Re: New Dr

[Guest guest]

well i have osteo, fibro and a form of ra kathy in il

[Guest guest]

Sounds like it was a good appointment, Iris. I'm so happy to hear that.

If you go to a's web site (listed at the bottom of each email), you will

find some good information on sulfasalazine.

[ ] New Dr

Hi everyone. I just got home about an hour or so ago

after donating at least a gallon of blood (it took

four times) and having x-rays. The new dr took a lot

of time to read my history and ask questions. He

seems to think that the osteo and FM are secondary and

that I have not been diagnosed or treated correctly.

He was very concerned about all of the inflammation

and has scheduled a bone scan. He feels that

seronegative spondyloarthropathies are the cause and

wants me to begin taking Sulfasalazine ( " Azulfidine " ).

The bone scan is next Tuesday and my followup appt is

in 2 weeks.

Please send any info you have on this medicine as I am

not familar with it. Have any of you ever taken it

and what kind of side-effects have you had?

We spoke quite a bit about the difficulties I have had

while trying to continue being a Graphic Artist. I

wanted to make sure that this was in my chart early

on. The way it is going now, I will have to find

another career.

Thank you all. Hugs, Hugs, and more Hugs. Iris

[Guest guest]

Hi Iris,

That's really interesting that the doctor doesn't think you were

diagnosed correctly and that your FM is secondary. I have had bone

scans and hopefully it will provide some answers.

I took Azulfidine when I was first diagnosed with RA. I had no real

adverse side effects, just mild stomach pains from time-to-time, but

the drug wasn't effective and my rheumy took me off it. It does take

a while to take affect though, ususally 6-12 weeks. Plus, it can turn

your urine orange. It also rarely affects the liver which is nice.

Best of luck to you. Know you're in my thoughts and prayers.

Al in IL

[Guest guest]

Hi Iris,

I read where you have FM and Osteo too. Does most people with Rheumatoid

have it. The Rheumatologist told me today that I have 3 things going on.

FM, Osteo, and RA. I'm just wondering if that is common place.

Judy

> Hi everyone. I just got home about an hour or so ago

> after donating at least a gallon of blood (it took

> four times) and having x-rays. The new dr took a lot

> of time to read my history and ask questions. He

> seems to think that the osteo and FM are secondary and

> that I have not been diagnosed or treated correctly.

> He was very concerned about all of the inflammation

> and has scheduled a bone scan. He feels that

> seronegative spondyloarthropathies are the cause and

> wants me to begin taking Sulfasalazine ( " Azulfidine " ).

> The bone scan is next Tuesday and my followup appt is

> in 2 weeks.

>

> Please send any info you have on this medicine as I am

> not familar with it. Have any of you ever taken it

> and what kind of side-effects have you had?

>

> We spoke quite a bit about the difficulties I have had

> while trying to continue being a Graphic Artist. I

> wanted to make sure that this was in my chart early

> on. The way it is going now, I will have to find

> another career.

>

> Thank you all. Hugs, Hugs, and more Hugs. Iris

>

> __________________________________________________

>

[Guest guest]

Dear , Thanks for your reply. I've not gone to

the website for medication info before and I am glad

that you reminded me.

I am trying to figure out why he would prescribe this

medication that is not commonly used in the U.S.

Could it be because it will also have an effect upon

my IBS or maybe would help with the micoplasma that

shows up in my tests. The only thing I am concerned

about is the cautions about Hepatitis. I contracted

Hepatitis B while I was in the hospital (hospitals are

full of germs). Thank you. Iris

--- <Matsumura_Clan@...> wrote:

> Sounds like it was a good appointment, Iris. I'm so

> happy to hear that.

>

> If you go to a's web site (listed at the bottom

> of each email), you will find some good information

> on sulfasalazine.

>

>

>

__________________________________________________

[Guest guest]

Hi, I don't know the answer to that but I do know

that some of our members have all of them. I was

surprised to hear him say that the osteo was not what

was causing all of this joint pain. What is going on

now is different from the way it has been in the past.

It is like a deep cramping pain deep inside my bones.

