Re: bladder control

[Guest guest]

At 17, my daughter will not go to the restrooms at school or in a store.

She doesn't like the echo sound in there and the flushing of the toilet I

too much for her. At home, if he does flush, she will hit the lever and

bolt from the room closing the door behind her. It is very much a sensory

issue for her.

We haven't been able to completely overcome this problem and are always

looking for ways to deal with it. Perhaps someone else on the list can

offer the two of us some help along the way.

Dianna

Annie's mother

-- Re: bladder control

I'm having an issue right now with my child that I work with at a

school that she is terrified of the bathrooms. I believe that she sat

on an automatic toilet and has been terrified ever since. But she won't

use the bathrooms at school. And she needs to. When I take her home

after school it really bothers me that she is screaming and crying for

the bathroom but she won't use it at school. I don't want her ending up

wtih a bladder infection or something worse. Her parents are babying

her about the bathroom issue. Just telling her that it's still clean

and she won't walk into a stall or bathroom without having a fit. And

she is crawling on the floor to look up in the stall at the toilet

because she doesn't want to walk in until she knows that it's " clean "

but it's an elementary school and very rarley do kids flush. Then when

she does go she won't flush it. So I have to tell her to flush it and

then she freaks out!. I need some advice as to what to do. Thanks--

>

> OK, this is embarrassing, but I really want to know.

> Is there anyone on this list or child of a person on this list who is

> fully toilet trained and has been for many years, but still has

> accidents?

> I was toilet trained at the usual age, but I seem to have trouble

> holding my urine. The need to pee comes on very strong and the only

way

> I can hold it is to crouch with my ankle jammed into my crotch. If I

> wait long enough, the need will often go away (when I was younger I

> used to say 'I don't need to pee anymore' but my mother, knowing that

> if I hadn't peed the need was still there, would always insist I try

> anyway). Usually when I wet myself I'm trying to get to the bathroom.

> Does anyone have any advice?

> Ettina

>

[Guest guest]

dianna if she is of sound defensive one can buy of over the ear sort of

sound cancellations systems she can use for the bathroom only times and

so when she is of going in she can put them on and use the bathroom and

then flush and such with minimal echoing and sounds. this might help.

sondra

[Guest guest]

They put me on ditropan too, I had a harder time using the muscles to go and

could not empty my bladder completely on this medication...

 

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Subject: Re: Re: bladder control

To: Autism_in_Girls

Date: Wednesday, December 17, 2008, 2:15 AM

This about bladder control is all interesting .I am finally finding time to

write, being up most of the night with my DD who has a cold. She cannot sleep

when she is stuffed up.

She has bladder control issues that I've found no real answer for, though

the medication ( Ditropan) is helping somewhat now. She needs to pee very

frequently, at times it has been thirty or forty times a day. At times she has

gotten up eight or ten times at night to pee. She will sometimes have accidents

and seems unaware that they occurred. She has had many tests for urinary tract

infection and it has never been positive. She was even treated as if she had

one a few times to see if it would help, and it didn't. She had an

ultrasound which was very difficult for her, and it showed a normal bladder..

Interesting thing is, when she had the ultrasound she had to drink and drink,

and it

was very hard for her to hold the pee ( as it has been for me when I had

them!). When she was finally allowed to empty, she peed and peed and then they

did

another ultrasound, and though she said she was empty, the bladder was still

half full. So I felt that meant that she didn't get the signal of when she

is empty, and so she is maybe never able to completely release all the pee and

that is why she has to go so frequently. Also, she has sometimes, not often

, said she hurts there, and yet it seems like it doesn't last long. The

urologist has said a few times that the test where they fill her with dye and do

imaging would help tell what is going on, but we have agreed over and over

that she would not tolerate it. As it is, it can take four or five adults to

hold her when she has had to undergo procedures like having stitches, and she

vomits from anxiety at dentist and doctor appointments. I don't want to put her

through any trauma that isn't necessary. And since the ultrasound showed

normal bladder and her UTI tests are always negative the urologist isn't too

concerned. So the doctor says she has bladder spasms, and we don't know why..

Tried ditropan over a year ago and I wasn't sure it was helping much, so then

went to detrol and that didn't give lots of relief but did give some, and then

took her off it for a while to see how she did and the frequency went way up.

