Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Stacey, I have been keeping a journal of my Remicade experience thus far, and I've posted it on the web. I was looking for any information I could find about personal experiences with Remicade, and couldn't find very much out there. That's why I decided to keep a journal. Here's a link: http://www.canplat.com/%2fRemicade%20journal/remicade.htm If you or anyone else has any suggestions as to how I can improve it, please let me know. I still want to add some basic RA info. Besides that, I'm thinking I'll put some links up, especially a link to sign up for this group and a link to a's great website. Love and hugs, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Carol, If it¹s ok with you, I¹d like to add your link to our RA website. I think it would help those new to remicade. Keeping a journal is a great idea! Hugs, a > Stacey, I have been keeping a journal of my Remicade experience thus far, > and I've posted it on the web. I was looking for any information I could > find about personal experiences with Remicade, and couldn't find very much > out there. That's why I decided to keep a journal. > > Here's a link: > http://www.canplat.com/%2fRemicade%20journal/remicade.htm > > If you or anyone else has any suggestions as to how I can improve it, please > let me know. I still want to add some basic RA info. Besides that, I'm > thinking I'll put some links up, especially a link to sign up for this group > and a link to a's great website. > > Love and hugs, > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Sure a, I’m honored! I was hoping to put a link to sign up for the group, and a link to your website. Would that be OK? Love and hugs, Carol Re: [ ] Remicade journal - Stacey Carol, If it¹s ok with you, I¹d like to add your link to our RA website. I think it would help those new to remicade. Keeping a journal is a great idea! Hugs, a > Stacey, I have been keeping a journal of my Remicade experience thus far, > and I've posted it on the web. I was looking for any information I could > find about personal experiences with Remicade, and couldn't find very much > out there. That's why I decided to keep a journal. > > Here's a link: > http://www.canplat.com/%2fRemicade%20journal/remicade.htm > > If you or anyone else has any suggestions as to how I can improve it, please > let me know. I still want to add some basic RA info. Besides that, I'm > thinking I'll put some links up, especially a link to sign up for this group > and a link to a's great website. > > Love and hugs, > Carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 a, Maybe we could add something like a RA chain, where anyone and everyone who has a story and wants to share about their experiences with Remicade, Enbrel, Kineret or just how they got diagnosed, how it has affected our lives. Another board that I belong to has a " quilt " which allows their members to share their experiences also. This way it gives all of our members an opportunity. We have so many members with different stories and experiences that could be of benefit to others. Just my 2 cents worth. Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Absolutely Carol! a > Sure a, I’m honored! I was hoping to put a link to sign up for the > group, and a link to your website. Would that be OK? > > Love and hugs, > Carol > > Re: [ ] Remicade journal - Stacey > > Carol, > If it¹s ok with you, I¹d like to add your link to our RA website. I think > it would help those new to remicade. Keeping a journal is a great idea! > Hugs, > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Debs, This is a great idea. I¹ve wanted to add a member¹s page with bios and maybe pictures, but have been trying to figure out the best way to do it. It would help new members get to know us as well as read our experiences. Thanks for your input. I¹m open for all suggestions. I hope you are feeling better each day. Hugs, a > a, > > Maybe we could add something like a RA chain, where anyone and everyone who > has a story and wants to share about their experiences with Remicade, Enbrel, > Kineret or just how they got diagnosed, how it has affected our lives. > Another board that I belong to has a " quilt " which allows their members to > share their experiences also. This way it gives all of our members an > opportunity. We have so many members with different stories and experiences > that could be of benefit to others. > > Just my 2 cents worth. > > Debs in FL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi Carol, Thanks for thinking of me. I will try to help as much as I can. It is a great idea. Love ya Stacey in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Good idea Debs. I think its great to know just what to expect when trying a new treatment. I goes a long way to ease some anxieties. Love and Hugs Stacey in PA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.