RE: Re: >> To my friend Mike and question about Methadone?

[Guest guest]

Hi Mike,

It's nice to know I am not the only one. I do question it for valid

reasons. My latest rheumatologist first said I did have Still's Disease

but then stated in my last visit that she didn't know if I did. The

symptoms for me are quite odd.

I did have the daily flu symptoms starting at about 1PM and just getting

worse as the day went.

My WBC was very high, and my sed rate was something really high and has

never returned completely to normal.

I have a LOT of pain in BUT only from my waist down and mostly in my

muscles. It feels like I have over exercised them.

I have had NO rash.

I have had NO swollen joints.

My flares thus far always seem to fall between April and June/July

Prednisone and Methotrexate did alleviate the fevers and lower my blood

tests but NEVER addressed any of my muscle or joint pain.

So even my rheumatologist is skeptical.

I just weaned myself off Ambien by switching to Valium and tapering till I

was off. Still not sleeping normal but it is getting better.

Am now seeing a chronic pain specialist and they want me to switch over from

Norco to Methadone but I have to admit due to past problems with medications

I am frankly scared to even try it. I was supposed to start it last night

and couldn't bring myself to do it. I am up to 6 Norco a day and it

doesn't control the pain. I am trying to get up the nerve to take it.

They tried Morphine tablets and it worked great but after 3 days I was in

the ER with completely blocked bowels. The stomach pain was so bad I was

dripping sweat in the ER on a freezing cold night. I never knew it could

hurt so bad. I am hoping I can get up the nerve to cross over to the

Methadone then taper off of it but I have to admit right now I am too scared

to do it.

Is anyone here on Methadone?

Darv

http://www.liquidmoonlight.com

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of Mike Wellman

Sent: Friday, January 18, 2008 7:52 AM

To: Stillsdisease

Subject: RE: Re: What about aromatics?

Darv,

I question my diagnoisi everyday. This so called disease of exclusion,

baffles me.Even my Rheummy says it was a 99% diagnosis. I had most of the

symtoms when I crashed, fevers inflamed liver, spleen, blood counts all

wacky. But mine is a little different than a lot of what I hear from you

guys. I had the flares, evening fevers for about 6 weeks after i left

hospital, I lost 60 ponds, gained most of it back now. I was on pred for

only about 3 weeks once I left hospital and then was weened off with no side

effects. My life has returned to 99% normal besides aches and pains in my

joints,,but liveable. I only take Naproxen when needed. All this had me

questioning my diagnosis for a very long time, although I have come to

accept this is what I have, it's just hard listening to how a lot of you

have to suffer on a daily basis and yetI am able to function quite normally.

I do coaunt my blessings on this. I guess i will not know unless I flare

again and at least I know what to

expect, all of you have helped me with the unknown aspect of this dragon.

So darv I have some of the same questions you do but at least we have this

wonderful group to lean on in times of need.

Your friend,

Mike..