Re: bladder control

[Guest guest]

Go see your doctor, you may have a urinary tract infection.

Subject: bladder control

To: Autism_in_Girls

Date: Friday, December 12, 2008, 9:20 AM

OK, this is embarrassing, but I really want to know.

Is there anyone on this list or child of a person on this list who is

fully toilet trained and has been for many years, but still has

accidents?

I was toilet trained at the usual age, but I seem to have trouble

holding my urine. The need to pee comes on very strong and the only way

I can hold it is to crouch with my ankle jammed into my crotch. If I

wait long enough, the need will often go away (when I was younger I

used to say 'I don't need to pee anymore' but my mother, knowing that

if I hadn't peed the need was still there, would always insist I try

anyway). Usually when I wet myself I'm trying to get to the bathroom.

Does anyone have any advice?

Ettina

[Guest guest]

ettina I to have of similar issues and it is of embarrassing the things

I to do to help of this is of to train of self to go the bathroom every

3 hours even if not feel teh urge because sometimes we do not recognize

the need to go until it is of too powerful. so this has been to help of

me not have of accidents and i to also wear a pad much so every day to

help with the leaks, because ven now if I to sneeze, cough or laugh or

anythings that causes you to lose of control to hold that muscle it

will cause of me to wet of self some. I to find self grabbing self

there and doing what you descrive with my hand instead of my feet and

sometimes can stop it long enough to not wet of self completely but

will still soak the pad some and so then have of to go back to the

bathroom to change and place new panties on.

if this is of new for you it can be of a bladder infection but if this

is of a histroy of you then it can be of poor muscle control and

recognizing motor responses yet. But training self can help of to go to

the bathroom every 2-3 hours to prevent a build up of urine that comes

too powerful.

sondra

[Guest guest]

I'd go talk to the dr.

You can make sure there are no infections and if not then it could be that

you simply have a weak bladder and they do have medications that can help.

It's very common in women, and increases with age or after having a baby.

I realize you are not an older woman and haven't had a child, but if there

is no infection and you're already having trouble, then it's possible the

problem will just get worse...

One thing you can do to help is the excercise called Kegal's (I think that's

how it's spelled) Where you literally excercise your pelvic muscles by

tightening everything down there as if you were going to stop your urine

mid-stream. Hold it a few seconds and then release... do it over and over

again for a few minutes several times a day.

The best thing is that it can be done nearly anywhere - while watching TV,

reading emails, driving down the road, sitting in the doctors office etc.

Hope you get some relief!

Theresa

>

> OK, this is embarrassing, but I really want to know.

> Is there anyone on this list or child of a person on this list who is

> fully toilet trained and has been for many years, but still has

> accidents?

> I was toilet trained at the usual age, but I seem to have trouble

> holding my urine. The need to pee comes on very strong and the only way

> I can hold it is to crouch with my ankle jammed into my crotch. If I

> wait long enough, the need will often go away (when I was younger I

> used to say 'I don't need to pee anymore' but my mother, knowing that

> if I hadn't peed the need was still there, would always insist I try

> anyway). Usually when I wet myself I'm trying to get to the bathroom.

> Does anyone have any advice?

> Ettina

>

>

>

[Guest guest]

My mother in law had that problem, and there was something wrong with

the structure of her urethra. I don't know exactly what, just that the

muscles weren't working properly and she needed to have surgery to

repair it. I know she tried medications first too.

Anyway, probably not autism related, but see a doctor about it! My MIL

was embarrassed about it for years before she finally would agree to

see someone, and now she has no problems at all. She was too nervous

to talk to her doctor about it (and she's a NURSE and should know better!)

Good luck, and hopefully your doctor will be able to help you easily

Amnesty

>

> OK, this is embarrassing, but I really want to know.

> Is there anyone on this list or child of a person on this list who is

> fully toilet trained and has been for many years, but still has

> accidents?

> I was toilet trained at the usual age, but I seem to have trouble

> holding my urine. The need to pee comes on very strong and the only way

> I can hold it is to crouch with my ankle jammed into my crotch. If I

> wait long enough, the need will often go away (when I was younger I

> used to say 'I don't need to pee anymore' but my mother, knowing that

> if I hadn't peed the need was still there, would always insist I try

> anyway). Usually when I wet myself I'm trying to get to the bathroom.

