Re: severe contipation

[Guest guest]

what city are you in?

Subject: severe contipationTo: Texas-Autism-Advocacy Date: Wednesday, September 24, 2008, 10:11 AM

My son darian was diagnosed with autism at age 2 and around 3-4 yrs. old he started getting constipated very often. now it's gotten so bad he has to be on miralax every other day or he will not go at all! what should i do? will he ever be able to go on his own without miralax?

[Guest guest]

I live in batesville, tx it's a very small town. the nearest city in san antonio, tx

Marlee

[Texas-Autism- Advocacy] severe contipationTo: Texas-Autism- Advocacy@ yahoogroups. comDate: Wednesday, September 24, 2008, 10:11 AM

My son darian was diagnosed with autism at age 2 and around 3-4 yrs. old he started getting constipated very often. now it's gotten so bad he has to be on miralax every other day or he will not go at all! what should i do? will he ever be able to go on his own without miralax?

[Guest guest]

The Thoughtful House Center for Children in Austin is widely known and respected around the world for their work with children on the spectrum. They follow the DAN protocol.

I have not heard of the doctor you are talking about, but I know the Center in Austin and their staff have been credited for huge gains in a great number of children. I know many parents who take their kids there and have seen huge improvements, including my own son.

I don't think it hurts to at least go to this doctor in San , but I would get a second opinion from the Thoughtful House.

Hope this helps. Write back with further questions.

From: Marlee <marleetor@sbcglobal .net>Subject: [Texas-Autism- Advocacy] severe contipationTo: Texas-Autism- Advocacy@ yahoogroups. comDate: Wednesday, September 24, 2008, 10:11 AM

My son darian was diagnosed with autism at age 2 and around 3-4 yrs. old he started getting constipated very often. now it's gotten so bad he has to be on miralax every other day or he will not go at all! what should i do? will he ever be able to go on his own without miralax?

[Guest guest]

does this place in autism have a website or # ? i would really like to follow up with that. thanx for the advice.

Marlee

[Texas-Autism- Advocacy] severe contipationTo: Texas-Autism- Advocacy@ yahoogroups. comDate: Wednesday, September 24, 2008, 10:11 AM

My son darian was diagnosed with autism at age 2 and around 3-4 yrs. old he started getting constipated very often. now it's gotten so bad he has to be on miralax every other day or he will not go at all! what should i do? will he ever be able to go on his own without miralax?

[Guest guest]

Also, the Clinicians, Nutritionist, and Physicians from Thoughtful House Center for Children are the Keynotes at the October 4th Autism Conference in Tomball.

M. GuppyMy autism journey isn't about waiting for the storm to pass, it's about learning to dance in the rain.... Texas Autism Advocacy: www.TexasAutismAdvocacy.org

"There are some aspects of a person's life that we have no right to compromise. We cannot negotiate the size of an institution. No one should live in one. We cannot debate who should get an inclusive education. Everyone should. We cannot determine who does and who does not get the right to make their own choices and forge their own futures. All must."

From: Marlee <marleetor@sbcglobal .net>Subject: [Texas-Autism- Advocacy] severe contipationTo: Texas-Autism- Advocacy@ yahoogroups. comDate: Wednesday, September 24, 2008, 10:11 AM

My son darian was diagnosed with autism at age 2 and around 3-4 yrs. old he started getting constipated very often. now it's gotten so bad he has to be on miralax every other day or he will not go at all! what should i do? will he ever be able to go on his own without miralax?

[Guest guest]

try vit c (1000 mg) and magnisum (500 mg)..It helped my son.

severe contipation

> My son darian was diagnosed with autism at age 2 and around 3-4 yrs.

> old he started getting constipated very often. now it's gotten so bad

> he has to be on miralax every other day or he will not go at all! what

> should i do? will he ever be able to go on his own without miralax?

>

>

> ------------------------------------

>

> Texas Autism Advocacy

> www.TexasAutismAdvocacy.org

>

> Texas Disability Network

> Calendar of Events

> www.TexasAutismAdvocacy.org

[Guest guest]

You might as well drive the extra hour to Austin if you the closest

city to you is San .

