Re: Re:Please read !Joanne

[Guest guest]

I really don't have any advice to give either, wish I did. I just want you to

know I am praying for you.. Kat in fla.

kb9vrq wrote:Hi Joanne,

Although I have nothing to offer is regard to advice, know that I am

thinking of you and praying that this gets resolved soon. It sounds

so very terrible and hopefully someone can provide you with the

answers you need.

All my best.

Al in IL

> Please forgive my absence but I have been in the hospital. I hope

someone

> can help me with this problem.

>

> Besides having severe RA, (I am on methotrexate to name a few meds.)

I was

> hospitalized 2 weeks ago with this weird reaction. I took phenergan

for

> nausea and for 24 hrs after, I had to keep walking and moving to

ease a

> terrible feeling...a feeling of I must keep moving to ease this very

> uncomfortable feeling. It was so bad, 4 medications offered by the

physician

> at home did not work and I ended up in critical care. IV ativan did

not even

> ease the symptoms and the movements eventually I became totally out

of it,

> not even knowing my daughter. It all wore off in about three days

when I was

> released. Basically nothing worked to stop it. I should mention

that on a

> few other occasions with nausea meds or cold meds (although I am 52

and took

> them all of my life)I experienced the same " need to move " but it

only lasted

> until the medication was out of my system, a few hours. But it was

horrible

> while it was going on.. Now 2 weeks later, IT IS BACK, having taken

no

> phenrgan and I am so very scared..Truly cannot live with this

endless

> walking, particularly with RA. I sit here in tears afraid of what

is going

> on....and the doctors do not have a clue

> Can anyone offer any help?

>

> PS.Of note: my significant other of 10 yrs has left for greener

pastures in

> July, so I am alone and more frightened than usual.

>

> Thank you all for listening

> Joanne