> Does anyone have any advice?

> Ettina

>

[Guest guest]

Does anyone to know why one would get of strong sting and or like a

sharp shock like pains in the bladder or lower female parts but not the

ovaries area.

I to had of polyps remvoved last year and a fibroid tumor removed too.

I to know been of past due again for the female checks because hate of

them. I will be of to go but hope to not have of to go until march. I

to feel all i to do is of go to doctors and this is of already too much

a load on me to see of them so not want of to add a new appointment in.

Does others here on the spectrum have of much sicknesses and or medical

things. I to feel just so sickly all the time and so was wondering if

others here on spectrum struggle with this too. I to know Kassi seems

to have of much sick too. does you daughters here get of sick much and

or have of much medical things that seem out of the norms for typical

one would expect of being of sick. I to been of a much sick like girl

all of life.

sondra

[Guest guest]

You can get a urologist to do a bladder study where they test various

aspects such as spacticity, leakage/damaged urethra, etc. I have had

similar issues since having babies, I did get a blader lift but it

hasn't helped 100%. Do you have a seizure disorder? Sometims seizures

can affect organs like the bladder.

HTH,

Debi

[Guest guest]

debi are you better now !

sondra

[Guest guest]

Nice to have you back Debi! Glad you are on the mend.

Pennie

Abby's Mom

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[Guest guest]

Yes, Sondra, I am. I just now got home from the hospital, last night I

had posted from my laptop. He said the tumor was the size of a

football/basketball but he thought almost certainly no cancer. The

local pathologist agreed, no cancer. He's sending it to Emory to the

best pathologist in the nation in his opinion, to make sure. But he

says he would be very shocked if they found anything cancerous at all.

I think maybe he's wanting to use it as a journal article but not sure.

Thanks for everyone's support. I'm very sore, they cut me from my

lower rib cage to just above my pubic bone in the front. But I'm doing

better every day, doc said he would expect me to be able to do almost

anything I did within 2 weeks.

Debi

>

> debi are you better now !

> sondra

>

[Guest guest]

> >

> > OK, this is embarrassing, but I really want to know.

> > Is there anyone on this list or child of a person on this list

who is

> > fully toilet trained and has been for many years, but still has

> > accidents?

> > I was toilet trained at the usual age, but I seem to have trouble

> > holding my urine. The need to pee comes on very strong and the

only way

> > I can hold it is to crouch with my ankle jammed into my crotch.

If I

> > wait long enough, the need will often go away (when I was younger

I

> > used to say 'I don't need to pee anymore' but my mother, knowing

that

> > if I hadn't peed the need was still there, would always insist I

try

> > anyway). Usually when I wet myself I'm trying to get to the

bathroom.

> > Does anyone have any advice?

> > Ettina

> >

>

my daughter is 13 and still has accidents.

[Guest guest]

debi do they think this could be of the cause of the odd illness things

you had of the seizure like things and the shaky spells and such the

tumor pushing around vital organs and not letting them work well? sondra

[Guest guest]

He hasn't really said. That's what I think some of it was from, at

least the passing out part. It was pushing my ascending colon (part of

the large intestines that goes up) & kidney to the other side of my

body. I'm hoping my blood pressure will stay normal or closer to

normal now that it's out. My blood pressure has been normal to low

since the removal, don't know yet if is from the pain meds or from the

kidney having space.

Just a strange thing, that's for sure. I used to want a tummy tuck so

bad, now I'm thinking after all this pain that a flabby belly isn't so

bad!

Debi

-

[Guest guest]

well they took of much out of you so you took a very painful way to

diet LOL just playing to the words and thinking of that since you

metnioned of a tummy things. But I to hope that this will improve of

you over all health and maybe the dream you had was of a warning had

this not been of found it would have impacted the health to the point

of you not being in the living so you just were of given an early

christmas gift from the best giver.

hope you are of well soon.

sondra

[Guest guest]

Yes, very funny. But I will take anything to help with weight loss!!

My belly button lost a staple & is dehissing (coming apart) a little

so I'll probably not be on much, have to keep it clean & away from

tension. When I sit straight up it tends to pull at it a little.

