Re: Re: Dr. Rubery - Strong Memorial Hospital in Rochester, New York

[Guest guest]

Hi !!!!

I'm so glad you had a good first experience.... What did the doc say? any numbers or projections for the future? I would love to ask you more about the hotel, as well.

Congrats!!!!

Steph

Subject: Re: Dr. Rubery - Strong Memorial Hospital in Rochester, New YorkTo: "C.A.S.T." <infantile_scoliosis >Date: Saturday, December 6, 2008, 3:05 PM

Hi -We just returned yesterday from Rochester, where our son, Guthrie, got his first cast. Kauffunger, another Rochester parent posting below, has been a great support for our family already, and I hope that I can share any useful info with you and other Rochester families.Logistically, we live in NJ and it's about a 6 hour drive for us. You should definitely ask your doctor¢s assistant about Strong Guest Services (http://www. stronghealth. com/patientsvisi tors/relatedloca lserv/smhguestse rv.cfm) for accommodations. They can arrange accommodations at the RIT Inn & Conference Center (http://www. ritinn.com) -- it's nice, got an indoor pool, food, 4 miles from the hospital and clinic.. I highly recommend it -- especially since through your doctor¢s office, you may be eligible for a free night and then all additional nights are $40+ tax. They had a pack n¢ play for us, too. I think Strong Guest

Services might even provide food vouchers. And I believe there's a free shuttle to/from the hospital.In terms of our doctor and the hospital, we were very happy. Everyone is totally on board with Mehta casting and they are so warm and sincere and interested and caring and knowledgeable. We stayed two nights -- consult with our doctor on Wednesday, casting on Thursday morning, and then we stayed around to make sure the cast fit well. We went back to our doctor¢s clinic on Friday morning to get some of the cast trimmed off under Guthrie's chin, and that was very convenient to do -- no appointment or waiting at all.Please feel free to email me off line if you¢d like to discuss anything more specifically, and good luck!Warmly, amanda@catmanandmar y.com> > > Subject: [infantile_scoliosi s] Dr. Rubery - Strong Memorial Hospital in Rochester, New York> To: infantile_scoliosis @yahoogroups. com> Date: Friday, December 5, 2008, 2:18 AM> > > > > > > We are new to ISOP but would like to share our story regarding our > son and would appreciate your comments and support.> > Our son, , is 20 months old and his thoraxic curve is > currently at 40 degrees and his spine is rotated. When we first >

discovered his scoliosis, in January of this year, his curve was 29 > degrees. His doctor recommended to first wait and see, then that he > be placed in a brace in November. This time period allowed the > curvature to unfortunately progress significantly. When we went to > the specialist to have the brace made, it was recommended that he > have an MRI done prior to any treatment. After the MRI, we are going > to have him evaluated by Dr. Rubery and have a serial plaster cast > applied. We would appreciate any further insights from your > experiences and of course welcome all support given.> We live in the panhandle of West Virginia and would welcome > any "local" families' information regarding travel, lodging, and just > all around general helpful hints.> > Thanks,> > The Sine

Family>