Re: Sleep patterns and medications

[Guest guest]

In a message dated 1/13/2008 12:59:47 A.M. Eastern Standard Time,

mellymelt@... writes:

I don't know how many insomniacs are on steroids lately but they are

notorious for insomnia and some sleeping medications don't always keep us

asleep.

Some of the newer ones may but I remember some years ago, some I took just

helped put you to sleep and then I would wake up anyway. Just a thought for

some

of the newer members that may not know some of the side affects of new

medications. Of course, there is also the constant pain at times that cannot

always

be helped.

I hope some have some sweet dreams.

I checked my mail a few hours ago and was shocked to see so many since then,

lots of us must be awake. Granted I am up as well, but I was always a night

owl. Seems like the stills made it so I'm even more of a night owl than ever.

Wonder how many of us had insomnia (I did) and were night owls prestills? I

sure was.

Carole from hollywood fl

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hi ,'

  I have tried 3 Tylenol p.m.'s 4 hours before 'bedtime' and it still ( I hate

that word) didn't help much

   

Diane  42

I don't know how many insomniacs are on steroids lately but they are notorious

for insomnia and some sleeping medications don't always keep us asleep. Some of

the newer ones may but I remember some years ago, some I took just helped put

you to sleep and then I would wake up anyway. Just a thought for some of the

newer members that may not know some of the side affects of new medications. Of

course, there is also the constant pain at times that cannot always be helped.

I hope some have some sweet dreams.

[Guest guest]

Think the Dr's would approve of a few shots of Vodka???? That will knock

me out quick! That's one of the reasons I was never a heavy drinker...after

the 3rd or 4th I'd get real tired and go to sleep. Too bad I know the answer

to that one. Kirk.

>

> I don't know how many insomniacs are on steroids lately but they are

> notorious for insomnia and some sleeping medications don't always keep us

> asleep. Some of the newer ones may but I remember some years ago, some I

> took just helped put you to sleep and then I would wake up anyway. Just a

> thought for some of the newer members that may not know some of the side

> affects of new medications. Of course, there is also the constant pain at

> times that cannot always be helped.

> I hope some have some sweet dreams.

>

>

[Guest guest]

I wasn't much into the night pre-stills, at least not that I remember.

Kirk.

>

>

> In a message dated 1/13/2008 12:59:47 A.M. Eastern Standard Time,

> mellymelt@... <mellymelt%40netzero.net> writes:

>

> I don't know how many insomniacs are on steroids lately but they are

> notorious for insomnia and some sleeping medications don't always keep us

> asleep.

> Some of the newer ones may but I remember some years ago, some I took just

>

> helped put you to sleep and then I would wake up anyway. Just a thought

> for some

> of the newer members that may not know some of the side affects of new

> medications. Of course, there is also the constant pain at times that

> cannot always

> be helped.

> I hope some have some sweet dreams.

>

> I checked my mail a few hours ago and was shocked to see so many since

> then,

> lots of us must be awake. Granted I am up as well, but I was always a

> night

> owl. Seems like the stills made it so I'm even more of a night owl than

> ever.

> Wonder how many of us had insomnia (I did) and were night owls prestills?

> I

> sure was.

>

> Carole from hollywood fl

>

> **************Start the year off right. Easy ways to stay in shape.

> http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

>

>

[Guest guest]

I take Ambien CR and a pain pill...it helps me stay asleep for 6 hours usually,

then the pain pill wears off and I wake up..but I get a good night's sleep.

Have any of you poor sleepless guys tried that. Kirk I think I remember you

said you did. I get very confused who says what, my poor brain t'aint what it

used to be. Hope you all have a fun Sunday....and ....

GO COWBOYS!!!!

in Texas

Re: Sleep patterns and medications

Think the Dr's would approve of a few shots of Vodka???? That will knock

me out quick! That's one of the reasons I was never a heavy drinker...after

the 3rd or 4th I'd get real tired and go to sleep. Too bad I know the answer

to that one. Kirk.

>

> I don't know how many insomniacs are on steroids lately but they are

> notorious for insomnia and some sleeping medications don't always keep us

> asleep. Some of the newer ones may but I remember some years ago, some I

> took just helped put you to sleep and then I would wake up anyway. Just a

> thought for some of the newer members that may not know some of the side

> affects of new medications. Of course, there is also the constant pain at

> times that cannot always be helped.

> I hope some have some sweet dreams.

>

>

[Guest guest]

I never was a night owl...except when I was in college and my partying 20s...and

I'm still not. I have no problem falling asleep...it's staying asleep that I

need help with.