Debi

[Guest guest]

Debi, glad to hear you're on the mend. It's amazing the size of the tumor!

It's so surprising to hear that a person could have something that big

inside & not be able to feel it. You don't want the stiched area to heal

tight so you can't stand up straight, so if it's dehissing, doesn't that

mean the dr needs to do something so it won't dehiss when you stand up

straight & that you'll be able to stand normally after it heals? Enjoy

being with your family during the holiday & I hope you're not stressing over

not being able to do your usual holiday stuff.

Marie

> Yes, very funny. But I will take anything to help with weight loss!!

>

> My belly button lost a staple & is dehissing (coming apart) a little

> so I'll probably not be on much, have to keep it clean & away from

> tension. When I sit straight up it tends to pull at it a little.

>

> Debi

>

>

>

>

> ------------------------------------

>

> Autism_in_Girls-subscribe

> ------------------------

> Autism_in_Girls-unsubscribe@...! Groups Links

>

>

>

>

--

Marie A.

[Guest guest]

It's healing. It was pulling apart slightly but I put some stuff on it

& kept it taped really tightly. The standing up I believe is linked

more to the muscles, this was the skin around the belly button. I have

to go see him Monday, if it gets any worse I'll see him before then. I

have on an abdominal binder so it's helping to hold everything in &

take the pressure off the area.

I'm not stressing much over the holiday stuff, I made sure we had

bought for the girls before surgery in case something happened. We may

do one final shopping trip this weekend, and Craig loves doing a

Christmas Eve shopping -- he's nuts!

<g>

Debi

[Guest guest]

Besides keegling, have you researched/tried Judith Bluestone's HANDLE

approach activity called " Crazy Straw " . www.handle.org

>

> OK, this is embarrassing, but I really want to know.

> Is there anyone on this list or child of a person on this list who is

> fully toilet trained and has been for many years, but still has

> accidents?

> I was toilet trained at the usual age, but I seem to have trouble

> holding my urine. The need to pee comes on very strong and the only

way

> I can hold it is to crouch with my ankle jammed into my crotch. If I

> wait long enough, the need will often go away (when I was younger I

> used to say 'I don't need to pee anymore' but my mother, knowing that

> if I hadn't peed the need was still there, would always insist I try

> anyway). Usually when I wet myself I'm trying to get to the bathroom.

> Does anyone have any advice?

> Ettina

>

[Guest guest]

I'm so glad for you that the surgery is behind you, the results look

good, and you're on the mend!

PennY

> >

> > debi are you better now !

> > sondra

> >

>

[Guest guest]

Sondra,

 

I too have had many health issues, some of which you have described.

 

I have had a lot of problems with my abdomen, ovarian cysts, endometriosis,

adhesions, kidney stones...lots of surgeries. 11 in one year and 7 in another.

Not to mention at least one major medical problem a year requiring emergency

room or surgery.

 

I do not know if it is realated to my autism or not. Or if all women have issues

and because I have autism I am more sensitive to internal pain. I can not

tolerate pain.

 

http://speakup.today.com

Subject: Re: bladder control

To: Autism_in_Girls

Date: Friday, December 12, 2008, 6:53 PM

Does anyone to know why one would get of strong sting and or like a

sharp shock like pains in the bladder or lower female parts but not the

ovaries area.

I to had of polyps remvoved last year and a fibroid tumor removed too.

I to know been of past due again for the female checks because hate of

them. I will be of to go but hope to not have of to go until march. I

to feel all i to do is of go to doctors and this is of already too much

a load on me to see of them so not want of to add a new appointment in.

Does others here on the spectrum have of much sicknesses and or medical

things. I to feel just so sickly all the time and so was wondering if

others here on spectrum struggle with this too. I to know Kassi seems

to have of much sick too. does you daughters here get of sick much and

or have of much medical things that seem out of the norms for typical

one would expect of being of sick. I to been of a much sick like girl

all of life.

sondra

[Guest guest]

I experienced this and even wet the bed into my twenties...

 

I read in a magazine about an exersise you can do to strengthen the muscle that

controls the release of urine.

