Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 I'm curious to know why you need to stay in a nursing facility overnight to take advantage of this rider? Do they examine the child while you're there? Is this just some loophole to get into the system? These governmental programs can be helpful but the ridiculous stuff people have to jump to in order to get into the program is ridiculous. Gaylen  The place we stayed at in Richmond required the full 48 hours. It was not a comfortable place for us, but the staff were extremely kind and supportive. I would suggest bringing your favorite bed linens, plenty of toys and books, a portable DVD player, snacks, and whatever you can think of that might make your child's stay there more comfortable. The nursing home we stayed at was NOT well-equipped to entertain kids, although, I think we were quite a source of entertainment for the residents at the nursing home When my son scampered down the hall in his striped Christmas jammies, one of the residents told him "you're the cutest elf I've ever seen!" If the nursing home is not too far from your home, I would suggest having friends come for a visit. Our nursing home did not care that my husband and other son picked us up and took us out for dinner, so long as we actually spent the night in the nursing home. MDCP set up pretty much everything. I did have to pay the nursing home like $250 (???) for the stay, but Medicaid reimbursed us for it after the stay. I talked to the nursing home before we went. My son can be loud at times, and I was afraid that might be disruptive to the residents. That was not the case at all! Our suitemate next door had sundownder syndrome and yelled from about 4:00 in the afternoon until 6:00 the following morning. Bless his heart. So, maybe to your list you could add melatonin, ear plugs, white noise generator,etc., just in case. Geraldine [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Is this a new provision for CLASS? My son didn't have to do this when he got into the CLASS system a few years ago. Gaylen There is a similar provision for CLASS, but the stay is actually 6 weeks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Is this the "money follows the person" program?Sent via BlackBerry by AT&TDate: Wed, 27 Jan 2010 07:57:31 -0800 (PST)To: <Texas-Autism-Advocacy >Subject: Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated!!! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 No idea. Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne To: Texas-Autism-Advocacy Sent: Wed, January 27, 2010 9:59:22 AMSubject: Re: Rider 28 Program??? Is this the "money follows the person" program? Sent via BlackBerry by AT & T From: Byrne <kornrumbdeyahoo (DOT) com> Date: Wed, 27 Jan 2010 07:57:31 -0800 (PST) To: <Texas-Autism- Advocacy@ yahoogroups. com> Subject: [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 We did something called "the money follows the person" program which then quallified us for MDCP. We had to go stay overnight in a nursing facility. A little strange but I was @ witts ends? MDCP then qualifies you for medicaid and respite!! Its been a GOD send!! BohacSent via BlackBerry by AT&TDate: Wed, 27 Jan 2010 08:05:44 -0800 (PST)To: <Texas-Autism-Advocacy >Subject: Re: Rider 28 Program??? No idea. Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrneFrom: "jamiebohac" <jamiebohac>To: Texas-Autism-Advocacy Sent: Wed, January 27, 2010 9:59:22 AMSubject: Re: Rider 28 Program??? Is this the "money follows the person" program?Sent via BlackBerry by AT & TFrom: Byrne <kornrumbdeyahoo (DOT) com> Date: Wed, 27 Jan 2010 07:57:31 -0800 (PST)To: <Texas-Autism- Advocacy@ yahoogroups. com>Subject: [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Yes, we did that. It requires a 48 hour stay at a Medicaid nursing home, during which you will be interviewed by the nursing home's nurse and a state nurse. The way it was explained to me...in order for anyone to get onto MDCP, they either need to wait on the MDCP list or they need to move from an institutional placement into a residential placement. In most cases, people have been living in an institutional placement for a long time before they go onto MDCP, but there's a small subset of people whose needs could not be served in an institutional placement. I was told that because of my son's significant medical needs, he is an example of someone who could not be served in an institutional setting. Therefore, he was a candidate for the Money Follows the Person program (Rider 28). In order to verify that an invidual is eligible for MDCP, he or she will do an abbreviated stay (48 hours) at a nursing home, during which time the individual is assessed by the nursing home nurse, a state nurse, and a state psychologist (or was that way 2 years ago when we did our stay). You need to get in touch with an MDCP case manager before you do any of this. They need to pre-approve your child and get some stuff set up with the state. Geraldine Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated!!! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 We were told the stay would be "overnight." My kids are terrified of medical facilities (w/ good reason.. they're in and out of doctor's offices all the time); and Medicaid approved nursing facilities aren't the nicest places to begin with. I'm worried about them having to stay... and I'm wondering about the process of referral. Does MDCP do everything (referrals, paperwork, etc.)? Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne To: Texas-Autism-Advocacy Sent: Wed, January 27, 2010 10:35:52 AMSubject: Re: Rider 28 Program??? Yes, we did that. It requires a 48 hour stay at a Medicaid nursing home, during which you will be interviewed by the nursing home's nurse and a state nurse. The way it was explained to me...in order for anyone to get onto MDCP, they either need to wait on the MDCP list or they need to move from an institutional placement into a residential placement. In most cases, people have been living in an institutional placement for a long time before they go onto MDCP, but there's a small subset of people whose needs could not be served in an institutional placement. I was told that because of my son's significant medical needs, he is an example of someone who could not be served in an institutional setting. Therefore, he was a candidate for the Money Follows the Person program (Rider 28). In order to verify that an invidual is eligible for MDCP, he or she will do an abbreviated stay (48 hours) at a nursing home, during which time the individual is assessed by the nursing home nurse, a state nurse, and a state psychologist (or was that way 2 years ago when we did our stay). You need to get in touch with an MDCP case manager before you do any of this. They need to pre-approve your child and get some stuff set up with the state. Geraldine [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 We only had to stay overnight. Sent via BlackBerry by AT&TDate: Wed, 27 Jan 2010 08:43:49 -0800 (PST)To: <Texas-Autism-Advocacy >Subject: Re: Rider 28 Program??? We were told the stay would be "overnight." My kids are terrified of medical facilities (w/ good reason.. they're in and out of doctor's offices all the time); and Medicaid approved nursing facilities aren't the nicest places to begin with. I'm worried about them having to stay... and I'm wondering about the process of referral. Does MDCP do everything (referrals, paperwork, etc.)? Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrneFrom: Geraldine Bliss <gbliss1comcast (DOT) net>To: Texas-Autism-Advocacy Sent: Wed, January 27, 2010 10:35:52 AMSubject: Re: Rider 28 Program??? Yes, we did that. It requires a 48 hour stay at a Medicaid nursing home, during which you will be interviewed by the nursing home's nurse and a state nurse. The way it was explained to me...in order for anyone to get onto MDCP, they either need to wait on the MDCP list or they need to move from an institutional placement into a residential placement. In most cases, people have been living in an institutional placement for a long time before they go onto MDCP, but there's a small subset of people whose needs could not be served in an institutional placement. I was told that because of my son's significant medical needs, he is an example of someone who could not be served in an institutional setting. Therefore, he was a candidate for the Money Follows the Person program (Rider 28). In order to verify that an invidual is eligible for MDCP, he or she will do an abbreviatedstay (48 hours) at a nursing home, during which time the individual is assessed by the nursing home nurse, a state nurse, and a state psychologist (or was that way 2 years ago when we did our stay). You need to get in touch with an MDCP case manager before you do any of this. They need to pre-approve your child and get some stuff set up with the state. Geraldine [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010  The place we stayed at in Richmond required the full 48 hours. It was not a comfortable place for us, but the staff were extremely kind and supportive. I would suggest bringing your favorite bed linens, plenty of toys and books, a portable DVD player, snacks, and whatever you can think of that might make your child's stay there more comfortable. The nursing home we stayed at was NOT well-equipped to entertain kids, although, I think we were quite a source of entertainment for the residents at the nursing home When my son scampered down the hall in his striped Christmas jammies, one of the residents told him "you're the cutest elf I've ever seen!" If the nursing home is not too far from your home, I would suggest having friends come for a visit. Our nursing home did not care that my husband and other son picked us up and took us out for dinner, so long as we actually spent the night in the nursing home. MDCP set up pretty much everything. I did have to pay the nursing home like $250 (???) for the stay, but Medicaid reimbursed us for it after the stay. I talked to the nursing home before we went. My son can be loud at times, and I was afraid that might be disruptive to the residents. That was not the case at all! Our suitemate next door had sundownder syndrome and yelled from about 4:00 in the afternoon until 6:00 the following morning. Bless his heart. So, maybe to your list you could add melatonin, ear plugs, white noise generator,etc., just in case. Geraldine [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Ah. Ours is a familial issue also and is active in both kids. My husband is the carrier in our case--which makes it rarer still. IDEAS put us in touch with a geneticist in Tennessee, thankfully, who has been working on 15q for a bit. Without them, we wouldn't have gotten anywhere on the 15q issue. Good luck! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne To: Texas-Autism-Advocacy Sent: Wed, January 27, 2010 11:24:16 AMSubject: Re: Rider 28 Program???  