Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 I hope I am not butting in here..... When I see posts like this, I find myself searching for answers to all problems. (Like I have them?) I have to stop myself and ask myself if this is really what is needed. Carol is right--this is a safe place to vent, and I think most people on this list have, to some extent, experienced the no-longer-superperson syndrome. For me...knowing that there are other people out there who feel the way I do is very comforting. Sometimes I feel like a burden on Don (my fiance) since he works and supports us both. I've decided I am going to find a job, maybe part-time, but it will make me feel better. We'll see if I have the stamina for it. I can say that I tried though. I can't tell you how many times I remind my primary doctor that I am my best doctor. He just writes prescriptions. I used to get upset when I'd tell him I have a urinary tract infection, and he'd order tests to confirm it. Hello? Do I not know what it feels like? I don't have STD's....I guess maybe he's ruling out other problems, but I have little tolerance for him sometimes He's a new doctor, and he is just getting to that point where he is superior to everyone else...so I take my chances to show him he is human. Like the time...(so funny, you had to be there) that he misdiagnosed me, and he said that I should believe him because he has a Ph.D. I told him that didn't impress me...try something else. Anyway....I try to laugh every day...mostly at myself. It sure helps me feel better. ~~I believe with all my heart that civilization has produced nothing finer than a man or woman who thinks and practices true tolerance.--- Knox -----Original Message-----From: songofjoy3@... [mailto:songofjoy3@...]Sent: Tuesday, November 27, 2001 10:14 AM Cc: Subject: Re: Carol -I didn't consider you being on the pity party. How many itmes are we asked "How are you" and in reality they do not want to take their toime to REALLY listen to all that is going on with us. This is a safe place to vent. I was diagnosed with systemic lupus in 1994 by the top guy in this city. I do understand hnow you feel, the exhaustion, the soreness, and so many other symptoms. I learned early on that the saying"WE TEACH PEOPLE HOW TO TREAT US" is so real. I do not have a family and live alone and have lost many friends due to this illness for when I used to produce for them-helping them with errands, taking care of their children, helping thejm clean their homes etc-I was their best friend. When all the encompassing illnesses starting affecting me so much and i could no longer give, many left. Somehow they could not cope with the fact that I was no longer super woman. The only one who can really take care of us-is us and i know it is much more difficult for one who has a spouse and children that still expect so much. Am hoping that you are able to find quiet spaces for yourself. carol On Tue, 27 Nov 2001 08:42:45 -0800 (PST) son <paulsons5@...> writes: Hi Carol, thanks for writing. Guess I was on a bit of a pity party yesterday, today the sun is shining and I do feel so much better. Everything is covered in ice & snow, but yea, the light makes all the difference. My hubby is a "cave dweller", we are always fighting about the shades, I need the light. I need to get out of the house I guess. Mexico would be nice! But then he wouldnt let me out in the sun, I have lupus. I wouldnt care what happened if I could lay out in the sun right now. I can supposedly have all the pc time I want while they are gone, when they are home I am still supposed to be superwoman or something, they have all gotten very selfish since I dont work anymore. Sorry, dont want to get started again. Thanks for asking. How are you?? What is the weather like where you live? Frozen hugs, >Hi susan, sorry that you are not feeling well and yes, such weather canaggravate it-I love the sunshine and light it brings. I am so sorry yourfamily discounts your needs for computer time too. Can you set some timeaside for yourself and let them know that it will be your time? amgrateful you heard form you son. carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 heather-good for ypou-laughter has carried me a long way. i have a lot of specialists in my medical field of care here but my favorite is a physicians asst. who is so gentle, kind, down to earth and truly listens to me. carol On Tue, 27 Nov 2001 11:02:00 -0800 "Don & " <handd1@...> writes: I hope I am not butting in here..... When I see posts like this, I find myself searching for answers to all problems. (Like I have them?) I have to stop myself and ask myself if this is really what is needed. Carol is right--this is a safe place to vent, and I think most people on this list have, to some extent, experienced the no-longer-superperson syndrome. For me...knowing that there are other people out there who feel the way I do is very comforting. Sometimes I feel like a burden on Don (my fiance) since he works and supports us both. I've decided I am going to find a job, maybe part-time, but it will make me feel better. We'll see if I have the stamina for it. I can say that I tried though. I can't tell you how many times I remind my primary doctor that I am my best doctor. He just writes prescriptions. I used to get upset when I'd tell him I have a urinary tract infection, and he'd order tests to confirm it. Hello? Do I not know what it feels like? I don't have STD's....I guess maybe he's ruling out other problems, but I have little tolerance for him sometimes He's a new doctor, and he is just getting to that point where he is superior to everyone else...so I take my chances to show him he is human. Like the time...(so funny, you had to be there) that he misdiagnosed me, and he said that I should believe him because he has a Ph.D. I told him that didn't impress me...try something else. Anyway....I try to laugh every day...mostly at myself. It sure helps me feel better. ~~I believe with all my heart that civilization has produced nothing finer than a man or woman who thinks and practices true tolerance.--- Knox -----Original Message-----From: songofjoy3@... [mailto:songofjoy3@...]Sent: Tuesday, November 27, 2001 10:14 AM Cc: Subject: Re: Carol -I didn't consider you being on the pity party. How many itmes are we asked "How are you" and in reality they do not want to take their toime to REALLY listen to all that is going on with us. This is a safe place to vent. I was diagnosed with systemic lupus in 1994 by the top guy in this city. I do understand hnow you feel, the exhaustion, the soreness, and so many other symptoms. I learned early on that the saying"WE TEACH PEOPLE HOW TO TREAT US" is so real. I do not have a family and live alone and have lost many friends due to this illness for when I used to produce for them-helping them with errands, taking care of their children, helping thejm clean their homes etc-I was their best friend. When all the encompassing illnesses starting affecting me so much and i could no longer give, many left. Somehow they could not cope with the fact that I was no longer super woman. The only one who can really take care of us-is us and i know it is much more difficult for one who has a spouse and children that still expect so much. Am hoping that you are able to find quiet spaces for yourself. carol On Tue, 27 Nov 2001 08:42:45 -0800 (PST) son <paulsons5@...> writes: Hi Carol, thanks for writing. Guess I was on a bit of a pity party yesterday, today the sun is shining and I do feel so much better. Everything is covered in ice & snow, but yea, the light makes all the difference. My hubby is a "cave dweller", we are always fighting about the shades, I need the light. I need to get out of the house I guess. Mexico would be nice! But then he wouldnt let me out in the sun, I have lupus. I wouldnt care what happened if I could lay out in the sun right now. I can supposedly have all the pc time I want while they are gone, when they are home I am still supposed to be superwoman or something, they have all gotten very selfish since I dont work anymore. Sorry, dont want to get started again. Thanks for asking. How are you?? What is the weather like where you live? Frozen hugs, >Hi susan, sorry that you are not feeling well and yes, such weather canaggravate it-I love the sunshine and light it brings. I am so sorry yourfamily discounts your needs for computer time too. Can you set some timeaside for yourself and let them know that it will be your time? amgrateful you heard form you son. carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Jan, Guess we should form a club- The RMs, but instead of returned missionaries it would be Rheumatoid Mormons Temple 3 Fox Haven Way Chelmsford, MA 01824 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 That's pretty funny, ! RM's.. Love and hugs, Carol Re: [ ] and Carol Jan, Guess we should form a club- The RMs, but instead of returned missionaries it would be Rheumatoid Mormons Temple 3 Fox Haven Way Chelmsford, MA 01824 Quote Link to comment Share on other sites More sharing options...
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