Re: POSNA ET Tutorial, SLC

[Guest guest]

I just had my daughter's Developmental Pediatrition call me directly to get info on where she can send a family for help and info on casting! Their 3 year old has progressive scolio. I guess my speeches to all these docs weren't for nothing- one was listening. Too bad it wasn't sooner for this little girl.Sent from my Verizon Wireless BlackBerryDate: Thu, 13 Nov 2008 09:53:35 -0700To: <infantile_scoliosis >Subject: POSNA ET Tutorial, SLC POSNA Early Onset Scoliosis Tutorial Shriners Hospital for Children, SLC Monday, September 8, 2008 Monday, September 8th, ISOP attended the first POSNA sponsored Early Onset Scoliosis Tutorial in SLC. Many topics were discussed including: pulmonary function, casting techniques & indications, insurance issues, new surgical techniques, and other treatment modalities. We also viewed a live demonstration of an EDF cast application. Approximately 20 pediatric, orthopaedic surgeons attended; the majority of them considered to be experts on progressive infantile scoliosis and its treatment. ISOP was pleased to present at this tutorial and took the opportunity to discuss the following: n ISOP’s Accomplishments n ISOP’s Upcoming Activities n Importance and Role of Core Physician Group n Role of ISOP related to Core Physician Group activities n New CPT Code for Early Treatment n Appropriate Frame being critical to correct EDF cast application n Need for standardized Early Treatment Clinical Protocols n Online CAST (Casting as an Alternative for Scoliosis Treatment) support group where parents share information and experiences n Website activity, 1,200 hits/month (14,400/year) n Minimum of 500 families directly informed or advised about Early Treatment n ETP by Min Mehta, M.D. ish Rite Hospital, Dallas, TX. October 2-3, 2009 n How ISOP can support Core Physician Group n Development of Physician Only online forum n Ongoing fundraising with parent participation n Ongoing grant submittals n Global Outreach Program n Pediatric Outreach Program n Partial funding for national/international research studies n Leadership group of surgeons is critical to future of Early Treatment n Must be a well-respected and unified group n More physicians need to be trained n Reputation of Early Treatment could be tarnished if ET protocols are not adhered to. We would like to thank POSNA and all attendees for their participation. The meeting was successful in further validating the need to make the “Early Treatment” Method with EDF casts more available in the U.S. and abroad. This meeting also confirmed to us how much more work must be done to ensure this gentle, corrective treatment method is offered to every child that needs it. Our focus in 2009 will be to organize an effective Pediatrician ET Awareness Campaign. The insurance issue will not be successfully addressed until proper statistics on the incidence of progressive infantile scoliosis can be obtained thus proving the need for a CPT Code change. We believe that the Pediatric community is the key to gathering accurate statistics. Pediatricians trained in ET awareness can diagnose and refer early to ET trained orthopaedic surgeons who will then treat our children early & properly. This teamwork approach provides the orthopaedic community with a substantial amount of patients. Studies with colleagues applying ET can then be collated and American journals will be published. The American Medical Association (AMA) will only consider changing/revising CPT Codes if there has been two American journals published. Currently only one exists. The AMA will not accept Dr. Mehta’s British article “Growth as a corrective force in the early treatment of progressive infantile scoliosis.” Fortunately, the core group of surgeons that have embraced ET over the years are working diligently to submit ET articles for acceptance and publication. As you can imagine, this will take time. Meanwhile, we as a group must focus on educating pediatricians so more children are able to benefit from the ET Method and we can once and for all gather the correct statistics on this condition. We are currently working hard to design and initiate the Pediatrician Awareness Program and will provide you with details upon completion. Sincerely, HRH

[Guest guest]

Good for you Tina! I have been thinking about taking Jack on a field trip to see the Dr. that first diagnosed him with IIS. He thought it would resolve and wanted us to wait at least 6- 12 months before another xray! I want to bring him to show him what ET and a cast looks like and encourage him to change his mind out "just wait and see". ~Krista

Subject: Re: POSNA ET Tutorial, SLCTo: infantile_scoliosis Date: Thursday, November 13, 2008, 6:45 PM

