Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 good luck with the results suzanne. i have asked my rheumi to look at things. some things they just don't know, but don't be afraid to ask. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Dear Suzanne, As someone who has had colon surgery, I know it wasn't fun. I hope that your results come back with encouraging news. I am glad that it isn't Crohn's disease because that is a very difficult disease to live with (like the ones we have are not?). Take care, Iris __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Iris, I knew I spelled it wrong!! I knew there was an h in there somewhere, just couldn't figure out where. Thanks for the correct spelling. I had some recent dealings at work with a Crohn's patient. I learned first hard how terrible this disease can be, my first thought when the doctor asked me if I knew what it was was, " Oh no, not Crohn's Disease! " when he said, " Well, you don't have it " , I thought, " That wasn't very funny, why did you say it? " Who knows. I'll try to figure out where the spot of irritation is that he has marked, could it be at the top opening to the stomach? Suzanne Re: [ ] Recent testing > Dear Suzanne, > > As someone who has had colon surgery, I know it wasn't > fun. I hope that your results come back with > encouraging news. I am glad that it isn't Crohn's > disease because that is a very difficult disease to > live with (like the ones we have are not?). > Take care, Iris > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Dear Suzanne...I think we all know that drs have a strange sense of humor. My sister-in-law had Crohn's disease and was very sick at first and then with several serious bouts. She has had several surgeries but has been well now for a number of years. Usually when they look at your stomach, they have you swallow something like alka seltzer and shoot the xrays while it is going down. To begin a look at your colon they have to go through your descending colon on to the transverse colon and through the ascending colon and then on to your small intestines. After that is the duodenum into your stomach. I had about 24 " of my colon taken out due to diverticulitis. I was very sick all of the time. It got to where I couldn't go anywhere because I never knew when the pain and sweats would start up. I had several drs who didn't explore the situation because they thought I was too young to be having diverticulitis and just called it IBS. I was getting worse and worse and finally found a GP who knew that what was happening was not just IBS. Thank goodness for him. I did not realize how sick I was until after the surgery when I began to feel good. My dr has a bit of the god complex but he never stops looking until he has the correct diagnosis. He is also not one of them that follows the good ole boy club because he warned me away from a surgeon that the gastro doc sent me to by saying things happen to this guys patients. I had already decided not to use this surgeon because when I interviewed him he had filthy fingernails that looked like there was grease under them. But it was nice to know that my GP has the guts to stand up and not let you make a mistake. Anyway, it is 5 years later and I still do not have any of those type of problems even though I now have about 3 of the pockets in my colon again. I must say that it was rough surgery but worth it. Anyway, I am glad that you are having it all checked out. You definitely should always have anything wrong with your digestive system checked out. Let us know what the report says. Iris __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2002 Report Share Posted August 17, 2002 Hi Iris, What an interesting story! You have a very thorough knowledge of how one tests the colon and stomach. (LOL). Somehow I suspect it did not come without a cost... You've actually told me far more than I ever wanted to know :-) . I hung on every word though. These many days later (10 days?) I still don't have a report from the GI doctor. I called my pcp Friday to see if they had received a report yet. The receptionist suggested I call the GI doctor's office, which I did. It appears the GI doctor is waiting for a report from a pathologist before he writes his report. Is it customary for someone doing a colonoscopy to take a biopsy? My medical friend is having a fit. She swears I am never having another test/surgery in my town, but going to her town where she insists the medical care is better. I do have to admit I sometimes thinks she is right. Your observation of the potential physician's nails is interesting. When I went to a surgeon several years ago before some thyroid surgery, I took my medical friend with me. She commented after the visit that she liked his hands, they were small and he wouldn't have to make a large incision. I would have never thought to look at something like that! There's something quite repellent about a surgeon having dirty fingernails in an office environment. I wonder what his patients' level of complications are after surgery? I'm sure you know how lucky you are to have such an honest and caring physician looking after you. Here's an interesting side effect after the colonoscopy: most of my arthritis pain abated! Weird, huh? I thought it might be because of the demerol. Breaking the chain of pain or something. My rheumy thinks it might be because of the colon cleanse. He said colon cleanses are an old-timey arthritis treatment. Whatever the reason, 10 or so days later I still feel much improved. I haven't needed to supplement the mtx and Vioxx with any arthritis strength Tylenol. I run up and down the stairs without much thought (well, maybe not run, but you know what I mean.) and the pain in my right shoulder is down to mostly a twinge. Consequently, my next appt with him is not for 3 months. Hope I keep feeling this good! Suzanne > Dear Suzanne...I think we all know that drs have a > strange sense of humor. My sister-in-law had Crohn's > disease and was very sick at first and then with > several serious bouts. She has had several surgeries > but has been well now for a number of years. Usually > when they look at your stomach, they have you swallow > something like alka seltzer and shoot the xrays while > it is going down. To begin a look at your colon they > have to go through your descending colon on to the > transverse colon and through the ascending colon and > then on to your small intestines. After that is the > duodenum into your