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Re: Questions for Sondra

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not have any memory of a fear of showers as a young child but as older

and or teen was to experience a shower and it hurt of my body to have

of the pwoerful feel of water pounding at me, but not know of why or

what happened but now take of showers okay and like of them, but still

cannot stand of the rain to hit of my skin at all as this causes of me

sensory overlaod and even now have of to have a very high motivator in

place for me to go out into the rain or sometimes can talk self into it

for a short time but usually get of strong negative moods later for it.

the only time i to take a bath now is if too cold and want of the body

of me to warm up or plan of to shave as cant shave standing up as not

coordinated to take one foot up as again lose cordinations of self and

tumble over.

about the bike, neverhad of a trike, did be of to have of a bike with

trainer like wheels as a kid but was not good at coordinating of self

to do that well. but as adult did learn of to ride a bike and then

forgot of how and for some reason could not balance of self and or get

of the bike to stay up right but then did of get a bike things that had

of a trailer things that you hooked to it, it was of like a stroller

things and so this helped of balance it out like traniner wheels but

again one summer with a friend found self doing the bike by self and

seemed able to do it and was happy in that but then it was of several

years since then to even be on a bike and so had of to relearn of it,

each time I to relearn of it , I to have of no sense of how to keep the

bike up as when I to try to peddle the bike slowly just falls over and

so cant know of how to keep it up right and such but then with a full

summer practice can ride of it but the next year my brain has of to

relearn of it. Not sure why my brain does not retain of the memory or

skill of bike riding so occasional will sahre here I to just learned to

ride of a bike and will feel happy to only lose it again.

with swimming never had of a lesson , I to just jumped in 12 foot of

water and did of a sloppy sort of doggie paddle and so learned to swim

with no training or learning of this. my learning of things is of so

very uneven some things that seems complex can be of easy for me and

things that others find easy is of hard. and things others have shared

to me once you learn a certain things you do not lose it but for me not

find that to be of true.

same goes with roller skating cant in line or ice skate but with much

practice can balance self to roller skate. but it isof rare for me to

do that now because fear of falling is of strong in me more so now than

for years but had of this same sense of falling as a child.

sondra

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I to also will share at time my memory is of good and sometimes not

and or some times a memory will come to me of only one age areas and

the next time it will be of a same issues but older age group so

wanted of to clarify if things do not always seem consistent with my

response because one in the not too past accused of me of the lying

and so it might appear of that but it isof because of what age my

memroy is of reflecting from.

I to also found I to think it was here or Debi here teached me

the fibromyalgia can interfer with memory and while this is of not a

comfort it is of a better comfort than being of parkinsons and

alzheimers such as the birth mother of me has. her memory is of

severely impacted on some days and much clear on other days.

I to plan as i to shared will be of to try of to take of some video

things of the birth family of me soon because will go to the birth

fathers home for Christmas eve this year. the odd is that while is of

married to the step mom he is of also to invited of the birth mother

of me to hims home each year for christmas too. so it will be of hard

and yet will be of good to get of videos of her and hims and the

sister and brother of me and the two nephews who I to know are of

spectrum. the one will be of 4- or 5 and still says little to no

words and cries much and has of what is of termed flat affect. it

will be of interesting to see the gains or non gains he has maked

because the nephew is of in complete denial of him being of autism

but he is of much like of self at that age of being of a non talker

and having very little awareness and much anxiety. that was of last

year so interested to see of the changes, Hims brother is of much an

aspergers sort of profile.

sondra

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Sondra,

 

I experience the same phenomena of rememberence....where at age 4 things were

one way and at age 30 things were different; however, where the time as present

is of stipulation to the current interpretation of both or either....having

autism is perspecitve and we can not choose interpretations...

http://speakup.today.com

Subject: Re: Questions for Sondra

To: Autism_in_Girls

Date: Monday, December 15, 2008, 10:30 PM

I to also will share at time my memory is of good and sometimes not

and or some times a memory will come to me of only one age areas and

the next time it will be of a same issues but older age group so

wanted of to clarify if things do not always seem consistent with my

response because one in the not too past accused of me of the lying

and so it might appear of that but it isof because of what age my

memroy is of reflecting from.