I just had my daughter's Developmental Pediatrition call me directly to get info on where she can send a family for help and info on casting! Their 3 year old has progressive scolio. I guess my speeches to all these docs weren't for nothing- one was listening. Too bad it wasn't sooner for this little girl. Sent from my Verizon Wireless BlackBerry

From: " Hyatt" <heather@infantilesc oliosis.org>Date: Thu, 13 Nov 2008 09:53:35 -0700To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] POSNA ET Tutorial, SLC

POSNA Early Onset Scoliosis Tutorial

Shriners Hospital for Children, SLC

Monday, September 8, 2008

Monday, September 8th, ISOP attended the first POSNA sponsored Early Onset Scoliosis Tutorial in SLC. Many topics were discussed including: pulmonary function, casting techniques & indications, insurance issues, new surgical techniques, and other treatment modalities. We also viewed a live demonstration of an EDF cast application. Approximately 20 pediatric, orthopaedic surgeons attended; the majority of them considered to be experts on progressive infantile scoliosis and its treatment.

ISOP was pleased to present at this tutorial and took the opportunity to discuss the following:

n ISOP’s Accomplishments

n ISOP’s Upcoming Activities

n Importance and Role of Core Physician Group

n Role of ISOP related to Core Physician Group activities

n New CPT Code for Early Treatment

n Appropriate Frame being critical to correct EDF cast application

n Need for standardized Early Treatment Clinical Protocols

n Online CAST (Casting as an Alternative for Scoliosis Treatment) support group where parents share information and experiences

n Website activity, 1,200 hits/month (14,400/year)

n Minimum of 500 families directly informed or advised about Early Treatment

n ETP by Min Mehta, M.D.

ish Rite Hospital, Dallas, TX.

October 2-3, 2009

n How ISOP can support Core Physician Group

n Development of Physician Only online forum

n Ongoing fundraising with parent participation

n Ongoing grant submittals

n Global Outreach Program

n Pediatric Outreach Program

n Partial funding for national/internatio nal research studies

n Leadership group of surgeons is critical to future of Early Treatment

n Must be a well-respected and unified group

n More physicians need to be trained

n Reputation of Early Treatment could be tarnished if ET protocols are not adhered to.

We would like to thank POSNA and all attendees for their participation. The meeting was successful in further validating the need to make the “Early Treatment” Method with EDF casts more available in the U.S. and abroad. This meeting also confirmed to us how much more work must be done to ensure this gentle, corrective treatment method is offered to every child that needs it.

Our focus in 2009 will be to organize an effective Pediatrician ET Awareness Campaign. The insurance issue will not be successfully addressed until proper statistics on the incidence of progressive infantile scoliosis can be obtained thus proving the need for a CPT Code change. We believe that the Pediatric community is the key to gathering accurate statistics. Pediatricians trained in ET awareness can diagnose and refer early to ET trained orthopaedic surgeons who will then treat our children early & properly. This teamwork approach provides the orthopaedic community with a substantial amount of patients. Studies with colleagues applying ET can then be collated and American journals will be published. The American Medical Association (AMA) will only consider changing/revising CPT Codes if there has been two American journals

published. Currently only one exists. The AMA will not accept Dr. Mehta’s British article “Growth as a corrective force in the early treatment of progressive infantile scoliosis.” Fortunately, the core group of surgeons that have embraced ET over the years are working diligently to submit ET articles for acceptance and publication. As you can imagine, this will take time. Meanwhile, we as a group must focus on educating pediatricians so more children are able to benefit from the ET Method and we can once and for all gather the correct statistics on this condition. We are currently working hard to design and initiate the Pediatrician Awareness Program and will provide you with details upon completion.