Re: Sleep patterns and medications

In a message dated 1/13/2008 12:59:47 A.M. Eastern Standard Time,

mellymelt@... writes:

I don't know how many insomniacs are on steroids lately but they are

notorious for insomnia and some sleeping medications don't always keep us

asleep.

Some of the newer ones may but I remember some years ago, some I took just

helped put you to sleep and then I would wake up anyway. Just a thought for

some

of the newer members that may not know some of the side affects of new

medications. Of course, there is also the constant pain at times that cannot

always

be helped.

I hope some have some sweet dreams.

I checked my mail a few hours ago and was shocked to see so many since then,

lots of us must be awake. Granted I am up as well, but I was always a night

owl. Seems like the stills made it so I'm even more of a night owl than ever.

Wonder how many of us had insomnia (I did) and were night owls prestills? I

sure was.

Carole from hollywood fl

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

My sleep patterns drive me crazy.

I am on 20mg pred now and off MTX and Remicade since October because of

an open wound on my scalp. Due to a returned skin cancer (Not Melinoma

so no big C concern) I had to have it removed by Plastic Surgeon. But

got infected (damn stills drugs). Had to open it to drain and start to

heal. At least 4-5 more weeks before I can restart my drugs.

Meanwhle 20 mg not even close to controlling flares. My RD has me

bumping 5-10 every other day.

On the 20mg and flaring, I can not stay awake. When bumped, can hardly

fall asleep. What a roller coaster.

Tom from PA

>

> I don't know how many insomniacs are on steroids lately but they are

notorious for insomnia and some sleeping medications don't always keep

us asleep. Some of the newer ones may but I remember some years ago,

some I took just helped put you to sleep and then I would wake up

anyway. Just a thought for some of the newer members that may not know

some of the side affects of new medications. Of course, there is also

the constant pain at times that cannot always be helped.

> I hope some have some sweet dreams.

>

>

[Guest guest]

Hello my fellow Islanders:

I have ibuprofen 800. I take two about a half hour before bed and one

more when I inevitably wake up during the night. If I sleep through

the night it's because I'm getting sick; as in a cold or worse. Oh,

and yes, pain that wakes me more often than anything else but I'm also

an insomniac. Has anyone looked at a connection here? We're

not " normal " people!

Take care and be well.

Ellen

[Guest guest]

Normal?....Normal?.....oh normal is definitely not any part of us....LOL...with

us, The Only Certainty is Change!....The Only Consistencies are

Inconsistencies!.....AND we all seem to be included in some strange Karma that

throws the wildest, wierdest, strangest load of signs/symptoms that leave our

doctors standing there shaking and scratching their heads WHILE we sit there

thinking " well, why the hell not.... " .......like Friday, when I opened the door

and ended up with " Multiple Rib Fractures " ! on top of the three I have already

and the Pneumonia! YEHAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA!!!!!!!!

Again, Why the hell not?.......Love ya Ellen, and I always enjoy your posts!

" Abee Normal "

Larry B.

----Original Message-----

>

>To: Stillsdisease

>Subject: Re: Sleep patterns and medications

>Reply-To: Stillsdisease

>Date: Sunday, January 13, 2008 4:20 PM

>

>Hello my fellow Islanders:

>

>I have ibuprofen 800. I take two about a half hour before bed and one

>more when I inevitably wake up during the night. If I sleep through

>the night it's because I'm getting sick; as in a cold or worse. Oh,

>and yes, pain that wakes me more often than anything else but I'm also

>an insomniac. Has anyone looked at a connection here? We're

>not " normal " people!

>

>Take care and be well.

>

>Ellen

>

>

>

>

>

[Guest guest]

I have tried Ambien, Ambien CR and Lunesta. The MOST i've slept after

taking one is about 2 hours. I took two one night and was awke in under two

hours again. I do know my body seems to have a very high threshold for

narcotics to work, but that doesn't explain Lunesta, as that is non

narcotic, and I think Ambien CR is also.

I don't know why they don't work for me, but would really, really LOVE a

good nights sleep more than the one or two times per month that I get now.

I'm Still sick over the Cowboys, and can't wait for the NFL to issue

ANOTHER " apology " to DeMarcus Ware for being called off-sides when replays

show he was far from it. That led to the Giants first TD, and that was the

difference in the game. Now, for as much as I'm against it....will be a HUGE

Packers fan next week. I probably won't watch the Super Bowl though.

Kirk.

