Skin on fire

[Guest guest]

Hi Keri and Kirk,

    Unfortunately I too know the feeling of that weird sensation on the

skin...I 

cant explain it but it feels like it is on fire too  and I cant touch it or

have anything touch it.   I have had (and still have) a splitting headache

right now and

for the past 2 days...I feel real nauseas too  ...no fever   just headache and

nausea and

weak  but a little pain only in the joints....YUCKO!

I am today lowering my dose of prednisone to 10 mg!! YEAH!! 

I hope I am off of that for good soon 

Diane 42

I am up... Can't sleep as usual. You know what my skin gets this weird sensation

like nothing can touch it. It hurts sooo much to even have a sheet on me. I

hate it. I usually get it when I am flaring pretty bad. 

I've been reading your posts lately. How are feeling? It sucks that you are

having such a crappy time. Sorry to hear it. It has been a long road for you.

Hang in there. ( i know that you have heard that a million times, LOL)

I was in complete and utter pain for about 7 years and I am just NOW starting to

feel some relief. I was diagnosed when I was 25 and my son was just 6 months

old. I really feel for all of us that have kids, becuz this disease really

effects the kids. My son, poor thing, had to deal with so much disappointment.

He wants me there for everything and I try, really hard, but I don't always get

to be there. I really hope this isn't going to " F " him up when he is older.

Anyway- I just wanted to let you know that I too cannot sleep. So you are not

alone.

What time is it there? It is 2 am here.

Love and Support,

Keri in CA

ot

Anyone else awake?????? I'll be up for a bit....my back feels like someone

is holding a blow-torch to it!!! Anyone ever get the sensation that their

skin feels as if ti is literally burning????? Kirik

--

Everything in life sucks except things that should!