The place we stayed at in Richmond required the full 48 hours. It was not a comfortable place for us, but the staff were extremely kind and supportive. I would suggest bringing your favorite bed linens, plenty of toys and books, a portable DVD player, snacks, and whatever you can think of that might make your child's stay there more comfortable. The nursing home we stayed at was NOT well-equipped to entertain kids, although, I think we were quite a source of entertainment for the residents at the nursing home When my son scampered down the hall in his striped Christmas jammies, one of the residents told him "you're the cutest elf I've ever seen!" If the nursing home is not too far from your home, I would suggest having friends come for a visit. Our nursing home did not care that my husband and other son picked us up and took us out for dinner, so long as we actually spent the night in the nursing home. MDCP set up pretty much everything. I did have to pay the nursing home like $250 (???) for the stay, but Medicaid reimbursed us for it after the stay. I talked to the nursing home before we went. My son can be loud at times, and I was afraid that might be disruptive to the residents. That was not the case at all! Our suitemate next door had sundownder syndrome and yelled from about 4:00 in the afternoon until 6:00 the following morning. Bless his heart. So, maybe to your list you could add melatonin, ear plugs, white noise generator,etc. , just in case. Geraldine [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbr idge.org/ visit/prestonbyr ne and http://www.caringbr idge.org/ visit/toribyrne ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 :Yes, I am familiar with it. When my son was first diagnosed, no one told us anything, and there weren't many on-line support groups that I knew of.My son has been chronically ill since regression. We went broke paying all his medical bills. Finally, someone told us about the Rider 28. So we got a letter from his doctor and we had the interview, and then we arranged for him to be admitted into a nursing home near our home that is run by one of our neighbors. We had to pay the nursing home daily rate for two days, but we only had to stay a part of two days. So we went in with our son and played games and watched videos (we brought a lap top) and then our son was admitted into MDCP and he got a medicaid waiver. It has helped. It helps pay doctor bills (his regular physician accepts medicaid). Hospitals accept medicaid. It picks up the portion of his prescription meds that are not covered by our insurance. It will not pay for medical care from a doctor who does not accept medicaid. It doesn't pay for his supplements. We do get respite services, but you have to find your own workers. I had to wait for my God daughter to turn eighteen. She turned eighteen in November of last year, and it is really helping me a lot! But she can only work about seventeen hours. We received thirty a week and I wish I could find someone else, but it is hard to find dependable people you trust with your child. They can also help with tutoring, too. So she helps with supervision, his laundry, his dishes, his meals, his room. She helps with supervision when we go out. It has been a Godsend!Call MDCP and request a Rider 28. It used to be that your child had to stay in the nursing home 30 days, but now it is only two. Haven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010  The program was really designed to move people out of institutional placements. A nursing home nurse, state nurse, and state psychologist assessed my son while he was there. I think they were basically trying to ascertain that his needs/health condition were so severe that he could not be well served in an institutional placement. There is a similar provision for CLASS, but the stay is actually 6 weeks! Geraldine [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 I think they're saying that you can circumnavigate the waiting list by staying in a nursing home for 6 weeks. If you sat on the waiting list, it is not required. MelodySent via BlackBerry from T-MobileFrom: Googahly@...Date: Wed, 27 Jan 2010 15:47:02 ESTTo: <Texas-Autism-Advocacy >Subject: Re: Rider 28 Program??? Is this a new provision for CLASS? My son didn't have to do this when he got into the CLASS system a few years ago.Gaylen In a message dated 1/27/2010 2:12:32 P.M. Central Standard Time, gbliss1comcast (DOT) net writes:There is a similar provision for CLASS, but the stay is actually 6 weeks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 I don't know why it was required. The nurse came in several times and took my son's vitals. That was it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010  My friend who has a toddler with Down syndrome was told this was something just recently passed in the past legislative session (or the one before). Whether that is true or not, I do not know. Hilda [Texas-Autism- Advocacy] Rider 28 Program??? Our regional MHMR office called me and suggested we might be able to obtain assistance for the kids through the Rider 28 Program. (We're on the huge waitlist for CLASS, MDCP, etc... only 8 or 9 more years to go for the eldest...) Anyone familiar with the Rider 28 Program? The intake person said the kids would actually have to be admitted overnight to a nursing home of all things. What's that all about?? Any info greatly appreciated! !! Byrne Read our kids'stories online at Caring Bridge - http://www.caringbridge.org/visit/prestonbyrne and http://www.caringbridge.org/visit/toribyrne ____________ _________ _________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
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