So after trying to get insurance to cover another med ( can't remember the

name) with no luck, I put her back on ditropan and it does seem to be helping

now. It is not a complete " fix " but it does provide relief. And school has

been told that she should be allowed to go whenever she needs to. She needs to

try to empty when she goes, and I don't know how much of that she

understands or even can feel. I don't like the idea of her being on medication

for this

forever, but I also don't want her to be tortured by so many trips to the

bathroom and have her sleep ( already not the soundest!) to be interrupted.

This has been going on for years. She didn't toilet train for pee until she was

6, though she was able to use a potty at 4 and 5 but also had accidents. I

wish I knew what was really going on and also if it is safe to have her on

this medication long term.

Melinda

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m00000010)

[Guest guest]

I think for me the tumor I had must have been causing my bladder

problems. I have not had the first urgency issue or incontinence. For

those of you suffering with it, have you considered your bladder may

be structurally too low or have pressure...any of you overweight? I'm

still fat but it's like all issues regarding urination are gone. I had

a cystopexy I think 3 yrs ago but it didn't seem to take after a few

months. Maybe it wasn't the tumor but the anesthesia/meds slowing my

nervous system? I dunno, been off the pain meds completely for a

couple of days but maybe there's some residual effect?

What ever it is, I can say it's been a wonderful side effect to not

have bladder problems!

Debi

[Guest guest]

In a message dated 12/20/2008 12:28:45 P.M. Eastern Standard Time,

jessicaleeannjones@... writes:

When they were removed much of my pain went away.

glad to hear the pain is gone. you poor women go though so much

eric abbys dad

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[Guest guest]

I have not had the cysts in my breasts yet; however, my mother gets these types

of cysts in her breasts and in her legs, to the point that they have to be

removed. She had breast cancer and some of the cysts are cancerous.

 

I think once I got a doctor to finally listen to me, and got that surgery to

remove the adhesions from all of my organs and the sides of my body. Sometimes I

would get buring and sharp pain in my abdomen from twisting, bending, rolling

over in bed, and the like. This was the adhesions tearing and was very painful.

I wish I had the picture, it looks like a bunch of spider webs in my tummy. When

they were removed much of my pain went away. There were some areas he could not

get to that he did in a later, more evasive surgery.

 

I wish you luck, it sounds like you are going through meno pause with the hot

flashes. Maybe you could get on a natural estergen suppliment or something, I

don't know much about that sort of thing, but am sure someone could point you in

the right direction.

 

http://speakup.today.com

http://psychology.today.com

Subject: Re: bladder control

To: Autism_in_Girls

Date: Tuesday, December 16, 2008, 4:54 PM

> Sondra,

>  

> I too have had many health issues, some of which you have described.

>  

> I have had a lot of problems with my abdomen, ovarian cysts,

endometriosis, adhesions,

yes have of these things too and have of the cyctitis of the

breast? or somethings of that. Not happy that you have of all this

too but feel less alone knowing you have of much of the same. this

year though to be of thinking of seeking out the gynocologist to

pursue of a surgery to see if it is of possible to do somethings to

fix so not have of so much things to my over all body. I to be fo

responsive to some pains but mostly non responsive to much others and

so it is of a mixed things with me but I to sense of the body not

feeling well more times than not and have of fevers to be of a true

marker that somethings is of not right but cant tell of a doctor

always where the pain sources are/

the doctor of me gave of me a pass now to use for parking closer to

places and I to use of this now when it is of not only a pains things

to me but a sensory such as if not in too much pains but have of to

go out in to the cold much that day my body stressing and tensing due

to hate of the cold and such will then cause the muscles to react and

and then of the nerves and then by night in pains for much days

again. the anxiety of me already causes of me to do this too so it is

of hard to find a calm. I to also hate of the skin feeling hot and

sweating and then only go back to chills in minutes and it cycles

this way all day and night off and on.

sondra

[Guest guest]

Are they like the ones they use at firing ranges? Sometimes I see TV movies

of people firing guns with big ear protectors on. Is that what you are

talking about?

Dianna

-- Re: bladder control

dianna if she is of sound defensive one can buy of over the ear sort of

sound cancellations systems she can use for the bathroom only times and

so when she is of going in she can put them on and use the bathroom and

then flush and such with minimal echoing and sounds. this might help.

sondra

[Guest guest]

diana yes they can be but there are many different styles and forms of

them so try to find one she is of okay with.

sondra