Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Is anemia part of this disease? My rheumy says no. I think it is. My doc thinks I have ibd cuz im anemic. So he wants me to have a colonoscopy done to rule that out. Yuck. Granted I dont have insurance so this would come out of pocket like everything else. Any advice on this subject would be appreciated. Thanks. Suzan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Not a doctor here, but most sites mention the following: *A number of blood tests may give an indication that you have Adult Still's disease. One type of test measures counts of certain blood cells: Typically, the number of white blood cells and platelets are high, while the red blood cell count is often low (anemia).* So if you have Stills, your red blood cell count is often low. Also, if you are taking a lot of NSAIDS, they can cause stomach upset as well. Prescription meds like predisone cause some people stomach upset and diarrhea. I'd really wonder if it's not just the Stills, myself, unless you had a lot of other symptoms. Small bit of good news is that if you are being treated by prednisone for Stills, they use that for IBD as well... you may already be getting treated for it! Good luck Suzan... hope it's just a wild goose chase and not a problem. > Is anemia part of this disease? My rheumy says no. I think it is. My > doc thinks I have ibd cuz im anemic. So he wants me to have a > colonoscopy done to rule that out. Yuck. Granted I dont have insurance > so this would come out of pocket like everything else. Any advice on > this subject would be appreciated. Thanks. > Suzan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Hi Suzan I think that anaemia is part of Stills as I have recently been diagnosed as anaemic and have been given iron pills for 6 weeks and then I will have a blood test to see if they have helped. Did you have iron pills, I don't know what ibd cuz im anaemic means but it sounds more complicated that just anaemia. Hope you are able to get the colonoscopy done. All the best Joan U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Dear Suzan, I was severely anemic when first diagnosed and was told by my doctor that a certain type of anemia was indicative of Still's disease. I am not a doctor and cannot give you the answers as to whether you need a colonoscopy or not. For that you would need to decide. The best of luck to you. _____ Is anemia part of this disease? Thanks. Suzan ____________________________________________________________ It's never too old to date. Senior Dating. Click Here. http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4vdf9qOg3V7PqkjADDAsJKZdYF3\ PBLPRfapREHXFVLoTwOYm/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Hey Suzan:I am still in the Rehab Center, due to be D/C HOME next Tuesday...anyway..I have been Anemic, off and on, for the last three and 1/2 years with Stills.....in fact, yesterday, i had 2 units whole blood ordered by the on-call doc.....dadgum stuff took FORever....anyway, they didd not have to do a colonooscopy but took 3 stool samples to test for occult blood...much less invasive obviously.....take care........Larry B. http://clk.atdmt.com/MRT/go/108587394/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Hey Suzan, I've also been Anemic for quite a while, now. Whether it's due to the Still's, me being underweight, or both, I don't know. I know that the Anemia has gotten worse in the last half a year, though. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 I to fight anemic my self . this never came up before stills but the docs have brought it up a few times now after stills .It also seams that now i have very small and miss shaped red blood cells on top of it all . the cells as in shape and size alone are enought to make me this way then add on the every now or then low counts and they almost want us to take iron pills but so far I have not had to . the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info If you find yourself in a hole, the first thing to do is stop diggin'. In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown " Taking my gun away because I might shoot someone is like cutting my tongue out because I might yell `Fire!' in a crowded theater. " -- Venetoklis a government and its agents are under no general duty to provide public services, such as police protection, to any particular individual citizen... -- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Marty, that's just from years of them being rattled on a Harley... if I remember right. > > I to fight anemic my self . this never came up before stills but the docs > have brought it up a few times now after stills .It also seams that now i > have very small and miss shaped red blood cells on top of it all . the cells > as in shape and size alone are enought to make me this way then add on the > every now or then low counts and they almost want us to take iron pills but > so far I have not had to . > > the rednecks > Marty & G. > the redneck's my space http://www.myspace.com/martyg58 > > Stills ; An illness I know to well! > To learn about Stills http://www.stillsdisease.org/stills_info > If you find yourself in a hole, the first thing to do is stop diggin'. > > In the old days a man who saved money was a miser; nowadays he's a wonder. > ~Author Unknown > > > > " Taking my gun away because I might shoot someone is like cutting my tongue > out because I might yell `Fire!' in a crowded theater. " > -- Venetoklis > > a government and its agents are under no general duty to provide public > services, such as police protection, to any particular individual citizen... > > -- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 well It could be from my old honda as that thing vibrated not low like a hog but high end . I wish it had been a hog but i would most likly cryed more when i sold it if it was LOL but now i have a reson to get a chopper like i always wanted and the wife lokes them to so wo knows some day again I may be a wild hog LOL. the rednecks Marty & G. the redneck's my space http://www.myspace.com/martyg58 Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info If you find yourself in a hole, the first thing to do is stop diggin'. In the old days a man who saved money was a miser; nowadays he's a wonder. ~Author Unknown Re: Anemia Marty, that's just from years of them being rattled on a Harley... if I remember right. .. " Taking my gun away because I might shoot someone is like cutting my tongue out because I might yell `Fire!' in a crowded theater. " -- Venetoklis a government and its agents are under no general duty to provide public services, such as police protection, to any particular individual citizen... -- Warren v. District of Columbia, 444 A.2d 1 (D.C. App.181) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 , My RD and a Hematologist have been working with me and have said that my anemia and low platelets are all related to my Stills. However, at the start indicated that it is not always one of the so called major markers. I have also seen StillsRelated anemia in my literature search. Therefore it is important that they rule out other causes of anemia, like colon cancer, lymphomas, B12 deficiency and iron deficiency. Drugs like MTX can also cause anemia by competing with folic acid. The final test they have run on many of us, including me was a biopsy of my bone marrow. Like many of the Stills tests, case of ruling out everything else In other words get the other tests done. BTW The prep for the colonoscopy is yucky. ton > > Is anemia part of this disease? Suzan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Depending on how they do it, it's really not that bad. I had one a few years ago, and couldn't get the thought out of my head that I was glad I was ME, and not the DOCTOR. lol I was a little nauseated, and at one point asked the nurse to hold my hand a sec (nurses can be amazing help if you just ask for it), and it was over before I knew it. > , > > My RD and a Hematologist have been working with me and have said that my > anemia and low platelets are all related to my Stills. However, at the start > indicated that it is not always one of the so called major markers. I have > also seen StillsRelated anemia in my literature search. Therefore it is > important that they rule out other causes of anemia, like colon cancer, > lymphomas, B12 deficiency and iron deficiency. Drugs like MTX can also cause > anemia by competing with folic acid. > > The final test they have run on many of us, including me was a biopsy of my > bone marrow. Like many of the Stills tests, case of ruling out everything > else > > In other words get the other tests done. BTW The prep for the colonoscopy > is yucky. > > ton > > > > > > Is anemia part of this disease? Suzan > > > > > Quote Link to comment Share on other sites More sharing options...
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