Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 I'm sorry to hear al of this ...I'm new to the group and don't know what might have happened but I promise I will always chime in if I feel I can contribute to the question or just offer a king word. Here is a hug for you girly! Mandi Florida In a message dated 2/13/2008 4:54:46 P.M. Eastern Standard Time, steelewendy@... writes: Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. I am wondering if this is because you think we are ignorant and dont need to know, or maybe its because the questions and problems have been discussed and answered at length in the past, or is because we dont join in the general chit chat of everyday life that we are being ignored. When we first found the site we both expressed our relief and gratitude at finding others withs illness but neither of us realised how easy it would be to not only feel ignored and shunned by doctors etc. but also by the very people who proclaim to support others. I hate to say it but as I type this I am crying because I feel so let down and alone again similar to how we both felt at the start of this horrible journey. Why is only the few that get help and support????? UK --------------------------------- Sent from Yahoo! & #45; a smarter inbox. [Non-text portions of this message have been removed] **************The year's hottest artists on the red carpet at the Grammy Awards. Go to AOL Music. (http://music.aol.com/grammys?NCID=aolcmp00300000002565) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. I am wondering if this is because you think we are ignorant and dont need to know, or maybe its because the questions and problems have been discussed and answered at length in the past, or is because we dont join in the general chit chat of everyday life that we are being ignored. When we first found the site we both expressed our relief and gratitude at finding others withs illness but neither of us realised how easy it would be to not only feel ignored and shunned by doctors etc. but also by the very people who proclaim to support others. I hate to say it but as I type this I am crying because I feel so let down and alone again similar to how we both felt at the start of this horrible journey. Why is only the few that get help and support????? UK --------------------------------- Sent from Yahoo! & #45; a smarter inbox. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hi Sometimes I post and do not get a response - everyone on this forum are just ordinary people with Stills who do their best to pass on help - keep posting your questions and I sure someone will be able to help or suggest action, Roy from Rugby (UK) upset anyone Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. I am wondering if this is because you think we are ignorant and dont need to know, or maybe its because the questions and problems have been discussed and answered at length in the past, or is because we dont join in the general chit chat of everyday life that we are being ignored. When we first found the site we both expressed our relief and gratitude at finding others withs illness but neither of us realised how easy it would be to not only feel ignored and shunned by doctors etc. but also by the very people who proclaim to support others. I hate to say it but as I type this I am crying because I feel so let down and alone again similar to how we both felt at the start of this horrible journey. Why is only the few that get help and support????? UK --------------------------------- Sent from Yahoo! & #45; a smarter inbox. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hi , To my knowledge you and Phil have done nothing wrong! Sometimes there's just so many messages happening that some seem to get lost in the fray. other times maybe people just don't have an answer and don't know what to say thinking someone else will respond. it's happened to all of us at some time or another - we come here needing solace and comfort and we don't find it. It always seems that at our most vunerable times is when we can't seem to find the comfort we seek. Post again with your questions. You never know who read or did not read messages that day, so it might spark something in someone new who has an answer for you. I do hope Phil is doing better. Houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Hi , No you haven't done or said anything. I haven't been responding to most questions, because frankly, I've been so tired. My candle is burning at both ends. Maybe you could ask your questions again...because to be honest, I don't even remember what they were. I'm sorry we let you down, but please don't take it personally. Sometimes, I just do what I can to survive my life and don't have the energy to respond. I'll try to do better. Please feel better. I love you guys and appreciate what you say. I've often marvelled at what a wonderful wife you are to Phill. Til' later. in TX upset anyone Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. I am wondering if this is because you think we are ignorant and dont need to know, or maybe its because the questions and problems have been discussed and answered at length in the past, or is because we dont join in the general chit chat of everyday life that we are being ignored. When we first found the site we both expressed our relief and gratitude at finding others withs illness but neither of us realised how easy it would be to not only feel ignored and shunned by doctors etc. but also by the very people who proclaim to support others. I hate to say it but as I type this I am crying because I feel so let down and alone again similar to how we both felt at the start of this horrible journey. Why is only the few that get help and support????? UK --------------------------------- Sent from Yahoo! & #45; a smarter inbox. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 , Sorry to hear you did not get a reply. Like others have stated sometimes a post just gets missed in the reading. Post the questions again. I will respond even if the only answer I have is " I do not know. " No one wants you and Phil to feel left out. Keeping you in my prayers, Steele wrote: Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. UK Recent Activity 8 New Members Visit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Early Detection Know the symptoms of breast cancer. Sell Online Start selling with our award-winning e-commerce tools. . --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 , Was this the question about the blisters? Phil is on MTX and what is known as Embril over her on this side of the pond and also painful injection sites? I remember reading the question and thinking about it, but did not have anything to offer in suggestions. I am on MTX (oral) and Remicade. Most of my issues with MTX are the tiredness for about 18 hours after my dose each week. Sorry, but just did not want to muddy the water with input. Tom from PA > > Hi everyone at the Stills SUPPORT group. > > I was wondering if either myself or Phill have said anything to upset any or all of you. > > Why is only the few that get help and support????? > > UK > > > --------------------------------- > Sent from Yahoo! & #45; a smarter inbox. