Debbie

[Guest guest]

Hi Debbie

I am trying to think..did I write to you yet?/

Don't think so, anyway's welcome to a great support group. A wonderful group

of friends with love and ideas for this very scary condition.

I think as long as you are monitored, get a second opinion once in a while,

the difference in the diagnosis is not that important..most of them are

treated in the same way..but you need a good rheumy(our term for

rheumatologist)..that does blood work and checks you out and is there for you.

We are a wonderful group of fun people, despite this hardship. Some people

have better luck than others which is never ever fair.

I was diagnosed in 1972

My flares usually last 8 or 9 months..the big ones

then I get little ones on and off that I can usually deal with.

I see you have had this for a long time too.

Have you had any remissions lasting a significant amount of time.

Tell us more about you!!

I am a nurse( not working now) a mom a 12 year old boy and an 8 year old

girl( my daughter is adopted from China.

I love the outdoors and animals and music too..born in 1956 in NYC. lived

there for 37 years

Now I live about 7 miles from Philadelphia in New Jersey.

Hugs and welcome

Liz

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