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In a message dated 10/26/00 7:25:19 AM, swolfnc2@... writes:

<< I have three kids 14,12 and 9 and a loving wife. I feel sad that I may

not be able to do alot of things I imagined I always would with them. >>

I agree with Ruth about adjusting what you do, rather than not doing. Most

CMTers manage to lead full lives.

How are your kids?

Kat

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> I logged on this morning and was overwhelmed with e-mail. I read

> along and realized what a good group this appears to be. I checked

> out some of the links Gretchen put together and I realize here IS

> alot of information out there. I imagine it will take time to

deal

> and cope with the diagnosis and I hope to make a positive

transition

> to be able to look forward positively(right now it is hard to). I

> have three kids 14,12 and 9 and a loving wife. I feel sad that I

> may not be able to do alot of things I imagined I always would with

> them. I will hang out with y'all and learn. I don't know if I

will

> have much to contribute, but knowing that you are coping will help

me

> learn to cope, I hope. Thanks for listening.

>

> Dick

Dick,

I'm so glad you found this group. I grew up always knowing CMT, both

in the family and for myself - diagnosed at 6. So I consider myself

a veteran. I also consider myself lucky that I have always known my

diagnosis and was able to watch the progression in several family

members. :) It may sound wierd, but it is comforting to have a sense

of what lies ahead. It really doesn't scare me all that much at the

moment. Again, I've had a lifetime of preparation for it!

One thing that struck me in your note was the fear of not being able

to do things with your family as you planned. Can I give you

something to think about? In most cases, you can still do all the

things you planned - but you may have to make adaptations along the

way to accomodate your needs. In other words, you can still do the

things you planned, just do them differently or with a different

perspective or a different expectation of outcome. The most

important ingredient in your activities, your family, will still be

there.

Sounds like you are blessed with a great family. Keep reading, keep

asking questions, give yourself time to get used to this new world

you've entered. You've found a great support group here.

Best wishes,

Ruth Warren

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> I logged on this morning and was overwhelmed with e-mail. I read

> along and realized what a good group this appears to be. I checked

> out some of the links Gretchen put together and I realize here IS

> alot of information out there. I imagine it will take time to

deal

> and cope with the diagnosis and I hope to make a positive

transition

> to be able to look forward positively(right now it is hard to). I

> have three kids 14,12 and 9 and a loving wife. I feel sad that I

> may not be able to do alot of things I imagined I always would with

> them. I will hang out with y'all and learn. I don't know if I

will

> have much to contribute, but knowing that you are coping will help

me

> learn to cope, I hope. Thanks for listening.

>

> Dick

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  • 1 year later...

HEY I am glad I caught ya on line and we chatted thanks for those pics you are gorgeous and you will get well again, keep that pretty chin up girl, you had some awesome arms, you amaze me, you will be that way again, I know it, you are special and you will find health again give it time, your going through a rough spot so am I , we still will work out together some day and you can show me how to get those arms.

Girl I have known you awhile now and you are so much stronger than you give yourself credit for, hang tough you will get there.

I love you,

----- Original Message -----

From: MissBoop0827@...

Sent: Thursday, December 20, 2001 8:56 PM

Subject: thank you

Thank you everyone for your support and kind words..although I question if I will make it, only I can make that decision....I just wanted to say thank you!!! May you all heal on the inside and the outside....XOXOXOTERESA

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  • 1 month later...

In a message dated 1/29/02 12:24:46 PM Eastern Standard Time,

taylorj@... writes:

> In my first note I failed to mention that I've been wondering about a

> parasite, and Dale seems to have hit the nail on the head. I spent time in

> China in 1988 and became very ill for

> about a week.

Hi Janet

Please don't ever apologize for writing a lot - you never know how someone

else is going to benefit from something that you're sharing.