 

When you are in mid stream stop going and then start again. When you figure out

what muscle you need to be using it is pretty easy to exercise this muslce

anytime any where without being on the toilet or peeing your pants.

 

I don't wet the bed anymore and I don't have as urgent need to pee...

 

I had a bladder study done once, I had to pee so bad that I could not pee...I

literally had to sit on the potty and push on my stomach because it would not

come out. To my great relief I was finally able to go, but I could not complete

the final part of the study.

 

Anyhow, this exercise might help you too...

 

http://speakup.today.com

Subject: bladder control

To: Autism_in_Girls

Date: Friday, December 12, 2008, 9:20 AM

OK, this is embarrassing, but I really want to know.

Is there anyone on this list or child of a person on this list who is

fully toilet trained and has been for many years, but still has

accidents?

I was toilet trained at the usual age, but I seem to have trouble

holding my urine. The need to pee comes on very strong and the only way

I can hold it is to crouch with my ankle jammed into my crotch. If I

wait long enough, the need will often go away (when I was younger I

used to say 'I don't need to pee anymore' but my mother, knowing that

if I hadn't peed the need was still there, would always insist I try

anyway). Usually when I wet myself I'm trying to get to the bathroom.

Does anyone have any advice?

Ettina

[Guest guest]

> Sondra,

>  

> I too have had many health issues, some of which you have described.

>  

> I have had a lot of problems with my abdomen, ovarian cysts,

endometriosis, adhesions,

yes have of these things too and have of the cyctitis of the

breast? or somethings of that. Not happy that you have of all this

too but feel less alone knowing you have of much of the same. this

year though to be of thinking of seeking out the gynocologist to

pursue of a surgery to see if it is of possible to do somethings to

fix so not have of so much things to my over all body. I to be fo

responsive to some pains but mostly non responsive to much others and

so it is of a mixed things with me but I to sense of the body not

feeling well more times than not and have of fevers to be of a true

marker that somethings is of not right but cant tell of a doctor

always where the pain sources are/

the doctor of me gave of me a pass now to use for parking closer to

places and I to use of this now when it is of not only a pains things

to me but a sensory such as if not in too much pains but have of to

go out in to the cold much that day my body stressing and tensing due

to hate of the cold and such will then cause the muscles to react and

and then of the nerves and then by night in pains for much days

again. the anxiety of me already causes of me to do this too so it is

of hard to find a calm. I to also hate of the skin feeling hot and

sweating and then only go back to chills in minutes and it cycles

this way all day and night off and on.

sondra

[Guest guest]

This about bladder control is all interesting .I am finally finding time to

write, being up most of the night with my DD who has a cold. She cannot sleep

when she is stuffed up.

She has bladder control issues that I've found no real answer for, though

the medication ( Ditropan) is helping somewhat now. She needs to pee very

frequently, at times it has been thirty or forty times a day. At times she has

gotten up eight or ten times at night to pee. She will sometimes have accidents

and seems unaware that they occurred. She has had many tests for urinary tract

infection and it has never been positive. She was even treated as if she had

one a few times to see if it would help, and it didn't. She had an

ultrasound which was very difficult for her, and it showed a normal bladder.

Interesting thing is, when she had the ultrasound she had to drink and drink,

and it

was very hard for her to hold the pee ( as it has been for me when I had

them!). When she was finally allowed to empty, she peed and peed and then they

did

another ultrasound, and though she said she was empty, the bladder was still

half full. So I felt that meant that she didn't get the signal of when she

is empty, and so she is maybe never able to completely release all the pee and

that is why she has to go so frequently. Also, she has sometimes, not often

, said she hurts there, and yet it seems like it doesn't last long. The

urologist has said a few times that the test where they fill her with dye and

do

imaging would help tell what is going on, but we have agreed over and over

that she would not tolerate it. As it is, it can take four or five adults to

hold her when she has had to undergo procedures like having stitches, and she

vomits from anxiety at dentist and doctor appointments. I don't want to put her

through any trauma that isn't necessary. And since the ultrasound showed

normal bladder and her UTI tests are always negative the urologist isn't too

concerned. So the doctor says she has bladder spasms, and we don't know why.

