Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Hi Friends! It really is hard to fully understand the systemic nature of RA, or most other autoimmune disorders, unless you are unfortunate enough to experience it firsthand. I think people assume that just your hands hurt with RA, not most all of the joints in your body at times. And they certainly don't understand the fatigue and depression that are commonplace. I've been having a great time with my family here, and my pain level with the Remicade is still far lower than it has been. I'm so happy about that. I hope everyone is having a wonderful Sunday! Love and hugs, Carol Re: [ ] Al & All: That's what is so great about this group - when I need someone to really understand, I can come to you guys. My husband and kids try to understand but at times they still give me that skeptical look when I ask them to help me with something as simple as moving a cooking pot full of pasta from the range to the sink to drain (a whole three steps away)! Or when I say I am exhausted and haven't really done anything all day. I think at times they feel that I am in some way " milking " this RA biz - don't I wish I could still do all those things by myself. They try, but, like it has been said, you can't know until you have this type of disease just what is truly involved in it. Thanks for being there guys! Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Carol: Great news about the Remicade! It must be especially nice to be feeling better while your family is visiting. Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Hi Kathe, It certainly is a gift to feel so good with my family in town. They were supposed to come two weeks ago, and I was just hurting too much to have them. My husband suggested postponing it, with the hope I'd be approved for the Remicade and have an infusion under my belt. I'm so glad I waited! I hope you're having a great weekend. Love and hugs, Carol RE: [ ] Hi! / RA firsthand Carol: Great news about the Remicade! It must be especially nice to be feeling better while your family is visiting. Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Hi Carol, How true. That is so great about the remicade. I am glad you are having fun with your family. Have a great week. Al in IL > Hi Friends! > > It really is hard to fully understand the systemic nature of RA, or most > other autoimmune disorders, unless you are unfortunate enough to experience > it firsthand. I think people assume that just your hands hurt with RA, not > most all of the joints in your body at times. And they certainly don't > understand the fatigue and depression that are commonplace. > > I've been having a great time with my family here, and my pain level with > the Remicade is still far lower than it has been. I'm so happy about that. > > I hope everyone is having a wonderful Sunday! > > Love and hugs, > Carol > > > Re: [ ] > > Al & All: That's what is so great about this group - > when I need someone to really understand, I can come > to you guys. My husband and kids try to understand > but at times they still give me that skeptical look > when I ask them to help me with something as simple as > moving a cooking pot full of pasta from the range to > the sink to drain (a whole three steps away)! Or when > I say I am exhausted and haven't really done anything > all day. I think at times they feel that I am in some > way " milking " this RA biz - don't I wish I could still > do all those things by myself. They try, but, like it > has been said, you can't know until you have this type > of disease just what is truly involved in it. Thanks > for being there guys! > > Kathe in CA > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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