Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi Vikki, I would call my rheumy and ask before going in for the infusion. It does lower your immune function, so you want to be careful. Please keep us informed on your Remicade progress. I'm trying to get in on a Remicade study, and am anxious to hear how people are doing on it. If I get accepted, I will let you know how I do, too. Love and hugs, Carol [ ] Remicade question Two weeks ago I had my first Remicade infusion. No real problems... My blood pressure dropped a little, which was good because my BP is high! Anyway, I had been fighting off a scratchy throat the week before. After the infusion, it blossomed into a sore throat and cough. Not too bad, I just felt a little crummy. I have a history of getting attacked in the throat every spring, so this in itself wasn't unusual. My question is... Should I go ahead and have my second infusion as scheduled? The sore throat and crummy feeling is gone, but I still have a cough and some drainage. I guess I'm not too clear about the relationship between infections and Remicade, and when the infusions should be rescheduled. Can anyone enlighten me? As to " how did it help? " , I haven't noticed too much of an improvement, although I was able to pull up the comforter in the middle of the night - something I have been unable to do for about a year! My hands always stiffen as I sleep. No other noticeable improvement, though. I guess I'm one of the slow starters. Still expecting good things... (keeping my fingers crossed, so to speak!) LOL Thanks for being there, Vikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi Vikki...I would call the infusion nurse or your rheummy, just to be on the safe side. My rheummy has told me that he believes the infection concerns are overblown, unless you are seriously ill or HIV+. However, I still double-check when I don't feel well. Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 I just have a quick question. When I go in to have my infusion, do I take my usual morning meds? She did tell me to eat something beforehand, but didn't mention my meds either way. Hope everyone is having a pain free night. Love and hugs, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 It's hard to say, Vikki. How many weeks apart are your infusions and how much are you getting? Did you ask your rheumatologist about it? [ ] Remicade Question > I have been on Remicade since last October and it FINALLY started to work with this last infusion! I was SO glad, because we had almost decided to try something else. I was mostly pain-free and full of energy for 5-6 weeks - then it seemed to abruptly stop. Is this the norm? Or does it gradually wear off? Thanks for your response. > Vikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2003 Report Share Posted April 8, 2003 Right now, I'm getting 4 vials every 8 weeks. I'm hoping that he either " ups " the dosage or goes to a 6-week schedule. These last two weeks have been the pits! Vikki [ ] Remicade Question > I have been on Remicade since last October and it FINALLY started to work with this last infusion! I was SO glad, because we had almost decided to try something else. I was mostly pain-free and full of energy for 5-6 weeks - then it seemed to abruptly stop. Is this the norm? Or does it gradually wear off? Thanks for your response. > Vikki Quote Link to comment Share on other sites More sharing options...
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