Carol

[Guest guest]

Hi Carol,

Groovy Baby!

I think you’ve started a riot. All the Austin Powers lovers are coming out

of the closet! You’ve set us free! LOL!

I’m so happy that you managed to get into the Remicade study! Sorry to hear

you are in so much pain right now, I will say a zillion prayers that the

Remicade works wonders for you.

Thanks so much for the support, you are a sweetie! The flare seems to be

calming down a bit now (pheeew!) and I start physiotherapy on my back next

week.

I know what you mean about giving up hope sometimes, my friends and family

also think I’m the most optimistic person they know, it’s weird but it sort

of creates an expectation for you to always be “on top of the world”. They

think I cope so well, but sometimes I feel like I’m falling apart. Then

I’ll dust myself off and play the glad game again. This disease has

definitely changed me though. I’m more hesitant to make long term plans or

do crazy things, I need more rest and find myself thinking of the future

more )with a little bit of apprehension). There are so many things I want to

do, then I’ll think – oh geez maybe not such a good idea with/for the RA. (I

do try live life to the fullest despite it but it kind of nags in the back

of your mind). Truthfully I don’t think I’ve fully accepted it yet, I find

myself feeling the need to talk about it often but don’t want to become a

pain to those around me boring them to death with my problems. My husband

has been great but he’s starting to get that glazed look in his eyes now

when the subject comes up. Thank goodness for this group! At least

everyone truly understands and you get a chance to give back the support you

receive when you are on top again.

I hope your exam went well yesterday!

Love and Hugs,

Heidi

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