Re: Kathi - Avascular Necrosis (AVN)/Osteonecrosis

[Guest guest]

This makes total and complete sense to me....I dont

and havent used steroids alot because they keep saying

with the mess in my spine I would be buying more

problems..they have just started this year to let me

do short time use.....I did test positive for

cryoglobulin....and that couldnt be explained.....

I have noticed the SD diagnosis seems to put off all

docs but PCP and rheumy as it is something they dont

normally see....thanks unfortunatley this does

make sense....alot of the docs condider SD as a skin

disease only and dont realize the internal

connection....hugs Kathi

--- <Matsumura_Clan@...> wrote:

> Kathi, I've been thinking about what you described

> about your bones on

> the MRIs and what you asked about vascular disease

> and bone. I think you

> are on the right track.

>

> My best guess is that part of your problem could be

> avascular necrosis

> (AVN) which is also called osteonecrosis. I know for

> sure that it can

> happen in the hips and knees, but I can't say that

> I've ever read about

> it in relationship to the spine (but that doesn't

> mean it couldn't

> happen there). It's also likely that you have more

> than one thing going

> on with your bones since you are the interesting,

> complicated person you

> are.

>

> Lupus itself and the medications used to treat it

> (you guessed it -

> prednisone) can affect your bones in various ways.

> For example, AVN

> occurs in 5 - 10% of SLE patients.

>

> In my readings, there also appears to be great

> suspicion of an

> association between Raynaud's and AVN. I saw a few

> references to AVN and

> systemic sclerosis, too.

>

> It will be very interesting to hear what the

> radiologist's assessment

> is. Please let me know.

>

> This page will take you to a lot of good links on

> osteonecrosis:

>

>

http://www.familyvillage.wisc.edu/lib_osteonecrosis.htm

>

> Still thinking and looking,

>

>

>

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[Guest guest]

Kathi,

According to this site, cryoglobulin tests are abnormal in autoimmune

diseases.

Cryoglobulin test:

http://www.ehendrick.org/healthy/00044420.html

a

> This makes total and complete sense to me....I dont

> and havent used steroids alot because they keep saying

> with the mess in my spine I would be buying more

> problems..they have just started this year to let me

> do short time use.....I did test positive for

> cryoglobulin....and that couldnt be explained.....

> I have noticed the SD diagnosis seems to put off all

> docs but PCP and rheumy as it is something they dont

> normally see....thanks unfortunatley this does

> make sense....alot of the docs condider SD as a skin

> disease only and dont realize the internal

> connection....hugs Kathi

[Guest guest]

a...as always thanks and mine was mixed so I guess

that says something.....Kathi

--- a <paula54@...> wrote:

> Kathi,

> According to this site, cryoglobulin tests are

> abnormal in autoimmune

> diseases.

>

> Cryoglobulin test:

>

> http://www.ehendrick.org/healthy/00044420.html

>

> a

>

> > This makes total and complete sense to me....I

> dont

> > and havent used steroids alot because they keep

> saying

> > with the mess in my spine I would be buying more

> > problems..they have just started this year to let

> me

> > do short time use.....I did test positive for

> > cryoglobulin....and that couldnt be explained.....

> > I have noticed the SD diagnosis seems to put off

> all

> > docs but PCP and rheumy as it is something they

> dont

> > normally see....thanks unfortunatley this

> does

> > make sense....alot of the docs condider SD as a

> skin

> > disease only and dont realize the internal

> > connection....hugs Kathi

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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