RE: RE: Tess..Carol and all

[Guest guest]

Thanks, Kathi, for your well wishes with my Remicade.

I enjoyed reading your story, and it helped me to understand scleroderma and

what you go through. I hope the Temazepam works for your sleep. I know you

really need a good night's sleep right about now. I changed from the Ambien

to the Trazodone last night, and got terrible heart palpitations from it. I

was up for hours. I think I'll stick with the Ambien and just take half

every other night.

Love and hugs,

Carol aka Ethel

[ ] RE: Tess..Carol and all

Tess...you know you have my prayers...and any hugs needed

Carol aka Ethel: I am so happy it is working out for you especially

with all the traveling you will be doing.....;.}

I spent most of my day with my lovely doc....he has a new plan after 4

days of no sleep I get another new med and if it doesnt work I get a

vacation at a nice Army Hospital where they will make sure I get some

sleep...new med is Temazepan...another is albuterol as my PFT did show

restrictive disease of the lungs from scleroderma with a side of

asthma and two knew MRIs....if anyone has an electricity problem let

me know I am sure at this point I can light a city....the knew gig is

.....I have lost 20 pounds in two weeks...they thought it was my

absorption problem seems an osteophyte is sticking into my esphogus

causing food not to go down...was wondering why my choking was getting

worse....the dysghgia has been pretty stable...and now this...cant

wait for the answers to this one as three different surgeons have

refused to do surgery on my spine....so the plot does thicken....ah

well the fun and excitement of having an autoimmune disease....aint it

grand...

Debs: I will be thinking of you tomorrow and sending prayers to the

sunshine state.....girl with all the travel plans you and your

faithful side kick have made you had better recuperate fast....

To everyone else...hope you have a pain free evening...Kathi in OK