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noelle-Rochester-back in cast #5

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Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!!!! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

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This is wonderful news! I was waiting anxiously to hear how it all went. I am so glad Noelle is doing so well. I know that it will make the holidays even merrier and high hopes for 2009!!

Yeah!

Jill

Subject: noelle-Rochester-back in cast #5To: infantile_scoliosis Date: Wednesday, December 17, 2008, 7:21 PM

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!! !! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

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Good for Noelle!! So happy for you guys.Hope you and your family have a Merry Christmas!TashaMommy of twin boys- and 3 1/2 years oldFort Worth, Texas is currently in a brace at night.Casting 14 months.Subject: noelle-Rochester-back in cast #5To: infantile_scoliosis Date: Wednesday, December 17, 2008, 6:21 PM

Hello everyone!

We just returned from Noelle's 5th cast from Rochester several hours ago.... She is doing very well! Both supine and standing x-rays were taken at her office visit. Our casting doc reviewed the standing x-ray with us as opposed to the supine. Her curve is now at 16 degrees with a minimal compensatory curve. There has been more improvement in the spinal rotation and symmetry of her rib cage. Her spine is much closer to the midline in comparison to the x-ray taken at our last visit. you can't even detect a rib hump any longer from her front view. I can see it still a bit from the back, but overall her back and her skin look fantastic!!! !! While I don't have measurements of her supine x-ray yet, to my eye, it has to be about 12 degrees.... maybe less! The OR timed everything perfectly with minimal distress to Noelle.... The child specialist came in with toys and played

with us until we left for the OR and the nurses got me just as they woke her so there was minimal crying/stress to Noelle..... Which makes it so much easier for us!!!! Our doc also asked permission to enroll Noelle in a long-term study, which we agreed to enthusiastically in hopes that it will help children with IS and their caregivers in the future..... We are so pleased with her progress.... It's an amazing gift, especially this time of year!!! Thanks for letting me share! Steph

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