RE: Melly,Judite. Thank you !!

[Guest guest]

... I so hate to feel others suffering but I realized that I do not reach OUT

to others when I need to . I 've got to learn about this is all a process.

Thank you for your support.

Thank you to all the ones that continue to get in here & support the rest

EVEN after you've gotten in remmission also.

I Started this in 2003. I've got those calendar books where I bagan to write

my flares & date to date symptoms, but were so sporadics. Now I do this evey

single mo. & by the time I get to feel better I do it again.Thank God that

finnaly I figured that all this were not single issues as it appeared... It's

all part of the same problem, & reading about others in the group has put it

all together or I 'll be officially NUTS.It's awfull how this gets to affect

you so hard emocionally, I just want to hide in a cave & not come out untill

it's over.!

I don't even tell MY relatives because I feel guilty & don't want to depress

any body or want them to stay away.

I thought I was the only one up at 3 ,4 in the morning!!

I've made it up to here. Now I just got to be patient & give the Dr. time to

sort it all out. Just emocionally I'm so used up, I want the anwser NOW so

they get wt. what ever tretament.

How does every body deal wt. not being able?? If I can get that part I'll

cope so much better!

I wish every body the strenght to keep going.

HUGS

VIVI

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[Guest guest]

Vivi

 I am normally still up around 3 amor so LOL . There are also many days I want

to find a cave and stay in it so others do not have to deal with me and my

stills. Many days I feel like an anchor around every one I love neck. I do now I

am glad my family knows all about me and stills as many of them let me know if

they think or find some thing that could help I may have over looked or did not

think about. I have an aunt who was in reg nurse and she is one that has given

me some help looking and finding but before my self she had never heard of

stills but she researched and started to also ask people and then passes it

on to me. Dense has been learning about it from my self and my life to research

and she is one of the best at it. but she being she grow up with a disabled

father is the greatest when it come to me doing things she wants to tell me not

to do this or that but lets me even when it hurts her to see me hurt or knowing

by me doing it what I

will pay later but she lets me be me and lets me be stubborn and stupid at

times she is awesome and yet when I met her I did not want to tell her and was

afraid to. Now I even tell store clerks about it fact any one that will listen

to this long winded redneck I tell about stills. if they do not understand or

they stay away to me that's better as if you can not support me and what I deal

with then I would rather not have you in my life now days but I can be a real

big a hole and grouch at times and how stays with me is a miracle in it's

self LOL but keep it to my self nope I talk to much for that LOL

 

 Hugs

 

the  rednecks

Marty & G.

the redneck's my space http://www.myspace.com/martyg58

 

 Stills ; An illness I know to well!

To learn about Stills  http://www.stillsdisease.org/stills_info

If you find yourself in a hole, the first thing to do is stop diggin'.

 

In the old days a man who saved money was a miser; nowadays he's a wonder. 

~Author Unknown

 

" Taking my gun away because I might shoot someone is like cutting my tongue out

because I might yell `Fire!' in a crowded theater. "

-- Venetoklis

 

a government and its agents are under no general duty to provide public

services, such as police protection, to any particular individual citizen...

-- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181)

[Guest guest]

Can you please take my name off of this email list... davidbudde@...

THanks

To: Stillsdisease@...: stills_stinks@...: Thu, 10 Jul

2008 12:14:23 -0700Subject: Re: ,Judite. Thank you !!

Vivi I am normally still up around 3 amor so LOL . There are also many days I

want to find a cave and stay in it so others do not have to deal with me and my

stills. Many days I feel like an anchor around every one I love neck. I do now I

am glad my family knows all about me and stills as many of them let me know if

they think or find some thing that could help I may have over looked or did not

think about. I have an aunt who was in reg nurse and she is one that has given

me some help looking and finding but before my self she had never heard of

stills but she researched and started to also ask people and then passes it on

to me. Dense has been learning about it from my self and my life to research and

she is one of the best at it. but she being she grow up with a disabled father

is the greatest when it come to me doing things she wants to tell me not to do

this or that but lets me even when it hurts her to see me hurt or knowing by me

doing it what Iwill pay later but she lets me be me and lets me be stubborn and

stupid at times she is awesome and yet when I met her I did not want to tell her

and was afraid to. Now I even tell store clerks about it fact any one that will

listen to this long winded redneck I tell about stills. if they do not

understand or they stay away to me that's better as if you can not support me

and what I deal with then I would rather not have you in my life now days but I

can be a real big a hole and grouch at times and how stays with me is a

miracle in it's self LOL but keep it to my self nope I talk to much for that LOL

Hugs the rednecksMarty & G.the redneck's my space

http://www.myspace.com/martyg58 Stills ; An illness I know to well! To learn

about Stills http://www.stillsdisease.org/stills_infoIf you find yourself in a

hole, the first thing to do is stop diggin'. In the old days a man who saved

money was a miser; nowadays he's a wonder. ~Author Unknown " Taking my gun away

because I might shoot someone is like cutting my tongue out because I might yell

`Fire!' in a crowded theater. " -- Venetoklis a government and its agents

are under no general duty to provide public services, such as police protection,

to any particular individual citizen... -- Warren v. District of Columbia, 444

A.2d 1 (D.C. App.181)