You are all making a difference.

[Guest guest]

I just wanted to let you all know that it has helped me so much get

adjusted to my daughters' diagnosis of Stills. Because it is so rare

it is difficult to understand it and know one knows what in the world

it is. I have not written very much after was diagnosed and

started Enbril a few weeks ago but I read most everything that is

posted and it really helps me to understand the struggles. I know so

many of you are hurting and waiting for this " flair " to end and

Stills to go into remission. (That is where we are as well) As you

wait I wanted you to know that you are helping others..

is not on this site-- as she is just learning to deal herself.

Later I think she will get more proactive. Now she doesn't want to

talk about it.

Enbrel, however, doesn't seem to be working and today we went back to

Dr. Cush. She said after two weeks on it she is twice as bad as she

was but he is a little perplexed. He gave her a steroid shot to calm

down all the inflamation. For all whose out there with swollen feet --

she has got some good ones herself. He switched her to Kineret and

Methotrexate and Folate (don't know what that is) He is keeping her

on Celebrex and Plazquenil. My word, we are looking like a pharmacy.

I know you can relate.

While waiting at Dr. Cush's office there was a lady that was waiting

as well who has had Stills for years. It has been in remission for a

long time about 15 years and something has set it off somewhat. She

was encouraging though as she kept telling us to hang in there.

I am going to keep you all in my prayers. I hope you have a great day

and know that you have made a difference.

Lea