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Re: Etiquette

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,

I feel you and Cat have addressed a good point. We (including myself) all

need to follow etiquette better. I know I personally find myself skimming

e-mails and just deleting e-mails when I notice the topic has changed off the

subject line. I want to be there to support others having Still's related

problems, but it is getting too hard to tell when the posts are Still's related.

mellymelt wrote:

I just wanted everyone to know that I ...seen more off topic emails at

the group than I can read, filthy launquage (NO matter how it's typed!!) and

disregard for our President Cat's suggestions for this groups ediquette than in

the seven years I've been a member of this forum.

Please be advised that MANY NEW MEMBERS here need laughter, help and support but

many, many of our topics and conversations are best left private and labeled off

topic or the topics changed as she has requested over and over!!!!!!!!!!

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Hey guys,

I am new, I haven't seen anything that I would find offensive. I think this is

a wonderful,site for people to reflect, read or vent whatever may be bothereing

them at the time with people who have had similar life experiences. I know and

value that this is a great source of information to all of us with Stills as you

all have a great knowledge of the great dragon we/you all live with. But please

keep in mind not all people have the same values/skills/manners as everybody

else and I think patience is a must, considering all that is said and done

especially to new members. Some new members may not conform right away to the

way things have always been done here and since I am new I have no right to

judge anybody.

My point is this is a great place for all of us with this dreaded conditon to

go and be ourselves and escape for a little while, so I would hope you would

allow people to be who they are, but I am respectful that there are rules and

policies to follow, that is just life.

thank you for listening, I am not sure all will agree, but that is what makes

this world great...

Mike in Canada..

wrote:

,

I feel you and Cat have addressed a good point. We (including myself) all need

to follow etiquette better. I know I personally find myself skimming e-mails and

just deleting e-mails when I notice the topic has changed off the subject line.

I want to be there to support others having Still's related problems, but it is

getting too hard to tell when the posts are Still's related.

mellymelt wrote:

I just wanted everyone to know that I ...seen more off topic emails at the group

than I can read, filthy launquage (NO matter how it's typed!!) and disregard for

our President Cat's suggestions for this groups ediquette than in the seven

years I've been a member of this forum.

Please be advised that MANY NEW MEMBERS here need laughter, help and support but

many, many of our topics and conversations are best left private and labeled off

topic or the topics changed as she has requested over and over!!!!!!!!!!

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Share on other sites

Hi all

just my thoughts here on this as I know I am one that dose not fallow the rules

100% but then again I never have here or any were LOL

To me every thing we bring up is stills related . It all effects us in so many

different ways and what works for one may not work for any one other but then

again it may. I also know that both physical and emotional stress effects us or

can and not always in a good way . having support and new ideas has helped me in

many ways and times . Going threw my divorce was not stills related but in that

it was done over my becoming ill but that was the only way . thanks to all here

at the time and also some of there life experiences that were the same and not

the same helped me in many way and stills dose to this day.

but hey I am a redneck what do I know any way .O ya I know that almost every

thing in life is stills related to my self and it can change how I feel

emotionally and physically so for my how can any thing we talk about be not

stills related from the meds and research to the laughter we all enjoy or the

emotional support we give each other be it stated here or only in our thoughts .

By the way I do not always read every thing and some times when i am over come

by the numbers of e mails i just delete them. I have regretted this a few times

but normally i can pick up right back in with later post .

by the way you are all my family and every thing that effects my family effects

me also good and bad

okay off my soap box as it is time to use the soap for more then standing on as

it is that time of year for my yearly bath

see ya glad I got to know ya all

the redneck

Marty

Calling an illegal alien an " undocumented immigrant " is like calling a drug

dealer an " unlicensed pharmacist. "

" Those who hammer their guns into plows will plow for those who do not. "

~ Jefferson

Stills ; An illness I know to well!

To learn about Stills http://www.stillsdisease.org/stills_info

To donate http://www.stillsdisease.org/donations

Re: Etiquette

Hey guys,

I am new, I haven't seen anything that I would find offensive. I think this is a

wonderful,site for people to reflect, read or vent whatever may be bothereing

them at the time with people who have had similar life experiences. I know and

value that this is a great source of information to all of us with Stills as you

all have a great knowledge of the great dragon we/you all live with. But please

keep in mind not all people have the same values/skills/ manners as everybody

else and I think patience is a must, considering all that is said and done

especially to new members. Some new members may not conform right away to the

way things have always been done here and since I am new I have no right to

judge anybody.

My point is this is a great place for all of us with this dreaded conditon to go

and be ourselves and escape for a little while, so I would hope you would allow

people to be who they are, but I am respectful that there are rules and policies

to follow, that is just life.

thank you for listening, I am not sure all will agree, but that is what makes

this world great...

Mike in Canada..

<jax4christyahoo (DOT) com> wrote:

,

I feel you and Cat have addressed a good point. We (including myself) all need

to follow etiquette better. I know I personally find myself skimming e-mails and

just deleting e-mails when I notice the topic has changed off the subject line.

I want to be there to support others having Still's related problems, but it is

getting too hard to tell when the posts are Still's related.

mellymelt <mellymeltnetzero (DOT) net> wrote:

I just wanted everyone to know that I ...seen more off topic emails at the group

than I can read, filthy launquage (NO matter how it's typed!!) and disregard for

our President Cat's suggestions for this groups ediquette than in the seven

years I've been a member of this forum.

Please be advised that MANY NEW MEMBERS here need laughter, help and support but

many, many of our topics and conversations are best left private and labeled off

topic or the topics changed as she has requested over and over!!!!!!!! !!

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