Sincerely,

HRH

[Guest guest]

I did that to Sophia's first ortho who wanted to brace her. I brought the Mehta DVD, ISOP brochure, Xrays and of course Sophia! He wasn't real open to the idea but let me talk. I found out last week that his partner attended the ET in Dallas! So someone looked at it I guess. It never hurts to try even if it makes them think twice next time they see a kid with IS. Good luck!Sent from my Verizon Wireless BlackBerryDate: Thu, 13 Nov 2008 12:51:10 -0800 (PST)To: <infantile_scoliosis >Subject: Re: POSNA ET Tutorial, SLC Good for you Tina! I have been thinking about taking Jack on a field trip to see the Dr. that first diagnosed him with IIS. He thought it would resolve and wanted us to wait at least 6- 12 months before another xray! I want to bring him to show him what ET and a cast looks like and encourage him to change his mind out "just wait and see". ~KristaFrom: tinamorris11comcast (DOT) net <tinamorris11comcast (DOT) net>Subject: Re: POSNA ET Tutorial, SLCTo: infantile_scoliosis Date: Thursday, November 13, 2008, 6:45 PMI just had my daughter's Developmental Pediatrition call me directly to get info on where she can send a family for help and info on casting! Their 3 year old has progressive scolio. I guess my speeches to all these docs weren't for nothing- one was listening. Too bad it wasn't sooner for this little girl. Sent from my Verizon Wireless BlackBerryFrom: " Hyatt" <heather@infantilesc oliosis.org>Date: Thu, 13 Nov 2008 09:53:35 -0700To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] POSNA ET Tutorial, SLCPOSNA Early Onset Scoliosis TutorialShriners Hospital for Children, SLCMonday, September 8, 2008 Monday, September 8th, ISOP attended the first POSNA sponsored Early Onset Scoliosis Tutorial in SLC. Many topics were discussed including: pulmonary function, casting techniques & indications, insurance issues, new surgical techniques, and other treatment modalities. We also viewed a live demonstration of an EDF cast application. Approximately 20 pediatric, orthopaedic surgeons attended; the majority of them considered to be experts on progressive infantile scoliosis and its treatment. ISOP was pleased to present at this tutorial and took the opportunity to discuss the following:n ISOP’s Accomplishmentsn ISOP’s Upcoming Activitiesn Importance and Role of Core Physician Groupn Role of ISOP related to Core Physician Group activitiesn New CPT Code for Early Treatmentn Appropriate Frame being critical to correct EDF cast applicationn Need for standardized Early Treatment Clinical Protocolsn Online CAST (Casting as an Alternative for Scoliosis Treatment) support group where parents share information and experiencesn Website activity, 1,200 hits/month (14,400/year)n Minimum of 500 families directly informed or advised about Early Treatmentn ETP by Min Mehta, M.D. ish Rite Hospital, Dallas, TX. October 2-3, 2009n How ISOP can support Core Physician Groupn Development of Physician Only online forumn Ongoing fundraising with parent participation n Ongoing grant submittalsn Global Outreach Programn Pediatric Outreach Programn Partial funding for national/internatio nal research studiesn Leadership group of surgeons is critical to future of Early Treatmentn Must be a well-respected and unified groupn More physicians need to be trainedn Reputation of Early Treatment could be tarnished if ET protocols are not adhered to. We would like to thank POSNA and all attendees for their participation. The meeting was successful in further validating the need to make the “Early Treatment†Method with EDF casts more available in the U.S. and abroad. This meeting also confirmed to us how much more work must be done to ensure this gentle, corrective treatment method is offered to every child that needs it. Our focus in 2009 will be to organize an effective Pediatrician ET Awareness Campaign. The insurance issue will not be successfully addressed until proper statistics on the incidence of progressive infantile scoliosis can be obtained thus proving the need for a CPT Code change. We believe that the Pediatric community is the key to gathering accurate statistics. Pediatricians trained in ET awareness can diagnose and refer early to ET trained orthopaedic surgeons who will then treat our children early & properly. This teamwork approach provides the orthopaedic community with a substantial amount of patients. Studies with colleagues applying ET can then be collated and American journals will be published. The American Medical Association (AMA) will only consider changing/revising CPT Codes if there has been two American journals published. Currently only one exists. The AMA will not accept Dr. Mehta’s British article “Growth as a corrective force in the early treatment of progressive infantile scoliosis.†Fortunately, the core group of surgeons that have embraced ET over the years are working diligently to submit ET articles for acceptance and publication. As you can imagine, this will take time. Meanwhile, we as a group must focus on educating pediatricians so more children are able to benefit from the ET Method and we can once and for all gather the correct statistics on this condition. We are currently working hard to design and initiate the Pediatrician Awareness Program and will provide you with details upon completion. Sincerely,HRH

[Guest guest]

I agree.... Good for you that you kept talking and someone was helped!!!!! Steph

Subject: Re: POSNA ET Tutorial, SLCTo: infantile_scoliosis Date: Thursday, November 13, 2008, 6:45 PM

I just had my daughter's Developmental Pediatrition call me directly to get info on where she can send a family for help and info on casting! Their 3 year old has progressive scolio. I guess my speeches to all these docs weren't for nothing- one was listening. Too bad it wasn't sooner for this little girl.