Does this sound familar? Iris

--- J-J-W@... wrote:

> Hi Iris,

>

> I read where you have FM and Osteo too. Does most

> people with Rheumatoid

> have it. The Rheumatologist told me today that I

> have 3 things going on.

> FM, Osteo, and RA. I'm just wondering if that is

> common place.

>

> Judy

> > Hi everyone. I just got home about an hour or so

> ago

> > after donating at least a gallon of blood (it took

> > four times) and having x-rays. The new dr took a

> lot

> > of time to read my history and ask questions. He

> > seems to think that the osteo and FM are secondary

> and

> > that I have not been diagnosed or treated

> correctly.

> > He was very concerned about all of the

> inflammation

> > and has scheduled a bone scan. He feels that

> > seronegative spondyloarthropathies are the cause

> and

> > wants me to begin taking Sulfasalazine

> ( " Azulfidine " ).

> > The bone scan is next Tuesday and my followup appt

> is

> > in 2 weeks.

> >

> > Please send any info you have on this medicine as

> I am

> > not familar with it. Have any of you ever taken

> it

> > and what kind of side-effects have you had?

> >

> > We spoke quite a bit about the difficulties I have

> had

> > while trying to continue being a Graphic Artist.

> I

> > wanted to make sure that this was in my chart

> early

> > on. The way it is going now, I will have to find

> > another career.

> >

> > Thank you all. Hugs, Hugs, and more Hugs. Iris

> >

> > __________________________________________________

> >

[Guest guest]

Hi Iris,

I didn't experience any weight loss. In agree about the wait. For me,

it definitely wasn't worth it. Hopefully for you it will be.

I don't know what the contrast is. I have had two bone scans and too

Gallium scans but wasn't told what was being injected in me. The

Gallium was interesting because it ends up in your stomach and I had

to take a laxative to expel it. Sorry for being so personal here.

I hope that I don't have any form of heart disease either. That would

be bad in light of what's already going on. But don't we all say

that?

Thank you so much for your concern Iris. It really means a lot to me.

I am so glad we are here for each other.

Take care,

Alan

[Guest guest]

Hi Iris,

Yes, I get those deep cramping pains. Had them today and had to lay

down. I fell asleep and didn't get up until 7 to cook supper. Right now

I'm not on any medicine. I have a terrible time with drugs. When I go

back we are going to discuss which drug to use and then go from there. I

can't take Tylenol because of a liver problem and I can't take Aspirin,

Ibuprofen (Sp?), etc. because of the Barrett's Esophagus. It's rough

right now.

Judy

> Hi, I don't know the answer to that but I do know

> that some of our members have all of them. I was

> surprised to hear him say that the osteo was not what

> was causing all of this joint pain. What is going on

> now is different from the way it has been in the past.

> It is like a deep cramping pain deep inside my bones.

> Does this sound familar? Iris

________________________________________________________________

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[Guest guest]

Dear Judy,

I am so sorry that you are having a rough time. What

is Barretts? I have only been on pain medication for

the last 4 years and everything has been progressing.

I hope you will get to see the dr and he will find

something that will work for you. Sweet dreams. Iris

--- J-J-W@... wrote:

> Hi Iris,

>

> Yes, I get those deep cramping pains. Had them

> today and had to lay

> down. I fell asleep and didn't get up until 7 to

> cook supper. Right now

> I'm not on any medicine. I have a terrible time

> with drugs. When I go

> back we are going to discuss which drug to use and

> then go from there. I

> can't take Tylenol because of a liver problem and I

> can't take Aspirin,

> Ibuprofen (Sp?), etc. because of the Barrett's

> Esophagus. It's rough

> right now.

>

> Judy

>

>

> > Hi, I don't know the answer to that but I do know

> > that some of our members have all of them. I was

> > surprised to hear him say that the osteo was not

> what

> > was causing all of this joint pain. What is going

> on

> > now is different from the way it has been in the

> past.

> > It is like a deep cramping pain deep inside my

> bones.

> > Does this sound familar? Iris

>

>

________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for

> less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

>

>

__________________________________________________

[Guest guest]

Barrett's is a cluster of red patches on the esophagus that is a

precursor to cancer if not treated properly. Don't want to mess around

with that!