stomach. > > I had about 24 " of my colon taken out due to > diverticulitis. I was very sick all of the time. It > got to where I couldn't go anywhere because I never > knew when the pain and sweats would start up. I had > several drs who didn't explore the situation because > they thought I was too young to be having > diverticulitis and just called it IBS. I was getting > worse and worse and finally found a GP who knew that > what was happening was not just IBS. Thank goodness > for him. I did not realize how sick I was until after > the surgery when I began to feel good. My dr has a > bit of the god complex but he never stops looking > until he has the correct diagnosis. He is also not > one of them that follows the good ole boy club because > he warned me away from a surgeon that the gastro doc > sent me to by saying things happen to this guys > patients. I had already decided not to use this > surgeon because when I interviewed him he had filthy > fingernails that looked like there was grease under > them. But it was nice to know that my GP has the guts > to stand up and not let you make a mistake. Anyway, > it is 5 years later and I still do not have any of > those type of problems even though I now have about 3 > of the pockets in my colon again. I must say that it > was rough surgery but worth it. > > Anyway, I am glad that you are having it all checked > out. You definitely should always have anything wrong > with your digestive system checked out. Let us know > what the report says. Iris > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Wow, Suzanne! That's really interesting to me about the improvement in your arthritis symptoms after the colonoscopy. I've read so much about the possible correlation between arthritis and a " leaky gut " . In a nutshell, they say that the arthritis is caused by your immune system attacking large particles of food that seep through the wall of the colon. I hope you hear good news from the GI doctor, and I hope your joints continue to feel good. Love and hugs, Carol Re: [ ] Recent testing Hi Iris, What an interesting story! You have a very thorough knowledge of how one tests the colon and stomach. (LOL). Somehow I suspect it did not come without a cost... You've actually told me far more than I ever wanted to know :-) . I hung on every word though. These many days later (10 days?) I still don't have a report from the GI doctor. I called my pcp Friday to see if they had received a report yet. The receptionist suggested I call the GI doctor's office, which I did. It appears the GI doctor is waiting for a report from a pathologist before he writes his report. Is it customary for someone doing a colonoscopy to take a biopsy? My medical friend is having a fit. She swears I am never having another test/surgery in my town, but going to her town where she insists the medical care is better. I do have to admit I sometimes thinks she is right. Your observation of the potential physician's nails is interesting. When I went to a surgeon several years ago before some thyroid surgery, I took my medical friend with me. She commented after the visit that she liked his hands, they were small and he wouldn't have to make a large incision. I would have never thought to look at something like that! There's something quite repellent about a surgeon having dirty fingernails in an office environment. I wonder what his patients' level of complications are after surgery? I'm sure you know how lucky you are to have such an honest and caring physician looking after you. Here's an interesting side effect after the colonoscopy: most of my arthritis pain abated! Weird, huh? I thought it might be because of the demerol. Breaking the chain of pain or something. My rheumy thinks it might be because of the colon cleanse. He said colon cleanses are an old-timey arthritis treatment. Whatever the reason, 10 or so days later I still feel much improved. I haven't needed to supplement the mtx and Vioxx with any arthritis strength Tylenol. I run up and down the stairs without much thought (well, maybe not run, but you know what I mean.) and the pain in my right shoulder is down to mostly a twinge. Consequently, my next appt with him is not for 3 months. Hope I keep feeling this good! Suzanne > Dear Suzanne...I think we all know that drs have a > strange sense of humor. My sister-in-law had Crohn's > disease and was very sick at first and then with > several serious bouts. She has had several surgeries > but has been well now for a number of years. Usually > when they look at your stomach, they have you swallow > something like alka seltzer and shoot the xrays while > it is going down. To begin a look at your colon they > have to go through your descending colon on to the > transverse colon and through the ascending colon and > then on to your small intestines. After that is the > duodenum into your stomach. > > I had about 24 " of my colon taken out due to > diverticulitis. I was very sick all of the time. It > got to where I couldn't go anywhere because I never > knew when the pain and sweats would start up. I had > several drs who didn't explore the situation because > they thought I was too young to be having > diverticulitis and just called it IBS. I was getting > worse and worse and finally found a GP who knew that > what was happening was not just IBS. Thank goodness > for him. I did not realize how sick I was until after > the surgery when I began to feel good. My dr has a > bit of the god complex but he never stops looking > until he has the correct diagnosis. He is also not > one of them that follows the good ole boy club because > he warned me away from a surgeon that the gastro doc > sent me to by saying things happen to this guys > patients. I had already decided not to use this > surgeon because when I interviewed him he had filthy > fingernails that looked like there was grease under > them. But it was nice to know that my GP has the guts > to stand up and not let you make a mistake. Anyway, > it is 5 years later and I still do not have any of > those type of problems even though I now have about 3 > of the pockets in my colon again. I must say that it > was rough surgery but worth it. > > Anyway, I am glad that you are having it all checked > out. You definitely should always have anything wrong > with your digestive system checked out. Let us know > what the report says. Iris > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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