Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 Hi Friends, I just wanted to say that I was on pred. for 7 years and had many problems.I have been off of it 2 years this Nov.I saw a big change about 3 months after getting off of it.I wasn't getting non-Stills related problems.I had thrush every time I had a flare.My tongue was so sensitive that it hurt from just eating sugar!I am still not able to eat anything with any spice on it and I have a bald spot under my bangs and my hair used to be very thick (I had to get it thinned every few weeks as a child!) I have virtually no eyebrows left,I am on MTX and have been for about 10 years, with enbrel added 5 years ago.I don't know what has caused what,but I do know I didn't have any problem with my tongue or hair etc. until I went on these drugs.By the wayy,I know some of you have less than understanding spouses,but if I might,I'd like to inject a kind thought from my great hubby Bill.He walked in the house yesterday and took one look at me and said " out of spoons? " I said yes and he said " well then it's a good thing I have this ladle to give you " ! Love that man! If only my daughter was as understanding! I think she just wants a " normal " Mom,so she pretends she does.Sorry for letting you down . love Elly Quote Link to comment Share on other sites More sharing options...
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