>

> From: Marlee <marleetor@sbcglobal .net>

> Subject: [Texas-Autism- Advocacy] severe contipation

> To: Texas-Autism- Advocacy@ yahoogroups. com

> Date: Wednesday, September 24, 2008, 10:11 AM

>

>

>

>

> My son darian was diagnosed with autism at age 2 and around 3-4

yrs.

> old he started getting constipated very often. now it's gotten so

bad

> he has to be on miralax every other day or he will not go at all!

what

> should i do? will he ever be able to go on his own without miralax?

>

[Guest guest]

We go to the CARE clinic in Austin Texas which unlike Thoughtfulhouse

takes my insurance. It's nice to have a choice and we are lucky to have

both these clinics in Austin. My son's constipation was greatly

improved with extra vitamin c and Oxypowder. I no longer use Miralax at

all. I credit CARE clinic with helping my son achieve balance in his gut

and his absorption of nutrients is getting better as well.

Trina

g sung wrote:

>

> The Thoughtful House Center for Children in Austin is widely known and

> respected around the world for their work with children on the

> spectrum. They follow the DAN protocol.

>

> I have not heard of the doctor you are talking about, but I know the

> Center in Austin and their staff have been credited for huge gains in

> a great number of children. I know many parents who take their kids

> there and have seen huge improvements, including my own son.

>

> I don't think it hurts to at least go to this doctor in San ,

> but I would get a second opinion from the Thoughtful House.

>

> Hope this helps. Write back with further questions.

>

>

>

> From: Marlee <marleetor@sbcglobal .net>

> Subject: [Texas-Autism- Advocacy] severe contipation

> To: Texas-Autism- Advocacy@ yahoogroups. com

> Date: Wednesday, September 24, 2008, 10:11 AM

>

> My son darian was diagnosed with autism at age 2 and around

> 3-4 yrs.

> old he started getting constipated very often. now it's gotten

> so bad

> he has to be on miralax every other day or he will not go at

> all! what

> should i do? will he ever be able to go on his own without

> miralax?

>

>

>

>

[Guest guest]

www.mycareclinics.com

Kazuko is an amazing woman who sold her car and her wedding ring to help

fund CARE clinics. The level of personal one to one care my son receives

there is more like a family than a treatment facility. I've had 7

different DAN doctors and this place was the only one who knew more than

I did. As my son continues to get better we tweak and adjust and they

support me, they understand his needs and they have seen first hand his

improvements and his shortcomings. I think knowing that your on the

right track and knowing that someone will be there to help you pinpoint

the issue is a huge relief. My son was on several RX medications for

anxiety and constipation and lack of sleep and hyperactivity. All have

been eliminated now. In fact when he went to school this fall the

teachers from last year asked me what I had been doing this summer, this

was a totally different kid! I've also actually had someone tell me that

perhaps my son would have gotten better with no intervention! I'm

hopeful for the day someone tells me he was never autistic in the first

place. Only I've got video....lots of it.

Bottom line, Thoughtfulhouse, CARE clinic both are doing wonders do

what's best for you.

Trina

Marlee wrote:

> does this place in autism have a website or # ? i would really like to

> follow up with that. thanx for the advice.

>

>

>

>

> *Marlee *

>

>

>

>

> [Texas-Autism- Advocacy] severe contipation

> To: Texas-Autism- Advocacy@ yahoogroups. com

> Date: Wednesday, September 24, 2008, 10:11 AM

>

> My son darian was diagnosed with autism at age 2 and around

> 3-4 yrs.

> old he started getting constipated very often. now it's gotten

> so bad

> he has to be on miralax every other day or he will not go at

> all! what

> should i do? will he ever be able to go on his own without

> miralax?

>

>

>

>

[Guest guest]

Marlee,

Miralax can cause a condition called 'lazy colon' where your son's

colon depends on Miralax to do its job for it and can't go without it.

this condition is more likely to happen after extended use of this drug.

