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What do you guys call this? (from Jo)

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Thanks !

I'm very glad to have found you guys! I have already found so much of what

I have been going through and am very relieved to know I am not alone, and

that I am " normal " for Still's! LOL so I thank the whole group for your

support!

PS, does anyone else hate telling people the name of your disease? No one

has EVER heard of this, and I have launch into a huge explanation. Does

anyone have any quick ways around this?

-Jo

In a message dated 8/26/2008 2:58:46 P.M. Eastern Daylight Time,

a_cone@... writes:

Hi Jo,

Some people with Stills also feel bad in the sun like a lot of Lupus

people. I think it has to do with some of the meds we take and for

some people sun is just draining.

Then there are people like me who flourish in the sun. I think your

doctor lets you know if you are on meds that require you stay out of

the sun. Other than that, it's a personal preference.

I notice you said you were new. I'm so sorry you have to be here. You

have found a wonderful online family who you can share everything

with.

Welcome!

Houston, TX

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

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