is one mom whose daughter has probably moderate to severe plagio but does nothing about it. Her ped referred her to Dr Blecher but she refuses to go. She thinks her head will round out on its own. I tried talking to her about it and told her that I was going to see him, but I couldn't sway her. I guess its my guilt that makes me want to get the helmet also. I feel guilty that his head isn't perfect and if there's something I can do about it to help fix that, then I want to. Well, I guess writing this has "helped me see the light," I want to get him helmeted. I know you guys might think I'm crazy because he does have a mild case and I am making a big deal about it, but he's supposed to be my perfect angel, ya know? Sorry for rambling on, it is early here, but maybe after I write this I'll be able to sleep better. Oh, I'm also sorry for misleading you earlier. My husband isn't in the military, we were both in the army, that's how we met, but now he's a contractor and his job is working with equipment that some of the soldiers use and that's why he's in Baghdad. I thought we got out of the army just in time, but he's in Baghdad anyway. Thanks for listening to my rambles,LoriFor more plagio info

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Lori,

You're not rambling at all. I think you should get him banded, if you

don't I think it's going to eat at you. One thing though, I don't

know what type of helmet Dr. B uses but if it's active and your son

is mild it's not going to work. Active bands NEED holding points in

order to work, that is why Cranial Tech turns some parents away when

their baby is too mild. The band simply won't have anything to " hold "

on too. I hope I didn't confuse you with that.

If he uses a passive helmet then that's great, you won't have

anything to worry about! I think you're doing the right thing. The

window of opportunity to correct plagio isn't a big one. This is the

only time you'll have, to do anything about his plagio. Good luck!

Please keep us posted.

--- In Plagiocephaly , " KiddyKat13 " <kiddykat13@y...>

wrote:

> Well, Its 3:15 in the morning here in Germany and I can't sleep. I

> already did the dishes that I put off until tomorrow and I'm still

> wide awake. I was lying in bed thinking about Devin's head. Dr.

> Blecher said that Devin has a mild case and doesn't recommend the

> helmet. At first I thought that was great news, but now as I look

> at his head I still see his plagio and wonder if I'm doing the

right

> thing by not getting him helmeted. My point is that he still has

> plagio. I don't want to regret this decision. He's still young,

> only 6 months, and I don't want to look back later and think " if

> only I would have gotten the helmet for him. " If he only has a

mild

> case, then, I think maybe he can get near 100% perfection. I also

> lie there thinking, If only I could turn back time. I know almost

> everyone thinks that. What we would have done differently if we

> knew at our child's birth what we know now. We really must get the

> word out. I've been talking to moms in my playgroup about it, and

> most have no idea. There is one mom whose daughter has probably

> moderate to severe plagio but does nothing about it. Her ped

> referred her to Dr Blecher but she refuses to go. She thinks her

> head will round out on its own. I tried talking to her about it

and

> told her that I was going to see him, but I couldn't sway her.

> I guess its my guilt that makes me want to get the helmet also.

I

> feel guilty that his head isn't perfect and if there's something I

> can do about it to help fix that, then I want to. Well, I guess

> writing this has " helped me see the light, " I want to get him

> helmeted. I know you guys might think I'm crazy because he does

> have a mild case and I am making a big deal about it, but he's

> supposed to be my perfect angel, ya know? Sorry for rambling on,

it

> is early here, but maybe after I write this I'll be able to sleep

> better.

> Oh, I'm also sorry for misleading you earlier. My husband isn't

> in the military, we were both in the army, that's how we met, but

> now he's a contractor and his job is working with equipment that

> some of the soldiers use and that's why he's in Baghdad. I thought

> we got out of the army just in time, but he's in Baghdad anyway.

>

> Thanks for listening to my rambles,

> Lori

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Hi Lori!

You're not rambling! Many of us have been in the same dilemma you're in. Argh. What a difficult decision. If only we had that crystal ball to look into to see a rounder head or not in the next year or so huh?

As everyone else replied, do what YOU feel is best. This is a very personal decision. If you'll feel more comfortable getting a helmet, then by all means, go for it!!

Do you have any pictures you could send for us to look at his headshape? We're plagio police & could maybe help some?!

Hope you finally got some sleep last night. Keep us posted on your decision.

Debbie Abby's mom DOCGrad MI

p.s..you didn't mislead us about your husband and Baghdad, it doesn't make it any easier having him over there irregardless if he's in the service or not!!! Hugs!KiddyKat13 <kiddykat13@...> wrote:

Well, Its 3:15 in the morning here in Germany and I can't sleep. I already did the dishes that I put off until tomorrow and I'm still wide awake. I was lying in bed thinking about Devin's head. Dr. Blecher said that Devin has a mild case and doesn't recommend the helmet. At first I thought that was great news, but now as I look at his head I still see his plagio and wonder if I'm doing the right thing by not getting him helmeted. My point is that he still has plagio. I don't want to regret this decision. He's still young, only 6 months, and I don't want to look back later and think "if only I would have gotten the helmet for him." If he only has a mild case, then, I think maybe he can get near 100% perfection. I also lie there thinking, If only I could turn back time. I know almost

everyone thinks that. What we would have done differently if we knew at our child's birth what we know now. We really must get the word out. I've been talking to moms in my playgroup about it, and most have no idea. There is one mom whose daughter has probably moderate to severe plagio but does nothing about it. Her ped referred her to Dr Blecher but she refuses to go. She thinks her head will round out on its own. I tried talking to her about it and told her that I was going to see him, but I couldn't sway her. I guess its my guilt that makes me want to get the helmet also. I feel guilty that his head isn't perfect and if there's something I can do about it to help fix that, then I want to. Well, I guess writing this has "helped me see the light," I want to get him helmeted. I know you guys might think I'm crazy because he does have a mild case and I am

making a big deal about it, but he's supposed to be my perfect angel, ya know? Sorry for rambling on, it is early here, but maybe after I write this I'll be able to sleep better. Oh, I'm also sorry for misleading you earlier. My husband isn't in the military, we were both in the army, that's how we met, but now he's a contractor and his job is working with equipment that some of the soldiers use and that's why he's in Baghdad. I thought we got out of the army just in time, but he's in Baghdad anyway. Thanks for listening to my rambles,LoriFor more plagio info

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