ReThanks to all for responding

[Guest guest]

Please first let me thank all of you who took the time to reply regarding my

" relentless need to keep moving " It sounds so dumb but that is exactly what

it is. I have no creepy crawly feeling in my legs, an no pain but the usual

in my joints, just a terrible need to walk as it is the only thing and I

mean the only thing that relieve this feeling. I have also had it in my arms

to a lesser degree. And to my friends with RA, you can imagine moving for

hours on end. I was so exhausted prior to them admitting me 2 weeks ago as I

had been literally walking from about midnight on Sat night through 9 pm Sun

when I was finally admitted. I was seen in a emergency care center and when

iv as well as oral Ativan plus all of the meds given to me at home did not

work, they took me by ambulance to the critical care section of the

hospital. Unfortunately, neither place had any idea what they were dealing

with and listed tremors and confusion as my diagnosis and only treated me

with IV ativan for lack of any other way to handle it, but it was only time

that helped.Actually from everything I have read, my diagnosis was

akathisia, (sp?)an inability to keep from moving in order to relieve an

extremely uncomfortable feeling in the legs

From what I understand, it is caused by certain drugs! To me it sounds like

restless leg syndrome as they both happen from certain meds.

I am taking Wellbutrin which although I have taken it for over a year, I now

believe it is the culprit...at least I hope so. All meds I am taking I have

been on for a long time but recently started MTX so who knows.

I do know that the hospital as well as my own physician, had no clue as to

how to treat this and I literally lost my mind for 3 days while there.This

is not to mention the fact that I have no secondary ins besides Medicare and

that 3 day visit alone will cost me a few thousand dollars for basically no

help UGH! I must find out what is doing it and soon as I am up all night and

I am so exhausted from moving and no sleep. I am desperate for answers. I

plan to call the Internist as well as the Rheumatologist tomorrow for some

answers.

As far as the emotional aspect...thanks all for your kind words...it surely

does hurt and since I was admitted the day after he left, I wouldn't be

surprised how much these things are related..I started vomiting from what I

believed was a stomach flu as I also had a very severe headache and nausea

prior for a few days. Anyway, what a nice guy and a nurse to boot..guess he

felt guilty as when I woke up in critical care in the middle of the night,

he was sitting there.which was kind of him after 10 yrs.together. He left

last month saying he had to go and " look for the brass ring " ...what a

crock...I really believe he meant he was looking for a healthy woman. At 66

yrs old all I can say is go for it at this point. I just don't want to drown

in my own anger and it is hard not to be angry especially when facing so

much illness alone now..

Thank you so much, all of you for being here for me....

Joanne