Re: New & Looking for Help

[Guest guest]

Hi Robyn, welcome. We have wonderful moderators that have so much

knowledge and information. I hope they can point you in the right

direction.

Hugs of Hope....

Tess, NW Oregon, USA

[Guest guest]

Hi Robyn,

Welcome. I am sure someone can provide the information you seek.

There are extremely knowledgeable folks in our group.

Al in IL (Illinois)

[Guest guest]

Hi Robyn and Welcome!

I am 48 and have had RA for 3 years now - am taking

Methotrexate, Arava and Bextra. I don't know of any

specific centers for rheumatology - perhaps or

a can help you out with this one. This is a great

group of people with an abundance of knowledge and

compassion - we have all experienced immune system

diseases and understand where you are coming from.

Kathe in CA

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[Guest guest]

Hi Tess,

I have a little 5 y.o. called Tess - thanks for responding. Can you tell me

if there is a so called 'world renowned expert' on R.A. who is spoken of on

this list.

thank Rob.

Re: [ ] New & Looking for Help

> Hi Robyn, welcome. We have wonderful moderators that have so much

> knowledge and information. I hope they can point you in the right

> direction.

>

> Hugs of Hope....

>

> Tess, NW Oregon, USA

>

>

>

>

[Guest guest]

Hi Robyn...I'm hoping a or - our wonderful moderators - can

point you to some highly thought of rheumatologists or rheummatology

clinics. I'm in Oregon, and my experience is quite limited to local

doctors, though I am fortunate because they have been aggressive in

treating me.

I'm sorry this has been such a challenge for you, Robyn. I have 4

children, though all grown now, and I was first diagnosed with

" sero-negative lupus " and " mixed-connective tissue disease " just about

the same time my last three children came along (my kids are all

adopted.) At times I felt so guilty because I was so dreadfully

tired...but I did not understand the impact of these illnesses at that

time. And raising children, under the best of circumstances is a

tiring, though wonderful, venture. I hope that you will be kind &

gentle with yourself.

With Hope...

Tess

[Guest guest]

Welcome, Robyn! Sorry to hear that you are feeling frustrated with your

current rheumatologist and treatment.

Here are a few links to get you started in your search for a new

rheumatologist:

http://www.rheumatology.org.au/open/links.htm

http://www.usyd.edu.au/su/sutton/rheum.htm

http://www.archi.net.au/links/links.html

http://www.ctonline.com.au/editorialboard.asp

[ ] New & Looking for Help

> Hi,

> My name is Robyn (35 yo) I am posting from Melbourne, Australia and

have severe problems with RA since I was 15 yo. I am taking

Methotrexate and am going thru problems with my Rhuematologist who isn't

as pro-active as I would like. I am trying to take control of this

illness before it forces me to stop working and caring for my children

but without success. I am prepared to travel anywhere in the world to

get help but don't know where to start. Can anyone help me with the

best Centres/Doctors to start with??

> Any help would be gratefully appreciated.

> Thank you, Robyn.

[Guest guest]

Dear Robin; Hello and Welcome. You are in good hands

with all of the wonderful members on this site. I

left the rheumy over 5 years ago and hadn't seen one

until today. Don't make that mistake because

irreversible damage can be done. If your dr is not

helping you, find one that will.

--- <Matsumura_Clan@...> wrote:

> Welcome, Robyn! Sorry to hear that you are feeling

> frustrated with your

> current rheumatologist and treatment.

>

> Here are a few links to get you started in your

> search for a new

> rheumatologist:

>

> http://www.rheumatology.org.au/open/links.htm

> http://www.usyd.edu.au/su/sutton/rheum.htm

> http://www.archi.net.au/links/links.html

> http://www.ctonline.com.au/editorialboard.asp

>

>

>

>

>

> [ ] New & Looking for Help

>

>

> > Hi,

> > My name is Robyn (35 yo) I am posting from

> Melbourne, Australia and

> have severe problems with RA since I was 15 yo. I

> am taking

> Methotrexate and am going thru problems with my

> Rhuematologist who isn't

> as pro-active as I would like. I am trying to take

> control of this

> illness before it forces me to stop working and

> caring for my children

> but without success. I am prepared to travel

> anywhere in the world to

> get help but don't know where to start. Can anyone

> help me with the

> best Centres/Doctors to start with??

> > Any help would be gratefully appreciated.

> > Thank you, Robyn.

>

>

>

>

>

>

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