Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 These Santa stories are hilarious! Liv was never one to enjoy sitting on Santa's lap, either. We should compile funny cast stories for a future newsletter. If you have a good one and want to share, please do. ISOP's on-line newsletter has been on our " to-do " list for a couple years now, and I think we should be able to get to it, soon. HRH > > > > > > > > > From: Hyatt <heather@infantiles c oliosis.org> > > > Subject: RE: [infantile_scoliosi s] back from Rochester- no change > > again > > > To: infantile_scoliosis @yahoogroups. com > > > Date: Wednesday, December 3, 2008, 11:49 AM > > > > > > > > > > > > > > > I think the #'s are great. Especially, when you compare them to > > when started. Many children who transfer from cast to removable > > brace (under 20 degrees with no rotation) experience even more > > correction. Muscles are being used that hadn't been used before, and > > brace time can help to strengthen up the core and hold/correct the > > young spine even more. Ask about plaster –vs- fiberglass > > (waterproof) for 's situation and if the doc thinks perhaps a > > final plaster jacket would benefit in getting him even lower. > > Plaster is a more mouldable material and maybe that's whats needed > > for the final jacket application? I am no doc, but it wouldn't hurt > > to ask. > > > HRH > > > > > > > > > > > > > > > From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ > > scoliosis@ yahoogroups. com] On Behalf Of jill wienke > > > Sent: Wednesday, December 03, 2008 7:05 AM > > > To: infantile_scoliosis @yahoogroups. com > > > Subject: [infantile_scoliosi s] back from Rochester- no change again > > > > > > > > > > > > > > > > > > Hi everyone. Well I am not sure where to start. We are back from > > our latest cast change. had his last cast on for just over 3 > > months. We had been stuck at 16 degrees for the past 3 cast, now make > > it four. The xrays (supine) looked so good to me. I was sure we were > > close to 10 degrees. I could barely contain myself, then the doctor > > pulled up the xray on his computer and started measuring it with a > > new program (as opposed to with protractor, ruler and pencil as he > > usually does.) Guess the number that came up...16. He said by > > tweaking and moving the lines a bit he got anywhere from 11 or 12 to > > 18 or 19. Our doctor knows our frustration and can't explain why we > > are not getting more of a change. In the past he has said, " I think > > we can fix this, especially because it is clear has no other > > underlying syndromes... . " Well this time it was almost as if he was > > trying to help explain the lack of progress he threw out there maybe > > we should > > > see a geneticist. I may be in denial, but I feel that is > > unnecessary. I do not want my baby to be poked or prodded any more > > than needed. > > > His back to the naked eye is beautiful. When asked to bend over it > > looks so straight! > > > We are going to try another cast until March (when turns 3). > > We may even do one more after that and then go for a brace for the > > summer. What do you all think of this? I have cried until I am out of > > tears due to frustration and exhaustion. I know is healthy and > > happy and that the casts have made a difference in his life. The > > doctor almost sounded as if he is giving up on curing . > > > What do you all think of all of this? Thank you for all the > > support. > > > Jill and > > > > > > > Quote Link to comment Share on other sites More sharing options...
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