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 , Phil, I am so so sorry I haven't been there for you. I have been off line for about two weeks, sick and trying to take care of my dog that hurt herself. Please know that when I do come back online more religiously, I will support you whole-heartedly!. I'm still sick and will be out for the count for a few days as I'm trying to make sure I'm healthy enough for a trip to FL with my husband and parents at the end of next week, so I may not be on-line much until the beginning of March. Take care all. Hugs, -- upset anyone Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. I am wondering if this is because you think we are ignorant and dont need to know, or maybe its because the questions and problems have been discussed and answered at length in the past, or is because we dont join in the general chit chat of everyday life that we are being ignored. When we first found the site we both expressed our relief and gratitude at finding others withs illness but neither of us realised how easy it would be to not only feel ignored and shunned by doctors etc. but also by the very people who proclaim to support others. I hate to say it but as I type this I am crying because I feel so let down and alone again similar to how we both felt at the start of this horrible journey. Why is only the few that get help and support????? UK --------------------------------- Sent from Yahoo! & #45; a smarter inbox. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 & Phill, Please accept my deepest apologies! I never meant to ignore your posts and certainly hope that you will continue to seek out advice and support from this group. Gail (KY) Steele wrote: Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. I am wondering if this is because you think we are ignorant and dont need to know, or maybe its because the questions and problems have been discussed and answered at length in the past, or is because we dont join in the general chit chat of everyday life that we are being ignored. When we first found the site we both expressed our relief and gratitude at finding others withs illness but neither of us realised how easy it would be to not only feel ignored and shunned by doctors etc. but also by the very people who proclaim to support others. I hate to say it but as I type this I am crying because I feel so let down and alone again similar to how we both felt at the start of this horrible journey. Why is only the few that get help and support????? UK --------------------------------- Sent from Yahoo! & #45; a smarter inbox. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 and Phill I am sorry I did not say any thing to you folks . as I am sure you know this is not always a fun ride living with stills . I my self have been down a lot of late and well just do not respond to to many post even tho i read almost all of them . never take it personal as here is at lest for me the only place i find support with people that understand . I never say to much as I know how it effects each of us is also so different and yet always seams the same so please please never stop trying as some day you may even get this red neck to post again LOL hugs to ya both the redneck Marty " This year will go down in history. For the first time, a civilized nation has full gun registration! Our streets will be safer, our police more efficient, and the world will follow our lead into the future. " Adolf Hitler, 1935 " Waiting periods are only a step. Registration is only a step. The prohibition of private firearms is the goal. " Janet Reno as United States attorney general in the Clinton white house (now do we really want Hillary there to?) " We can't be so fixated on our desire to preserve the rights of ordinary Americans... " Bill Clinton Stills ; An illness I know to well! To learn about Stills http://www.stillsdisease.org/stills_info To donate http://www.stillsdisease.org/donations ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 and Phil, Please accept my apologies for not posting sooner, but please don't feel alone or as an outcast in the group. Like myself, I do not get online everyday, but I do try to post if and when I feel that I can offer some advice. I have been having difficulties with my own health and family issues at the moment. So for me to post as not been as often as I should. I myself feel alone somedays by my own family and also simply because most do not under- stand this horrible dragon we all live with each day. It has only been in the past few months that I realized that I personally did not fully understand full impact of this disease and was unable to express to those around me that I needed help and understanding. If it is of any comfort, please give me a day or so more and I will review the previous emails to post a response to your questions. And also know that we are a family here with far reaching arms for hugs and smiles to provide some level of support to you and others. Much love and hugs, Tracilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 & Phill well pilgrim,, there is times the world is going so fast the chain starts jummping the gears. The Key is to slow down and look around you. I want to say sorry for missing your question. My chain was jumping the tracks....lol... hang in there... Alan.......... Re: upset anyone & Phill, Please accept my deepest apologies! I never meant to ignore your posts and certainly hope that you will continue to seek out advice and support from this group. Gail (KY) Steele wrote: Hi everyone at the Stills SUPPORT group. I was wondering if either myself or Phill have said anything to upset any or all of you. We have both posted questions to the site asking for SUPPORT & Advice, sadly nothing was returned. I am wondering if this is because you think we are ignorant and dont need to know, or maybe its because the questions and problems have been discussed and answered at length in the past, or is because we dont join in the general chit chat of everyday life that we are being ignored. When we first found the site we both expressed our relief and gratitude at finding others withs illness but neither of us realised how easy it would be to not only feel ignored and shunned by doctors etc. but also by the very people who proclaim to support others. I hate to say it but as I type this I am crying because I feel so let down and alone again similar to how we both felt at the start of this horrible journey. Why is only the few that get help and support????? UK --------------------------------- Sent from Yahoo! & #45; a smarter inbox. Quote Link to comment Share on other sites More sharing options...
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