Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Congratulations Ms Excited! Another writer in our midst. Sharing is caring. Writing down the words had to be very hard for you, but you did so to help other people. Two books, how wonderful to have that many people contribute, but how terrible that you are all afflicted with that disease. The ones to be diagnosed after you will appreciate the love that you put into your stories. You're OK in my book Ms Kathi in OK!!!!! Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 wow kathi, that is so cool. i'd be excited too. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 In a message dated 8/7/02 11:54:43 PM Central Daylight Time, iamladybird@... writes: > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html this was a very informative site. i am sorry you are suffering so. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 AL:Thank you for the kind words...as has been said you are one great guy BIG AL....loved your spice girl reply ....but now that stupid song is running around in my brain....glad you have made your pick of cabana girls....although for some reason I thought youd pick the one in the middle...well as Lucy aka is on vacation you will get some much deserved rest as you will only have one of the gruesome twosome to keep up with...chuckling in OK Kathi --- kb9vrq <kb9vrq@...> wrote: > Hi Kathi, > > I think that's awesome. And think, your story may > help others down > the road understand SD. I am very impressed. > > Hugs, > > Al in IL > > > > They say every bad day has a good ending..I am so > excited it is not > a > > biggy ...but to me kinda exciting...one of the > main scleroderma > sites > > requested stories from people that have SD for a > book..so I wrote > my > > story...,they were going to pick 100 stories for > the book and my > story > > was one...there was so many stories now there will > be two books.... > > as so little is known about SD I thought this was > great...I am sure > > it is not a big deal...but I did make for a good > ending to a not so > > good day....Kathi in OK > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 AL: No paticular reason..maybe because that one was the one my spouse took a second look at and he has always preferred blondes.....on another note I agree with Kathe....our society still seems to attach a stigma to saying I am depressed...when an anti depressant was first metioned to me ...I thought this is it I AM crazy...but what Kathe said is right depression goes hand in hand with chronic illness....Kathi in OK --- kb9vrq <kb9vrq@...> wrote: > And you are one great lady Kathi. > > Sorry about the spice girl thing...=;0 Curious to > know why you > thought the one in the middle would be my choice. > Not like there was > a bad apple in the bunch, if you know what I mean. > LOL! > > Big Al in IL > > > > > > They say every bad day has a good ending..I am > so > > > excited it is not > > > a > > > > biggy ...but to me kinda exciting...one of the > > > main scleroderma > > > sites > > > > requested stories from people that have SD for > a > > > book..so I wrote > > > my > > > > story...,they were going to pick 100 stories > for > > > the book and my > > > story > > > > was one...there was so many stories now there > will > > > be two books.... > > > > as so little is known about SD I thought this > was > > > great...I am sure > > > > it is not a big deal...but I did make for a > good > > > ending to a not so > > > > good day....Kathi in OK > > > > > > > > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 << well as Lucy aka is on vacation you will get some much deserved rest as you will only have one of the gruesome twosome to keep up with..>> Actually, Kathi, he'll get even more of a break. Since my family is in town for the next 8 days, my posting will probably be significantly reduced, as well. Rest up, Al! Hugs, Carol Re: [ ] Re: so excited AL:Thank you for the kind words...as has been said you are one great guy BIG AL....loved your spice girl reply ....but now that stupid song is running around in my brain....glad you have made your pick of cabana girls....although for some reason I thought youd pick the one in the middle...well as Lucy aka is on vacation you will get some much deserved rest as you will only have one of the gruesome twosome to keep up with...chuckling in OK Kathi --- kb9vrq <kb9vrq@...