Re: Looking for some guidance....

September 29, 2008

Judith Bluestone spent a couple of years where her waking hours were

spent on a POGO STICK. She'd lost her hearing, and then her hearing was

restored with some sort of surgery, and the sensory overload was too

much, and jumping on a pogo stick helped her cope, and her mother let

her do it at home and her teacher let her do it at school. Her personal

experience is very interesting. Have you read " The Fabric of Autism " ?

Penny

> My daughter, Tahlia is 2 years and 4

months old. She is on the> spectrum and has no language yet. But our

biggest symptom is sleep> problems. She takes .5 mg of resperidol at

night with 4 mg of> melatonin and she still wakes 2-3 times a night.

Sometimes she is> irritable and crying and I just don't know why she is

waking...is she> in pain? hungry? having nightmares? I can handle

everything else, but> if I'm gonna put on my cape and be supermom, work

full-time, make all> her appointments, keep her providers in check and

raise two other> kids...but I need some rest. Can anyone help...BTW, our

house right> now is tiny and Tahlia shares a room with her 9 year old

sister and> because of her constant waking she now sleeps with us.>>

>

September 29, 2008

I have to say my Amy aged 4 thinks sleep is something other people do. We have

times when she is so wound up that she is awake for 26 hours straight dozes for

an hour or so and then is awake another 24hours. We have seen doctors and

everything. Had one bright spark suggest it was just her way of being naughty.

Umm yea I have looked after more kids than I can remember and raised 9 dont tell

me a 4 yr old can will themselves awake for periods like that especially when

there is no noise or nothing for them to see or do.

Â

I am forever telling people I will sleep when I am dead. Amy also likes to let

herself outside so we have alarms on all the doors etc so makes for long nights

and even longer days.

Â

>

> > My daughter, Tahlia is 2 years and 4 months old. She is on the

> > spectrum and has no language yet. But our biggest symptom is sleep

> > problems. She takes .5 mg of resperidol at night with 4 mg of

> > melatonin and she still wakes 2-3 times a night. Sometimes she is

> > irritable and crying and I just don't know why she is waking...is she

> > in pain? hungry? having nightmares? I can handle everything else, but

> > if I'm gonna put on my cape and be supermom, work full-time, make all

> > her appointments, keep her providers in check and raise two other

> > kids...but I need some rest. Can anyone help...BTW, our house right

> > now is tiny and Tahlia shares a room with her 9 year old sister and

> > because of her constant waking she now sleeps with us.

> >

>

September 29, 2008

Reminds me of how babies are often calmed by vibrating chairs. Perhaps

that part of the nervous system just hasn't " grown up " yet and she's

still in that stage. Has she always been like that with vibrations or

a recent thing? I've found Allie will sometimes for years have a

strong preference for something like that then seemingly overnight

change over to something else. Every now & again she'll go back to it.

Debi

September 30, 2008

she has loved vibrations since i can't remember when. I know when she was little

and we lived on the farm, sometimes my husband needed a generator for things,

and she worked out that it had good vibrations, so out she would toddle and do

her thing. when she got a little older she would even go out into the shed when

he was there and point to it, wanting him to turn it on for her for a few mins.

Cheryl S [chez]

To: Autism_in_Girls@...: fightingautism@...: Tue, 30

Sep 2008 03:18:28 +0000Subject: Re: Looking for some

guidance....

Reminds me of how babies are often calmed by vibrating chairs. Perhapsthat part

of the nervous system just hasn't " grown up " yet and she'sstill in that stage.

Has she always been like that with vibrations ora recent thing? I've found Allie

will sometimes for years have astrong preference for something like that then

seemingly overnightchange over to something else. Every now & again she'll go

back to it.Debi

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September 30, 2008

My daughter takes Clonidine at night too, along with Tenex, and she

sleeps fine. Good luck!

>

> My daughter is 13 now but I remember those early years and the not

sleeping.

>

> I completely understand what you are going thru. A parent can face

a lot of

> challenges, but boy is it hard with no sleep.

>

> I tried all types of interventions and went to listen to speakers

who would

> give suggestions. The only thing that finally fixed it was

medication. I

> know this in hard when the child is so small and probably cannot

swallow pills.

>

> When she is able to swallow pills, the medicine that worked so great

for us

> was a sustained release clonodine. It had to be made up by a compound

> pharmacist at an independent pharmacy in my town.

>

> I found out about it from another mom and then I went to my

pediatric psych

> doctor and asked if we could try it. We had such success the doctor

has

> prescribed it for more families.

>

> Good luck,

>

> C

>

> In a message dated 9/29/2008 11:25:11 A.M. Eastern Daylight Time,

> animejenkins@... writes:

>

> My daughter, Tahlia is 2 years and 4 months old. She is on the

> spectrum and has no language yet. But our biggest symptom is sleep

> problems. She takes .5 mg of resperidol at night with 4 mg of

> melatonin and she still wakes 2-3 times a night. Sometimes she is

> irritable and crying and I just don't know why she is waking...is she

> in pain? hungry? having nightmares? I can handle everything else, but

> if I'm gonna put on my cape and be supermom, work full-time, make all

> her appointments, keep her providers in check and raise two other

> kids...but I need some rest. Can anyone help...BTW, our house right

> now is tiny and Tahlia shares a room with her 9 year old sister and

> because of her constant waking she now sleeps with us.

>

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September 30, 2008

Hi ya'll, me again. I mentioned in the earlier post that Camille

takes Clonidine and Tenex at night. The Clonidine is to make her

sleepy so that she falls asleep initially, the Tenex is to help her

stay asleep. Just thought I'd clarify..............again, good luck

to all of you. It's an extreme bummer when you don't get enough sleep....

>

> Subject: Re: Looking for some guidance....

> To: Autism_in_Girls

> Date: Monday, September 29, 2008, 12:49 PM

>