Tried ditropan over a year ago and I wasn't sure it was helping much, so then

went to detrol and that didn't give lots of relief but did give some, and then

took her off it for a while to see how she did and the frequency went way up.

So after trying to get insurance to cover another med ( can't remember the

name) with no luck, I put her back on ditropan and it does seem to be helping

now. It is not a complete " fix " but it does provide relief. And school has

been told that she should be allowed to go whenever she needs to. She needs to

try to empty when she goes, and I don't know how much of that she

understands or even can feel. I don't like the idea of her being on medication

for this

forever, but I also don't want her to be tortured by so many trips to the

bathroom and have her sleep ( already not the soundest!) to be interrupted.

This has been going on for years. She didn't toilet train for pee until she was

6, though she was able to use a potty at 4 and 5 but also had accidents. I

wish I knew what was really going on and also if it is safe to have her on

this medication long term.

Melinda

**************Make your life easier with all your friends, email, and

favorite sites in one place. Try it now.

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[Guest guest]

I'm having an issue right now with my child that I work with at a

school that she is terrified of the bathrooms. I believe that she sat

on an automatic toilet and has been terrified ever since. But she won't

use the bathrooms at school. And she needs to. When I take her home

after school it really bothers me that she is screaming and crying for

the bathroom but she won't use it at school. I don't want her ending up

wtih a bladder infection or something worse. Her parents are babying

her about the bathroom issue. Just telling her that it's still clean

and she won't walk into a stall or bathroom without having a fit. And

she is crawling on the floor to look up in the stall at the toilet

because she doesn't want to walk in until she knows that it's " clean "

but it's an elementary school and very rarley do kids flush. Then when

she does go she won't flush it. So I have to tell her to flush it and

then she freaks out!. I need some advice as to what to do. Thanks--

>

> OK, this is embarrassing, but I really want to know.

> Is there anyone on this list or child of a person on this list who is

> fully toilet trained and has been for many years, but still has

> accidents?

> I was toilet trained at the usual age, but I seem to have trouble

> holding my urine. The need to pee comes on very strong and the only

way

> I can hold it is to crouch with my ankle jammed into my crotch. If I

> wait long enough, the need will often go away (when I was younger I

> used to say 'I don't need to pee anymore' but my mother, knowing that

> if I hadn't peed the need was still there, would always insist I try

> anyway). Usually when I wet myself I'm trying to get to the bathroom.

> Does anyone have any advice?

> Ettina

>

[Guest guest]

Also, have you tried starting out small with walking in for so many

seconds without getting on the floor & standing, then leaving, then

adding time she has to stay in standing? Given her air freshener if

the odors are too bad, tried to take her to a teacher-only toilet? I

know our school has one that is only one stall, actually a water

closet of sorts. Maybe her having one that is " just her's " for a while

while working on the other stuff could be doable?

No easy answers.

Debi

[Guest guest]

take her to the bathroom at quiet times of its use and allow her

space and check to assure the toilet is of already flushed (if it is

not DO NOT flush of it in her presence)and to assure the stall is of

clean and when you find of one then encourage of her to use that one.

if she is of fearful of germs and yucky things in that bathroom try

of allowing her to wear magic gloves(of the latex sorts) to help her

feel cleaner/ if she likes of this sort of things.

then allow of her the privacy to use the bathroom,,,, do not

encourage flushing but encourage of use.... and then when she is of

done if she is of able to step out of the stall and or bathroom okay

then you flush of it if you feel the need too.

the goal will be of to just get her going not the other parts of

using the bathroom as that will be of not an issues of this task but

the teaching of to go is of the task. as she builds of skills and

safe then you can be of to add a new task with the going so that the

task are of broken down into safe easily managed tasks.

my children several of them were of really strongly adversive to

public toilets too. My missy was visually and smell defensive and so

will not go into a public place for years but now can go in a public

place to pee but not of the other things.

My son is of this too he will not go except to pee in a toilet but if

he has of to do more he will not go unless home.

as for self the automatic toilets cause of me great stress too

because they go off when you do not expect of it and or at times even

before you are of done and this causes me anxiety to them and they

are of loud and the bathroom walls and stalls make the noise

intensified and echoey/.

sondra