Judy - FL

> Dear Judy,

> I am so sorry that you are having a rough time. What

> is Barretts? I have only been on pain medication for

> the last 4 years and everything has been progressing.

> I hope you will get to see the dr and he will find

> something that will work for you. Sweet dreams. Iris

>

> --- J-J-W@... wrote:

> > Hi Iris,

> >

> > Yes, I get those deep cramping pains. Had them

> > today and had to lay

> > down. I fell asleep and didn't get up until 7 to

> > cook supper. Right now

> > I'm not on any medicine. I have a terrible time

> > with drugs. When I go

> > back we are going to discuss which drug to use and

> > then go from there. I

> > can't take Tylenol because of a liver problem and I

> > can't take Aspirin,

> > Ibuprofen (Sp?), etc. because of the Barrett's

> > Esophagus. It's rough

> > right now.

> >

> > Judy

> >

> >

> > > Hi, I don't know the answer to that but I do know

> > > that some of our members have all of them. I was

> > > surprised to hear him say that the osteo was not

> > what

> > > was causing all of this joint pain. What is going

> > on

> > > now is different from the way it has been in the

> > past.

> > > It is like a deep cramping pain deep inside my

> > bones.

> > > Does this sound familar? Iris

> >

> >

> ________________________________________________________________

> > GET INTERNET ACCESS FROM JUNO!

> > Juno offers FREE or PREMIUM Internet access for

> > less!

> > Join Juno today! For your FREE software, visit:

> > http://dl.www.juno.com/get/web/.

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Iris, your new Dr. sounds like he's really trying to help. That's great

news! I've never taken sulfasalazine, but I know there are others in the

group who have and can let you know more about it.

Love and hugs,

Carol

[ ] New Dr

Hi everyone. I just got home about an hour or so ago

after donating at least a gallon of blood (it took

four times) and having x-rays. The new dr took a lot

of time to read my history and ask questions. He

seems to think that the osteo and FM are secondary and

that I have not been diagnosed or treated correctly.

He was very concerned about all of the inflammation

and has scheduled a bone scan. He feels that

seronegative spondyloarthropathies are the cause and

wants me to begin taking Sulfasalazine ( " Azulfidine " ).

The bone scan is next Tuesday and my followup appt is

in 2 weeks.

Please send any info you have on this medicine as I am

not familar with it. Have any of you ever taken it

and what kind of side-effects have you had?

We spoke quite a bit about the difficulties I have had

while trying to continue being a Graphic Artist. I

wanted to make sure that this was in my chart early

on. The way it is going now, I will have to find

another career.

Thank you all. Hugs, Hugs, and more Hugs. Iris

__________________________________________________

[Guest guest]

What did your new doctor use for thyroid and natural hormone replacements?

Thanks,

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Home.

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000000001)

[Guest guest]

she signed off on prescriptions from the compounding phamacy (Bellvue) so Ill be

getting bio-identical hormones and armour thyroid. Kathy

[Guest guest]

I think you were going to Mirkin Assoc in MD - not sure. They weren't

willing to help with hormonal replacement? I guess I had hoped that

place would be more progressive in all areas. Too bad as it helps some

people. It helped me. Congratulations on finding this new doctor.

Amy

Kathy wrote:

>

> Hi all, I went to try a new DR who is close by (in town) and she said

> she would be more than happy to write my prescriptions for

> minocycline!!!!! YEAH. I guess I wont have to drive and hour and a

> half to DC anymore. She also agreed to try me on thryroid and natural

> hormone replacements.... yeah again.... Kathy

>

>

[Guest guest]

well I just spoke to my dentist, Ive had severe tooth pain for years and no one

could stop it, but since I started on AP my teeth are WAY better. no root

canals or anything, just fillings. Kathy

[Guest guest]

Thank you for your answer. I don't want to compromise the AP if I need to get a

root canal. Yet I don't want to wait while the RA gets worse! I hope to hear

from more people about their experiences.

Thank you Kathy and everyone who is able to respond.

rheumatic Re: new Dr

well I just spoke to my dentist, Ive had severe tooth pain for years and no one

could stop it, but since I started on AP my teeth are WAY better. no root canals

or anything, just fillings. Kathy