It also has some behavioral side effects for some of our children

because of its chemical make up. (it makes their behavior worsen)

Have you looked into a G/F, C/F diet? This helps as many as 70% of our

children with their gut issues and many other improvements.

http://www.gfcfdiet.com/

http://www.geocities.com/arnfl/booksnlinks.html

http://gfcf-diet.talkaboutcuringautism.org/index.html

http://www.talkaboutcuringautism.org/index.htm

Digestive enzymes are also helpful (Petizyde, Zyme Prime, No-fenol) are

some enzymes that help digest food, especially gluten and casein.

http://www.houston-enzymes.com/

Kirkman Labs also has some enzymes that are helpful. I am not

advocating either company, I think they both have good products, I am

not associated with either.

www.kirkmanlabs.com

A very helpful supplement for severe constipation is oxy powder colon

cleanse.

http://www.oxypowder.com/?s_kwcid=oxy-powder|1189072508

Nagla

>

> My son darian was diagnosed with autism at age 2 and around 3-4 yrs.

> old he started getting constipated very often. now it's gotten so bad

> he has to be on miralax every other day or he will not go at all!

what

> should i do? will he ever be able to go on his own without miralax?

>

[Guest guest]

My son has been on miralax for about a year and is dependent on it .

I've asked his GI numerous times about why he cannot " go " without it

,whether it was due to a motility issue. He keeps reassuring that it's

safe and does not cause motility issues . Another thing I've tried

that works quickly ,(need to be at home ) is Pear Juice or nectar.The

Sorbitol in it is what makes you " go " . So,that's another option.

Nagla are there any papers or articles you've found on miralax and

dependency?

stacey

> >

> > My son darian was diagnosed with autism at age 2 and around 3-4 yrs.

> > old he started getting constipated very often. now it's gotten so bad

> > he has to be on miralax every other day or he will not go at all!

> what

> > should i do? will he ever be able to go on his own without miralax?

> >

>

[Guest guest]

One of my clients has had this problem for the past year and

like Nagla said, my client’s doctor strongly opposed the use of miralax

for these kids because of the behavioral side effects she has seen on normal

functioning kids. Instead, she recommended benefiber – I believe

1 tsp in the morning and 1 tsp in late afternoon. One of my client’s

problems has been that her stool is very wide, so she doesn’t want to go

because it hurts. The doctor explained that constipation causes the colon

to expand and that it would take some time for the colon to shrink back down.

The benefiber has helped, but my client does like apples and

raisins and eats one or both daily.

Another thing she takes is ground flax seeds. You can put

it in juice or sprinkle it on a peanut butter sandwich or add it to just about

anything they like that you can hide it in.

Margaret

From:

Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of asccnagla

Sent: Wednesday, September 24, 2008 11:47 AM

To: Texas-Autism-Advocacy

Subject: Re: severe contipation

Marlee,

Miralax can cause a condition called 'lazy colon' where your son's

colon depends on Miralax to do its job for it and can't go without it.

this condition is more likely to happen after extended use of this drug.

It also has some behavioral side effects for some of our children

because of its chemical make up. (it makes their behavior worsen)

Have you looked into a G/F, C/F diet? This helps as many as 70% of our

children with their gut issues and many other improvements.

http://www.gfcfdiet.com/

http://www.geocities.com/arnfl/booksnlinks.html

http://gfcf-diet.talkaboutcuringautism.org/index.html

http://www.talkaboutcuringautism.org/index.htm

Digestive enzymes are also helpful (Petizyde, Zyme Prime, No-fenol) are

some enzymes that help digest food, especially gluten and casein.

http://www.houston-enzymes.com/

Kirkman Labs also has some enzymes that are helpful. I am not

advocating either company, I think they both have good products, I am

not associated with either.

www.kirkmanlabs.com

A very helpful supplement for severe constipation is oxy powder colon

cleanse.

http://www.oxypowder.com/?s_kwcid=oxy-powder|1189072508

Nagla

>

> My son darian was diagnosed with autism at age 2 and around 3-4 yrs.

> old he started getting constipated very often. now it's gotten so bad

> he has to be on miralax every other day or he will not go at all!

what

> should i do? will he ever be able to go on his own without miralax?

>

[Guest guest]

Lazy colon is real. My mother-in-law took Miralax under a doctor's care for a year for constipation and she wound up not being able to have a bowel movement on her own. She lost the sensation to go. She ended up having to go to a specialist and had a procedure where the doctor took probes of vary diameters to stimulate her rectum, that has helped a little but not enough so she has to take Milk of Magnesia everyday. She so regrets taking Miralax for so long.

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