> wrote: > Hi Kathi, > > I think that's awesome. And think, your story may > help others down > the road understand SD. I am very impressed. > > Hugs, > > Al in IL > > > > They say every bad day has a good ending..I am so > excited it is not > a > > biggy ...but to me kinda exciting...one of the > main scleroderma > sites > > requested stories from people that have SD for a > book..so I wrote > my > > story...,they were going to pick 100 stories for > the book and my > story > > was one...there was so many stories now there will > be two books.... > > as so little is known about SD I thought this was > great...I am sure > > it is not a big deal...but I did make for a good > ending to a not so > > good day....Kathi in OK > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Kathy: No more than the rest of you....I am thankful each day that I found all of you... I try to find all the funny in life ....it seems to help....and in this group there is never a dull moment....hugs to you Kathy((((((((((((Kathy)))))))))))-- Kathi in OK kringlemom@... wrote: > In a message dated 8/7/02 11:54:43 PM Central > Daylight Time, > iamladybird@... writes: > > > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > this was a very informative site. i am sorry you are > suffering so. kathy in > il > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 I think it's a big deal, Kathi! When will do they think the book might be published? Who is funding it? [ ] RE: so excited > They say every bad day has a good ending..I am so excited it is not a > biggy ...but to me kinda exciting...one of the main scleroderma sites > requested stories from people that have SD for a book..so I wrote my > story...,they were going to pick 100 stories for the book and my story > was one...there was so many stories now there will be two books.... > as so little is known about SD I thought this was great...I am sure > it is not a big deal...but I did make for a good ending to a not so > good day....Kathi in OK > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 Congratulations, sweet OkIe girl! I am SO proud of you!!!!!!!!!! Your Friend Forever.... Tess ((((((((((((((((Kathi)))))))))))))))) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2002 Report Share Posted August 8, 2002 ...my most heartfelt thanks....if you go to the link and scroll all the way down...ypu will see where you can reserve the book...it is suppose to be published the 1st of October and they are reserving copies now....it lists the docs that are involved in the book and the scleroderma society is involved as to who is actually sponsoring I dont know...also thanks to Tess....I am combining this as I dont want to be known as chatty Kathi....trying to combine as much as I can as I saw we are losing yet another..... once again Thanks and Okie hugs to you.....Kathi --- <Matsumura_Clan@...> wrote: > I think it's a big deal, Kathi! When will do they > think the book might > be published? Who is funding it? > > > > > > [ ] RE: so excited > > > > They say every bad day has a good ending..I am so > excited it is not a > > biggy ...but to me kinda exciting...one of the > main scleroderma sites > > requested stories from people that have SD for a > book..so I wrote my > > story...,they were going to pick 100 stories for > the book and my story > > was one...there was so many stories now there will > be two books.... > > as so little is known about SD I thought this was > great...I am sure > > it is not a big deal...but I did make for a good > ending to a not so > > good day....Kathi in OK > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Way to go...i'll be looking for the book too...thanks for taking the time to share your story...i'm sure it took a lot both emotionally and physically to write..congratulations...marge [ ] RE: so excited > > > > > > > They say every bad day has a good ending..I am so > > excited it is not a > > > biggy ...but to me kinda exciting...one of the > > main scleroderma sites > > > requested stories from people that have SD for a > > book..so I wrote my > > > story...,they were going to pick 100 stories for > > the book and my story > > > was one...there was so many stories now there will > > be two books.... > > > as so little is known about SD I thought this was > > great...I am sure > > > it is not a big deal...but I did make for a good > > ending to a not so > > > good day....Kathi in OK > > > > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Marge: Thanks...Kathi in OK --- Marge <margermeg@...> wrote: > Way to go...i'll be looking for the book > too...thanks for taking the time to > share your story...i'm sure it took a lot both > emotionally and physically to > write..congratulations...marge > [ ] RE: so excited > > > > > > > > > > They say every bad day has a good ending..I am > so > > > excited it is not a > > > > biggy ...but to me kinda exciting...one of the > > > main scleroderma sites > > > > requested stories from people that have SD for > a > > > book..so I wrote my > > > > story...,they were going to pick 100 stories > for > > > the book and my story > > > > was one...there was so many stories now there > will > > > be two books.... > > > > as so little is known about SD I thought this > was > > > great...I am sure > > > > it is not a big deal...but I did make for a > good > > > ending to a not so > > > > good day....Kathi in OK > > > > > > > > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Marge: Thanks...Kathi in OK --- Marge <margermeg@...