Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Thanks ! I'm very glad to have found you guys! I have already found so much of what I have been going through and am very relieved to know I am not alone, and that I am " normal " for Still's! LOL so I thank the whole group for your support! PS, does anyone else hate telling people the name of your disease? No one has EVER heard of this, and I have launch into a huge explanation. Does anyone have any quick ways around this? -Jo In a message dated 8/26/2008 2:58:46 P.M. Eastern Daylight Time, a_cone@... writes: Hi Jo, Some people with Stills also feel bad in the sun like a lot of Lupus people. I think it has to do with some of the meds we take and for some people sun is just draining. Then there are people like me who flourish in the sun. I think your doctor lets you know if you are on meds that require you stay out of the sun. Other than that, it's a personal preference. I notice you said you were new. I'm so sorry you have to be here. You have found a wonderful online family who you can share everything with. Welcome! Houston, TX **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
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