I to also found I to think it was here or Debi here teached me

the fibromyalgia can interfer with memory and while this is of not a

comfort it is of a better comfort than being of parkinsons and

alzheimers such as the birth mother of me has. her memory is of

severely impacted on some days and much clear on other days.

I to plan as i to shared will be of to try of to take of some video

things of the birth family of me soon because will go to the birth

fathers home for Christmas eve this year. the odd is that while is of

married to the step mom he is of also to invited of the birth mother

of me to hims home each year for christmas too. so it will be of hard

and yet will be of good to get of videos of her and hims and the

sister and brother of me and the two nephews who I to know are of

spectrum. the one will be of 4- or 5 and still says little to no

words and cries much and has of what is of termed flat affect. it

will be of interesting to see the gains or non gains he has maked

because the nephew is of in complete denial of him being of autism

but he is of much like of self at that age of being of a non talker

and having very little awareness and much anxiety. that was of last

year so interested to see of the changes, Hims brother is of much an

aspergers sort of profile.

sondra

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I was wondering if the shower might hurt her. A sensory thing???

> Hi Sondra,

>

> I hope you don't mind me asking you a couple questions. You are always so

> knowledgeable and give a real inside perspective to so many different facets

> of ASD.

>

> My daughter is afraid of the water that comes out of the shower head, but

> she is fine with baths. Were you ever afraid of showers?

>

> Did you learn how to ride a bike or trike? Can you or could you ever ride a

> two-wheeler? My daughter has gotten fairly good with her bike with training

> wheels, but I'm a bit apprehensive about taking off the training wheels to

> try to teach her how to learn to ride a two-wheeler.

>

> Thanks,

>

> Karmen

>

>

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>

> Hi Karmen

>

> i went through training wheels with my girl about a yr ago now. she had

> them for 4 yrs then we took them off and started the teaching of balance

> after 3 hrs she understood she had to sit straight and peddle. i took her to

> the park and let her go for it for 4 hrs, after that its been non stop. the

> problem we have now is she grows and her bike isnt allowed to grow with her.

> it takes about 3 wks for her to understand that the bike is going to grow

> with her.. i wished we did it sooner like 6 months after she got her bike

> with training wheels.

> so my advise is take the training wheels off and she will understand after

> some time and maybe a few meltdowns

>

>

cheers Sonja

>

>

>

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Thanks Sondra,

I appreciate your insight.

Karmen

Re: Questions for Sondra

not have any memory of a fear of showers as a young child but as older

and or teen was to experience a shower and it hurt of my body to have

of the pwoerful feel of water pounding at me, but not know of why or

what happened but now take of showers okay and like of them, but still

cannot stand of the rain to hit of my skin at all as this causes of me

sensory overlaod and even now have of to have a very high motivator in

place for me to go out into the rain or sometimes can talk self into it

for a short time but usually get of strong negative moods later for it.

the only time i to take a bath now is if too cold and want of the body

of me to warm up or plan of to shave as cant shave standing up as not

coordinated to take one foot up as again lose cordinations of self and

tumble over.

about the bike, neverhad of a trike, did be of to have of a bike with

trainer like wheels as a kid but was not good at coordinating of self

to do that well. but as adult did learn of to ride a bike and then

forgot of how and for some reason could not balance of self and or get

of the bike to stay up right but then did of get a bike things that had

of a trailer things that you hooked to it, it was of like a stroller

things and so this helped of balance it out like traniner wheels but

again one summer with a friend found self doing the bike by self and

seemed able to do it and was happy in that but then it was of several

years since then to even be on a bike and so had of to relearn of it,

each time I to relearn of it , I to have of no sense of how to keep the

bike up as when I to try to peddle the bike slowly just falls over and

so cant know of how to keep it up right and such but then with a full

summer practice can ride of it but the next year my brain has of to

relearn of it. Not sure why my brain does not retain of the memory or

skill of bike riding so occasional will sahre here I to just learned to

ride of a bike and will feel happy to only lose it again.

with swimming never had of a lesson , I to just jumped in 12 foot of

water and did of a sloppy sort of doggie paddle and so learned to swim

with no training or learning of this. my learning of things is of so

very uneven some things that seems complex can be of easy for me and

things that others find easy is of hard. and things others have shared

to me once you learn a certain things you do not lose it but for me not

find that to be of true.