Sent from my Verizon Wireless BlackBerry

From: " Hyatt" <heather@infantilesc oliosis.org>Date: Thu, 13 Nov 2008 09:53:35 -0700To: <infantile_scoliosis @yahoogroups. com>Subject: [infantile_scoliosi s] POSNA ET Tutorial, SLC

POSNA Early Onset Scoliosis Tutorial

Shriners Hospital for Children, SLC

Monday, September 8, 2008

Monday, September 8th, ISOP attended the first POSNA sponsored Early Onset Scoliosis Tutorial in SLC. Many topics were discussed including: pulmonary function, casting techniques & indications, insurance issues, new surgical techniques, and other treatment modalities. We also viewed a live demonstration of an EDF cast application. Approximately 20 pediatric, orthopaedic surgeons attended; the majority of them considered to be experts on progressive infantile scoliosis and its treatment.

ISOP was pleased to present at this tutorial and took the opportunity to discuss the following:

n ISOP’s Accomplishments

n ISOP’s Upcoming Activities

n Importance and Role of Core Physician Group

n Role of ISOP related to Core Physician Group activities

n New CPT Code for Early Treatment

n Appropriate Frame being critical to correct EDF cast application

n Need for standardized Early Treatment Clinical Protocols

n Online CAST (Casting as an Alternative for Scoliosis Treatment) support group where parents share information and experiences

n Website activity, 1,200 hits/month (14,400/year)

n Minimum of 500 families directly informed or advised about Early Treatment

n ETP by Min Mehta, M.D.

ish Rite Hospital, Dallas, TX.

October 2-3, 2009

n How ISOP can support Core Physician Group

n Development of Physician Only online forum

n Ongoing fundraising with parent participation

n Ongoing grant submittals

n Global Outreach Program

n Pediatric Outreach Program

n Partial funding for national/internatio nal research studies

n Leadership group of surgeons is critical to future of Early Treatment

n Must be a well-respected and unified group

n More physicians need to be trained

n Reputation of Early Treatment could be tarnished if ET protocols are not adhered to.

We would like to thank POSNA and all attendees for their participation. The meeting was successful in further validating the need to make the “Early Treatment” Method with EDF casts more available in the U.S. and abroad. This meeting also confirmed to us how much more work must be done to ensure this gentle, corrective treatment method is offered to every child that needs it.

Our focus in 2009 will be to organize an effective Pediatrician ET Awareness Campaign. The insurance issue will not be successfully addressed until proper statistics on the incidence of progressive infantile scoliosis can be obtained thus proving the need for a CPT Code change. We believe that the Pediatric community is the key to gathering accurate statistics. Pediatricians trained in ET awareness can diagnose and refer early to ET trained orthopaedic surgeons who will then treat our children early & properly. This teamwork approach provides the orthopaedic community with a substantial amount of patients. Studies with colleagues applying ET can then be collated and American journals will be published. The American Medical Association (AMA) will only consider changing/revising CPT Codes if there has been two American journals

published. Currently only one exists. The AMA will not accept Dr. Mehta’s British article “Growth as a corrective force in the early treatment of progressive infantile scoliosis.” Fortunately, the core group of surgeons that have embraced ET over the years are working diligently to submit ET articles for acceptance and publication. As you can imagine, this will take time. Meanwhile, we as a group must focus on educating pediatricians so more children are able to benefit from the ET Method and we can once and for all gather the correct statistics on this condition. We are currently working hard to design and initiate the Pediatrician Awareness Program and will provide you with details upon completion.

Sincerely,

HRH