Your post reminded me of an experience I had in 1998. I hadn't really

thought about it a lot. I spent some time in Papua New Guinea and when I was

returning to the States I started feeling sick. I thought it was from an

overcrowded plane and the stale air. But within 48 hours I had strange marks

on my right calf and before long I had a sharp pain going up my inner thigh.

I ended up driving myself to the hospital in intense pain and was kept there

for several days. I was on an IV antibiotic and kept in a private room

because they had no idea what I had. I think they never really figured it

out but just got lucky with the antibiotic and the symptoms went away.

But now that I'm thinking about all that, it's making me think about the

possibility of a parasite of some kind causing the infection in the first

place. It's making me think more seriously about doing a parasite cleanse!

So...thank you for sharing!

in health,

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  • 5 weeks later...

Thank you. :)

----- Original Message -----

From: " e Rene " <e_Rene@...>

< >

Sent: Wednesday, February 27, 2002 3:06 PM

Subject: Re: Thank You

> Angelika,

>

> Hope you have a wonderful b-day! HAPPY BIRTHDAY!!!!!

>

> e

>

> >From: " camattoni2000 " <angmattoni@...>

> >Reply-

> >

> >Subject: Thank You

> >Date: Wed, 27 Feb 2002 00:13:10 -0000

> >

> >I just had a chance to check out my updated photos you posted. You

> >did a great job, thank you! :) I wanted to tell you that I am so

> >happy with the results. Since then my outer stitch knot came out and

> >they look a lot better. In the tan top I am wearing, I am so happy

> >to say that I am not wearing a bra. I love it! Once I receive my

> >bikini which should be coming soon I will send pics. It is a bikini

> >style that I have wanted to wear for a long time by Calvin Klein but

> >always found that my breasts were too big. I am hoping this time it

> >will work out. Anyway, that was my birthday present from my hubby

> >since tomorrow is my birthday. I will be 27 on the 27th. It is kind

> >of a significant birthday to me. I don't have much planned but my

> >husband always seems to make it special for me regardless.

> >

> >Love,

> >Ang

> >

> >

> >

> >

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  • 5 years later...

Hola - Hello My Friends,

Thank you for the bottom of my heart for all your

prayer. My mother finished her cancer treatment and is

doing well. She is still very sensitive when it comes

to her sister (who passed away due to breast cancer in

February) but she is handling herself better.

Luz y carino,

Tere

________________________________________________________________________________\

____

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

http://answers./dir/?link=list & sid=396545433

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Oh, Beautiful Tere, how wonderful for you and your mom! :) I am so pleased but do know that the prayers and love continues infinitely for you both. *warm hug of joy and comfort*Blessings, Peace & Joy, Love & Light, Unity...~Ali~Tere Krazit <krazit21@...> wrote: Hola - Hello My Friends, Thank you for the bottom of my heart for all your prayer. My mother finished her cancer treatment and

is doing well. She is still very sensitive when it comes to her sister (who passed away due to breast cancer in February) but she is handling herself better. Luz y carino, Tere __________________________________________________________ Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433

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Dear Tere,

Oh, that is such wonderful news, my dear! I am so glad that

su Madre is feeling better physically! It is very tough to lose a

sister or anyone for that matter. My friend told me something I wold

like to share with you. The pain usually does not go away but it

gets more tolerable as time allows. We all need time to heal in the

physical and emotional sense and my thoughts and prayers are with su

Madre y tu! Light and love, LUNA

--- In , Tere Krazit <krazit21@...>

wrote:

>

> Hola - Hello My Friends,

>

> Thank you for the bottom of my heart for all your

> prayer. My mother finished her cancer treatment and is

> doing well. She is still very sensitive when it comes

> to her sister (who passed away due to breast cancer in

> February) but she is handling herself better.

>

> Luz y carino,

> Tere

>

>

>

>

______________________________________________________________________

______________

> Be a better Heartthrob. Get better relationship answers from

someone who knows. Answers - Check it out.

> http://answers./dir/?link=list & sid=396545433

>

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