Websites-Fibro

[Guest guest]

wow!! that is a whole lot of information!!!! thanks for all the links. i'll

check them out!!! kathy in il

[Guest guest]

Here are some websites that pertain to Fibromyalgia if

anyone is interested.

A chiropractor named Dr. Lowe has some

interesting information about fibromyalgia at

drlowe.com.

Tapes of some of Dr. Cheney's lectures are

available from www.treefarmtapes.com. Dr.

Cheney's office is now in Asheville, NC. The

phone number there is 828-274-6665.

www.clinicaltrials.gov lists all the clinical

drug trials currently underway for all diseases, as

does centerwatch.com.

In Australia, the best research is being done at

the University of Newcastle. Surf

www.newcastle.edu.au/department/bi/b

Lyme Disease

The best Lyme Disease lab in the country is

probably IgeneX in Palo Alto at 800-832-3200.

Other good quality labs include Boston

Biomedica at 800-866-6254, Immunology Lab at

UNY Stonybrook at 516-444-2600, and Bowen

Research Institute in Florida at www.bowen.org.

More info is available at www.lymenet.org or

www2.lymenet.org/domino/sg.nsf.

Mycoplasma (A LARGE PERCENTAGE OF FM PATIENTS TEST

POSITIVE FOR A MYCOPLASMA

The best mycoplasma test labs are:

Institute of Molecular Medicine, run by

Nicholson;

Immunosciences Lab (800-950-4686), run by

Vojdani;

Center for Special Immunology, run by See;

Medical Diagnostic Lab in Mt. Laurel, NJ,

which has the best generic price.

Candida albicans ( " yeast infections " )

An effective alternative to Diflucan is 10-

undecenoic acid, which is derived from castor

beans. It's made by Thorne Products under the

name Formula SF722, available from NEEDS and

Sun-Ray as given below. Yeast Avenger from

cfsn.com is also effective, as is olive leaf extract.

www.drcranton.com gives info about triple

antifungal drug therapy for persistent candida

infection.

Miscellaneous infections

The Immune Deficiency Foundation at 800-

296-4433 may be helpful for patients who have

frequent, obvious infections. Their consulting

immunologist can be reached at 877-666-0866.

Neuropsychological disorders

Dr. Myra Preston's neuropsychological testing

website is www.siberimaging.com. Her methods

can also be helpful for treating cognitive problems

and for documenting cognitive disorders for

disability insurance purposes. Her phone number

is 704-543-0427. The Dallas/Ft.Worth support

group, whose website (virtualhometown) is listed

above, sells a video of Dr. Preston's cognitive

dysfunction presentation.

Parasitic infection

The Institute of Parasitic Disease in Phoenix,

AZ is reliable for parasite testing. Call 602-955-

4211. Also try parasitetesting.com.

Hidden lungworm, also known as

cryptostrongylus pulmoni, has been found in

many CFS patients. Read more about it at

http://members.tripod.com/lak123

Multiple environmental sensitivities

A 2-week trial of a rotation diet is a must for

all PWCs to determine whether food allergies are

involved, because 40% of PWCs get good results.

www.parentsofallergicchildren.org has a 4-day plan.

Dr. Cheney believes that the best available lab

test for food and environmental sensitivities is the

ALCAT test. Fortunately, it is available without a

local doctor's order, although it will be necessary

to have blood drawn. Visit www.alcat.com for

more info. The test is covered by some insurance

plans.

Test for mold exposure in your home with

culture plates from Prestige Publishing at 800-

846-6687. Order 1 for about $30 for each room of

concern. Test results are sent to you in about 12

months.

Sleep disorders

www.aasmnet.org has lists of accredited sleep

study centers in various states. If a study shows

you need a CPAP machine to prevent apnea, you

can surf to www.cpapman.com for the equipment.

's Syndrome

WS is an unusual thyroid disorder

characterized by subnormal body temperature that

can cause many CFS and Fibromyalgia

symptoms. See wilsonssyndrome.com or call the

's Syndrome Foundation at 800-621-7006

for more info. Treatment may consist of trials of

Synthroid, Armour thyroid and Cytomel. Results

Malic acid/magnesium FOR FM

If you want to try any of the various brands of

magnesium plus malic acid, be sure to allow 8-10

months to see the benefits. The particular brand

Dr. Teitelbaum recommends is called Fibro-Care,

available at 800-801-1406.

If you don't have much pain, but do have

muscle twitching and spasms, the best form of

magnesium is probably the glycinate form.

Labs makes a magnesium

glycinate/taurine (see warning in

hydroxycobalamin section) capsulated product

called Magnesium Glycinate Forte which is taken

at 300 to 400mg/day. Magnesium Complex from

NEEDS as given below and Magnesium Plus

from immunesupport.com are other sources of

magnesium glycinate. The Vitamin Shoppe's

Vital Life Magnesium Complex may be a cheap

source, or check Beyond A Century as listed

below in the Adaptogen section. Adding 1 gram

of magnesium oxide per day may also help but

can aggravate diarrhea (or benefit constipation,

depending on how you look at it!).

Guaifenesin

Dr. St. Amand's protocol is at

www.guaidoc.com. The treatment is

contraindicated for those with ulcers. Lots more

information is at

http://home.ozonline.com.au/tmarcon.

Undenatured whey as described below may be

able to accelerate the treatment of FM with

guaifenesin.

RELAXIN FOR SLEEP

The hormone relaxin has been known to help

some FM patients with sleep. Visit

www.samyue.com for more info. Order a month's

supply of relaxin for $89 at 800-456-4325.

RESTLESS LEGS

The homeopathic remedy zincum metalicum

in the 200C potency can be effective for restless

leg syndrome.

TRANSPORTATION

Continental Airlines has a program called

" Careforce " to provide free flights for medical

testing and treatment.

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