Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Hi Carol, Sorry you've had such a bad day. That tailbone thing is the utter pits! Maybe if we could wag 'em that would help! If you're anything like me, you'll feel better the minute you are in your sweetie's arms. When I'm having a bad day or night now, Ron has learned to just hug me (gently) and it does help. Of course, that has only been in the last few days, but I like it. Last time I tried to do something creative when Ron was away, I was waiting for him at the front door wearing nothing but a smile, and (good thing I looked first) it was the UPS man! Hope your night goes better. Hugs & God bless, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Dear Carol...I'm so sorry you're feeling bad. Perhaps it's just temporary as you've done a lot lately. You're still on loading doses. so I don't think you should worry that the Remicade isn't working. Just my 2 cents worth, but I don't think you should try to downplay how you feel. Just love that hubby the best you can. He loves you, kiddo... Prayers & Hugs & Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 LOL!!!! Too bad for the UPS man, Judi! [ ] Re: Bad flare Hi Carol, Sorry you've had such a bad day. That tailbone thing is the utter pits! Maybe if we could wag 'em that would help! If you're anything like me, you'll feel better the minute you are in your sweetie's arms. When I'm having a bad day or night now, Ron has learned to just hug me (gently) and it does help. Of course, that has only been in the last few days, but I like it. Last time I tried to do something creative when Ron was away, I was waiting for him at the front door wearing nothing but a smile, and (good thing I looked first) it was the UPS man! Hope your night goes better. Hugs & God bless, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 << Last time I tried to do something creative when Ron was away, I was waiting for him at the front door wearing nothing but a smile, and (good thing I looked first) it was the UPS man! >> Judi, that's so funny! It's doubly so because I was thinking along the same lines. I was going to go to the airport wearing a blazer (buttoned) with a lacy black bra under it, no blouse. Then when we got to the car I could unbutton it. I'm kind of losing my nerve, though. You have the tailbone thing, too? When I asked my rheumy about it he said it is the sacroiliac joint, and that's why he thinks I might have AS in addition to the RA. It's interesting to know someone else has it. Have you mentioned it to your rheumy? If so, what did he have to say? I know I will feel better when I'm in my hubby's arms. I'm really excited to see him. He travels a lot, but never for 10 days. I hope you have a good evening. Love and hugs, Carol [ ] Re: Bad flare Hi Carol, Sorry you've had such a bad day. That tailbone thing is the utter pits! Maybe if we could wag 'em that would help! If you're anything like me, you'll feel better the minute you are in your sweetie's arms. When I'm having a bad day or night now, Ron has learned to just hug me (gently) and it does help. Of course, that has only been in the last few days, but I like it. Last time I tried to do something creative when Ron was away, I was waiting for him at the front door wearing nothing but a smile, and (good thing I looked first) it was the UPS man! Hope your night goes better. Hugs & God bless, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Thanks, Tess. I plan to love him------ a lot! ;-) Lots of love and hugs, Carol Re: [ ] Bad flare Dear Carol...I'm so sorry you're feeling bad. Perhaps it's just temporary as you've done a lot lately. You're still on loading doses. so I don't think you should worry that the Remicade isn't working. Just my 2 cents worth, but I don't think you should try to downplay how you feel. Just love that hubby the best you can. He loves you, kiddo... Prayers & Hugs & Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Sorry to hear that you're feeling so rotten, Carol, but you've been a very busy gal over the last few days. And, as much as you love your family, it is stressful to have visitors in town. Try not to worry about the Remicade. I hope you can make it to Tuesday without too much discomfort though. I guess I would play it down by not saying too much about how you are feeling right now. Maybe you can talk about it tomorrow. Instead, just ask him how his trip was and tell him how your visit was with your family - I'm sure you'll both have lots to share. Then when you get home just go straight to bed - both of you. I'll say no more. [ ] Bad flare > Hi all. I just need to gripe a little. I am having such a bad day today. > Since I woke up, I've had pain in my hips and tailbone. Now my shoulders > and hands are bad, as well. I've taken a Lortab for the pain, and it > doesn't even touch it. I've become so spoiled in the past week being > virtually pain-free, and now I'm having trouble coping. Fortunately I have > my next Remicade infusion on Tuesday. The bad part is that Stan (my > husband) comes home tonight, and I really don't want him to come home to me > hurting. Any advice as to how I can play it down? I was going to meet him > right outside of security in the airport, but I think I'll just pull up > outside baggage. I had even made this cute sign to hold up saying " Welcome > home " . He likes when I do corny things for him, which is surprising because > he's a very serious person. I like to do little things to show how much I > care. I won't say on the list the other thing I have planned. ;-) Of > course, if I can manage to do anything the way I feel right now... > > I know I'm still on the loading doses, but when Remicade peters out is the > pain worse than the original pain? > > I hope each of you is having a better day than I am. > > Love and hugs, > Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 , you're right that I've been busy. It's funny, the nurse who gave me the infusion was telling me about someone who felt really good then proceeded to overdo it, and she warned me not to do the same. It was just so nice to feel so good and be able to do so much with my family. It was worth a couple of days of pain. I'm going to take your advice and downplay my health. I got dressed up (but not in the blazer LOL) and look good, if I do say so myself. Sometimes looking good goes a long way toward feeling good. He's been so encouraged by how well I'm doing on the Remicade, I don't want him to feel disappointed because of a temporary setback. As for coming home and going straight to bed --- my thoughts exactly. Love and hugs, Carol Re: [ ] Bad flare Sorry to hear that you're feeling so rotten, Carol, but you've been a very busy gal over the last few days. And, as much as you love your family, it is stressful to have visitors in town. Try not to worry about the Remicade. I hope you can make it to Tuesday without too much discomfort though. I guess I would play it down by not saying too much about how you are feeling right now. Maybe you can talk about it tomorrow. Instead, just ask him how his trip was and tell him how your visit was with your family - I'm sure you'll both have lots to share. Then when you get home just go straight to bed - both of you. I'll say no more. [ ] Bad flare > Hi all. I just need to gripe a little. I am having such a bad day today. > Since I woke up, I've had pain in my hips and tailbone. Now my shoulders > and hands are bad, as well. I've taken a Lortab for the pain, and it > doesn't even touch it. I've become so spoiled in the past week being > virtually pain-free, and now I'm having trouble coping. Fortunately I have > my next Remicade infusion on Tuesday. The bad part is that Stan (my > husband) comes home tonight, and I really don't want him to come home to me > hurting. Any advice as to how I can play it down? I was going to meet him > right outside of security in the airport, but I think I'll just pull up > outside baggage. I had even made this cute sign to hold up saying " Welcome > home " . He likes when I do corny things for him, which is surprising because > he's a very serious person. I like to do little things to show how much I > care. I won't say on the list the other thing I have planned. ;-) Of > course, if I can manage to do anything the way I feel right now... > > I know I'm still on the loading doses, but when Remicade peters out is the > pain worse than the original pain? > > I hope each of you is having a better day than I am. > > Love and hugs, > Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hi Carol, Hope you are feeling better today. Try not to overdo, eventhough hubby is home. I'm sure he will understand. There will be better days, but only if you take care of yourself. Love ya Stacey in PA Quote Link to comment Share on other sites More sharing options...
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