same goes with roller skating cant in line or ice skate but with much

practice can balance self to roller skate. but it isof rare for me to

do that now because fear of falling is of strong in me more so now than

for years but had of this same sense of falling as a child.

sondra

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I think the shower is a fear thing. When she was about 18 months old I got a

flat tire during the summer and it was nearly 100 degrees out. I drove the car

slowly to a small service station around the corner from where I'd gotten the

flat, and the mechanic there repaired the tire. The problem was the shop was

not air conditioned and Peri and I were literally baking out in the sun. I kept

trying to cool her with a cool cloth and gave her juices. When we finally got

back home, I just took off both our clothes and hoped into a cool shower. She

was so frightened because I had never done this before and ever since then she

has been fearful of showers. She plays in the sprinkler in the summer, and gets

in her blow up pool, but will NOT get in the shower. But...she does like to put

her hand under the running shower water when I'm about to get in. She's a

quirky kid. Gotta love her.

Karmen

Re: Questions for Sondra

I was wondering if the shower might hurt her. A sensory thing???

> Hi Sondra,

>

> I hope you don't mind me asking you a couple questions. You are always so

> knowledgeable and give a real inside perspective to so many different facets

> of ASD.

>

> My daughter is afraid of the water that comes out of the shower head, but

> she is fine with baths. Were you ever afraid of showers?

>

> Did you learn how to ride a bike or trike? Can you or could you ever ride a

> two-wheeler? My daughter has gotten fairly good with her bike with training

> wheels, but I'm a bit apprehensive about taking off the training wheels to

> try to teach her how to learn to ride a two-wheeler.

>

> Thanks,

>

> Karmen

>

>

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Thanks Sonja,

I've been thinking about taking the training wheels off. I was thinking to get

one of those training poles that attaches to the bike so I would have control of

it while she is learning. If Peri falls and gets a scrape she NEVER get back on

this year. Falling and getting hurt is a big fear issue for her.

Karmen

Re: Questions for Sondra

>

> Hi Karmen

>

> i went through training wheels with my girl about a yr ago now. she had

> them for 4 yrs then we took them off and started the teaching of balance

> after 3 hrs she understood she had to sit straight and peddle. i took her to

> the park and let her go for it for 4 hrs, after that its been non stop. the

> problem we have now is she grows and her bike isnt allowed to grow with her.

> it takes about 3 wks for her to understand that the bike is going to grow

> with her.. i wished we did it sooner like 6 months after she got her bike

> with training wheels.

> so my advise is take the training wheels off and she will understand after

> some time and maybe a few meltdowns

>

>

cheers Sonja

>

>

>

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yes if something triggers a fear to me it may never be of to be of

erased for me until I to understand its logic or it makes of sense to

me in away to take away the fear.

so like of yoy little girl that is of the memory she has of a shower

that she was much so already maybe in a sensory overload and the cold

shower caused a much negative response and to me if was of very hot

and took of cold shower the shock of the very different extremes of

temperature would have caused of me pains to the point of panic and

not ever to like of that again. so she may not ever like of it until

she has of some control over it or it makes of sense to her. you can

both try of to get into you swim suits and see if she will go in to

the shower with you but do not force of it but put some motivating

play ideas there for her to match sort of what she does outside in

the sun and water play. even if it is of only she will allow of her

arm in and or to join at that level of getting into the shower not

force of it but just explain of how it calmly this is of like the

sprinkler outside in the summer but the water comes down instead of

up. show her how you can put you body in and move it back when it is

of too much, show her how you hold of you hands into the water and

then you legs and and such and share how it is warm and is or fun for

you. use of simple words that she might already have of within her as

a receptive understand of the concepts.

get of a new shower head that can make of the water flow in different

flow levels and try to find the one that seems less threatening and

or powerful, also make of sure to have of a mat that causes the water

to not pound to the bottom in a loud painful way if she is of sound

sensitive. Aim of the shower complete to the front and not out so she

can have of much room in the shower out of the reach of the water

pouring down and can reach in at her own pace and safe but also

important do not make of the shower at that poing as a bath/shower

time for cleaning or shampooing but just for play and experiences

because if you try of to bathe of her she may feel overloaded by too

much experiences at one.

sondra

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