PS. Ive had a sleep studie done (two days after being in the ICU for a week

after having my tonsils ripped out and my nostrils " chiseled " . Despite the

agony I was still in, my protests fell on deaf ears) and was told I have

moderate sleep apnea. I tried for 6 months wearing that damn CPAP with no

results. The Dr. who was my best friend and " got me in quick " turned out to

be a total asshole in that now he doesn't want anything to do with me. Hell,

he made his money & commission selling me that machine...why deal with a

case that's not cut & dry. I DESPISE the large number of " Doctors " out there

that just want to pack as many people into a days work as possible so they

can golf in the afternoon. This guy who amazingly was able to get me an

appointment for the sleep testing two days removed from the ICU now says his

next available appointment is a minimum of 8 weeks away. I saw him three

times afterwards and told him that I was having more problems than ever

sleeping and after sleeping pills and an adjustment on the CPAP didn't work

he had the balls to tell me he wouldn't know what to do next, I have a rare

disease and he has no idea how that will affect my sleep. That is almost a

direct quote, but I'm going off of memory.

That's the one thing I want done the next time (if there ever is one, as

I avoid it like the plague) I wind up in the resort is a full &

comprehensive sleep evaluation by a COMPETENT Dr. I still try the CPAP from

time to time, but I awaken the same as usual and give up after a week to 10

days.

I find that on average everytime I have to see a new specialist I usually

wind up going through at least 2 before I find one that wants to hear what

you have to say. That pisses me off to no end. When I worked, I was a

PROFESSIONAL mechanic, and had the degree and all of the certifications to

prove it yet the first thing I always did before looking at a car was to

pick my customers' brain about exactly what kind of problem they were

having, or what they were after. My logic behind this is quite simple.....I

may find 5 problems with a car, but you are only after one. I had better

have a pretty damn good idea of what you expected when you brought that

car/truck/boat (whatever) to me to resolve YOUR problem. I would always fix

what the customer wanted fixed and than let them know about anything else I

may have found. I EXPECT at least the same treatment from my Doctor, but too

many of them either don't give a shit so long as they are paid or don't know

what they are looking for. That's why I drive 100 miles each way to see my

RD. He asks questions and he listens. That's why I was going back & forth to

Philadelphia for two years as Dr. Wm Young may have been the most thorough

Dr I've ever met to date. Granted...he didn't solve my problem, but I know

quite well he spent hours upon hours with me when I was hospitalized there

for 12 days. He tested me for every disease he could find information on and

eliminated each of them, one by one. He is the one who told me that he'll

agree that Stills is the disease that best " fits " what I have, but he is

split 50/50 in that he thinks I may have something he has never seen before.

My RD agrees with him, as do my PCPs. Why can't all Dr's be like that????? I

know...it is a question without an answer...but the one thing I learned is

that if the Dr can't take more than the 5 minutes his schedule allowed for

me, than I can't afford to see him. If you ever want to have fun when you

come across a DR. like this leave a voicemail at their office stating that

being that you have little interest in treating me, cancel my future

appointments. They are still trying to get me on the phone, but I'd rather

lick my toilet bowl than give him the satisfaction of knowing why I won't

ever be back.

Sorry...I kind of drifted a bit off the subject there...but I get pretty

passionate about certain things and don't notice time and the like.

Adios, have a good one, kirk.

>

> I take Ambien CR and a pain pill...it helps me stay asleep for 6 hours

> usually, then the pain pill wears off and I wake up..but I get a good

> night's sleep. Have any of you poor sleepless guys tried that. Kirk I think

> I remember you said you did. I get very confused who says what, my poor

> brain t'aint what it used to be. Hope you all have a fun Sunday....and ....

> GO COWBOYS!!!!

> in Texas

> Re: Sleep patterns and medications

>

> Think the Dr's would approve of a few shots of Vodka???? That will knock

> me out quick! That's one of the reasons I was never a heavy

> drinker...after

> the 3rd or 4th I'd get real tired and go to sleep. Too bad I know the

> answer

> to that one. Kirk.

>

> On 13/01/2008, mellymelt <mellymelt@... <mellymelt%40netzero.net>>

> wrote:

> >

> > I don't know how many insomniacs are on steroids lately but they are

> > notorious for insomnia and some sleeping medications don't always keep

> us

> > asleep. Some of the newer ones may but I remember some years ago, some I

> > took just helped put you to sleep and then I would wake up anyway. Just

> a

> > thought for some of the newer members that may not know some of the side

> > affects of new medications. Of course, there is also the constant pain

> at

> > times that cannot always be helped.

> > I hope some have some sweet dreams.

> >

> >

[Guest guest]

I have been taking Clonazepan (Klonipin), which I believe was

traditionally used as an anti-seizure medication, but it has been

helping me to slepp much better. My Rheumie doctor is adamant that

we need restful sleep, to prevent increased inflammation. She said

that every time we wake in the night, it creates more tension and

causes increase inflammation. She's a saint for helping to make my

sleep a priority.

IL