> wrote: > Way to go...i'll be looking for the book > too...thanks for taking the time to > share your story...i'm sure it took a lot both > emotionally and physically to > write..congratulations...marge > [ ] RE: so excited > > > > > > > > > > They say every bad day has a good ending..I am > so > > > excited it is not a > > > > biggy ...but to me kinda exciting...one of the > > > main scleroderma sites > > > > requested stories from people that have SD for > a > > > book..so I wrote my > > > > story...,they were going to pick 100 stories > for > > > the book and my story > > > > was one...there was so many stories now there > will > > > be two books.... > > > > as so little is known about SD I thought this > was > > > great...I am sure > > > > it is not a big deal...but I did make for a > good > > > ending to a not so > > > > good day....Kathi in OK > > > > > > > > > > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Not a biggie??? YES it IS!!! I¹m sorry that you have to have such first hand knowledge of a rotten disease, but hope that sharing your stories will help others. You should be very proud of your writing ability and for your story being chosen to be published. I¹ll be watching out for that book. Hugs, a > They say every bad day has a good ending..I am so excited it is not a > biggy ...but to me kinda exciting...one of the main scleroderma sites > requested stories from people that have SD for a book..so I wrote my > story...,they were going to pick 100 stories for the book and my story > was one...there was so many stories now there will be two books.... > as so little is known about SD I thought this was great...I am sure > it is not a big deal...but I did make for a good ending to a not so > good day....Kathi in OK > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Kathi, That is a biggie! And congratulations. Have you gotten the Enbrel, that's what I use for my RA-only thing other than remicade that helped. Especially with the fatigue! Temple 3 Fox Haven Way Chelmsford, MA 01824 dat2352@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 Good for you Kathi, You go girl!!!! May be the start of a new career? I am excited for you. Love ya Stacey in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Good site Kathi, And I enjoyed reading your story. Well done. Suzanne [ ] RE: so excited > They say every bad day has a good ending..I am so excited it is not a > biggy ...but to me kinda exciting...one of the main scleroderma sites > requested stories from people that have SD for a book..so I wrote my > story...,they were going to pick 100 stories for the book and my story > was one...there was so many stories now there will be two books.... > as so little is known about SD I thought this was great...I am sure > it is not a big deal...but I did make for a good ending to a not so > good day....Kathi in OK > http://www.sclero.org/support/stories/submissions/kathi/a-to-z.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 ....a and Suzanne ...thank you for your kind words and encouragement...it is greatly appreciated.... I am still waiting on the Enbrel it has been almost a year now...they sent me a letter this week and said the new factory in Rhode Island is behind schedule and it looks like they will not take any new patients until January...but that I am at the top of the list....Kathi in OK --- Temple <dat2352@...> wrote: > Kathi, > That is a biggie! And congratulations. Have you > gotten the Enbrel, that's > what I use for my RA-only thing other than remicade > that helped. Especially > with the fatigue! > Temple > 3 Fox Haven Way > Chelmsford, MA 01824 > > dat2352@... > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Thanks Stacey....as far as new career.....I dont think so....art yes...I love that ...writing ....I will leave that to others on the group that have that talent...I just wanted to participate when I saw what they were doing...so little is known about scleroderma at this point there isnt even a proven treatment that works....they just use the RA drugs hoping one of them will work...i will probably always remember the day I heard you have scleroderma ...there is no cure and no proven treatment...and really no push to find one as it is not that common...so I think a book like this could be of help...at least for people that have it to be able to read what others have experienced....I thank you all for your words ...it means alot.....hugs Kathi in OK --- staceycrwfrd@... wrote: > Good for you Kathi, > You go girl!!!! May be the start of a new career? > I am excited for you. > Love ya > Stacey in PA > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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