Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 Vivi, I was a little hurt by your insinuating that we DO nothing about our situations. We all do a lot. Many of us have called and written and passed out flyers. I agree that healthcare needs change, but belittling us isn't the way to persuade. I have written and called a lot of places and even my boyfriend does plenty. It is really unfair to judge us without knowing us. Sharon > Sharon: > I also wrote them but haven't got a response . Even if I don't Im > glad that > they're hopefully getting blasted. I told them that most Stills > patiens even > afetr diagnosis continued to suffer serious & continual flares & > that It was > extremelly deceiving, that most Stills patients had to be on serious > combinations of steroids & inmmunosupresant drugs & still suffered > with continual > difucult to treat flares. & the show had cause a big set back in any > progress > done that they owe this patiens an apology.(a lill' more) > IT's still time to write every body was very easy. > GOOGLE discoveryhealth.com, then go to: " viewers relations " & fill > out a > very simple form. > ALSO for those who 'like to try to DO something about our health > care the > AARP's encouraging to write to: _www.dividedwefail.org_ > (http://www.dividedwefail.org) . > Every thing 's done ONE at time > VIVI > > **************Vote for your city's best dining and nightlife. City's > Best > 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102) > > Quote Link to comment Share on other sites More sharing options...
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