Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Jody and Mark; 1st I know about friend getting ill my best friend of over 30 years passed a few years back of brain cancer the only time I got to see him during all of it was the day before he died as I live in calif and he lived in Georgia I also because of stills and how sick i was could not go to ither my stepfathers funaral nor my grand mothers a month before. I lived in Idaho and they were in calif. I could afford to go but I could not health wise. Now days I enjoy life somewhat well. I do wish I could work that part kills me but I did lose a unsupportive wife because of stills and now have a wife who is just awesome and supports me big time and fully! It is about us and me with her. Not money as in my ex. long story short the ex devorced me and tgot the state to take my kids from me over my health as i was so sick she got me labled as an unfit parent and not able to care for my kids at any time . She also was okay telling my money ran out then she ran out. I know I enjoy the small things in life I was to busy to even see before. I also know I was on remacaid, MTX and so much more then, for 3 years I took nothing after the divorce as the ex had also canceled my med coverage before the divorce. But was also luck to be in remission at that time so not having med coverage worked out for me then. now it is only MTX some pain killers and all total from 11 drugs a day plus once a week MTX to 4 a day and now MTX .I take the pills and they do not bother me to much a bit of an upset stomach (doc has me using sea sick pills over the counter for it and it works) some tiredness but that is it we have now upped my dose but it is working very well for me. This may be hard to do but try to get into some concealing for Mark and your self to help each other understand the other one and there feelings and how stills or any chronic illness changes the graphics of a family from what we believe it should be and how we planed it out . I can tell you this yes I am ill with stills but I also have a happier life then ever yet I am the poorest I have ever been. Money is not happiness but family and love are. Yes it helps to have some money but it also helps more to have family and such. I know the only thing I want of my pre-stills life is a job I love that I had but I still have my kids and one lives with me now because he is over 18 now, I have the bigger family I always wanted as now I have 5 kids not just 2 and I live with 4 of them .I have a wife that I plan things with both today and for our tomorrows, we dream together and work together for our dreams. life is not easy here as we live on ssi but she is a full time student with a 4.o gpa, my son is going to go back to school and next fall I will be the only one beside my granddaughter not going to collage but I am the baby sitter and ya know what they say DO NOT MESS WITH THE SITTER! LOL. No for me life is great and I do mean GREAT! But this is only after almost 7 years of coming to terms with stills and my life changes The best to ya both and all my family here The redneck Marty Calling an illegal alien an " undocumented immigrant " is like calling a drug dealer an " unlicensed pharmacist. " " Those who hammer their guns into plows will plow for those who do not. " ~ Jefferson Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info To donate http://www.stillsdisease.org/donations ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Marty, Your life sounds wonderful, Marty! You are so focused on your blessings and that is so important. I keep telling everyone that God has challenged us so much since August, but has blessed us even more. Thanks for your words of encouragement. Mark and Jody Mark and Jody from a wordy redneck Jody and Mark; 1st I know about friend getting ill my best friend of over 30 years passed a few years back of brain cancer the only time I got to see him during all of it was the day before he died as I live in calif and he lived in Georgia I also because of stills and how sick i was could not go to ither my stepfathers funaral nor my grand mothers a month before. I lived in Idaho and they were in calif. I could afford to go but I could not health wise. Now days I enjoy life somewhat well. I do wish I could work that part kills me but I did lose a unsupportive wife because of stills and now have a wife who is just awesome and supports me big time and fully! It is about us and me with her. Not money as in my ex. long story short the ex devorced me and tgot the state to take my kids from me over my health as i was so sick she got me labled as an unfit parent and not able to care for my kids at any time . She also was okay telling my money ran out then she ran out. I know I enjoy the small things in life I was to busy to even see before. I also know I was on remacaid, MTX and so much more then, for 3 years I took nothing after the divorce as the ex had also canceled my med coverage before the divorce. But was also luck to be in remission at that time so not having med coverage worked out for me then. now it is only MTX some pain killers and all total from 11 drugs a day plus once a week MTX to 4 a day and now MTX .I take the pills and they do not bother me to much a bit of an upset stomach (doc has me using sea sick pills over the counter for it and it works) some tiredness but that is it we have now upped my dose but it is working very well for me. This may be hard to do but try to get into some concealing for Mark and your self to help each other understand the other one and there feelings and how stills or any chronic illness changes the graphics of a family from what we believe it should be and how we planed it out . I can tell you this yes I am ill with stills but I also have a happier life then ever yet I am the poorest I have ever been. Money is not happiness but family and love are. Yes it helps to have some money but it also helps more to have family and such. I know the only thing I want of my pre-stills life is a job I love that I had but I still have my kids and one lives with me now because he is over 18 now, I have the bigger family I always wanted as now I have 5 kids not just 2 and I live with 4 of them .I have a wife that I plan things with both today and for our tomorrows, we dream together and work together for our dreams. life is not easy here as we live on ssi but she is a full time student with a 4.o gpa, my son is going to go back to school and next fall I will be the only one beside my granddaughter not going to collage but I am the baby sitter and ya know what they say DO NOT MESS WITH THE SITTER! LOL. No for me life is great and I do mean GREAT! But this is only after almost 7 years of coming to terms with stills and my life changes The best to ya both and all my family here The redneck Marty Calling an illegal alien an " undocumented immigrant " is like calling a drug dealer an " unlicensed pharmacist. " " Those who hammer their guns into plows will plow for those who do not. " ~ Jefferson Stills ; An illness I know to well! To learn about Stills http://www.stillsdi sease.org/ stills_info To donate http://www.stillsdi sease.org/ donations ____________ _________ _________ _________ _________ _________ _ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools. search.yahoo. com/newsearch/ category. php?category= shopping Quote Link to comment Share on other sites More sharing options...
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