Re: Devyn's Xray yesterday

[Guest guest]

Glad to hear he is holding under 10 degrees! Keep us posted on the Chari. I'll be thinking of you and will say a prayer for little Devyn.

Jill

Subject: Devyn's Xray yesterdayTo: infantile_scoliosis Date: Friday, October 17, 2008, 10:21 AM

Hello Everyone,Have been very busy the last couple of weeks and haven't been able to respond to any posts. I wanted to let everyone know about devyn's appointment yesterday. He bounced from being completely straight back to 5 degrees. His doc said this is normal and anything under 10 degrees is considered in the normal range. He said lets go three or four months for the next xray unless we see that his back is changing and then come in sooner. He started school a couple weeks ago when he turned 3. We are a little concerned that his Chiari Malformation may be growing back. He had a headache last week at school and is having a few pee accidents a couple times a week. I am in the process of contacting his Neurosurgeon for an appointment. I will let everyone know what happens after we go to the doctor.Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari

Malformation__________________________________________________

[Guest guest]

I'm so sorry and will be praying that everything goes well. Hugs, Steph

Subject: Devyn's Xray yesterdayTo: infantile_scoliosis Date: Friday, October 17, 2008, 2:21 PM

Hello Everyone,Have been very busy the last couple of weeks and haven't been able to respond to any posts. I wanted to let everyone know about devyn's appointment yesterday. He bounced from being completely straight back to 5 degrees. His doc said this is normal and anything under 10 degrees is considered in the normal range. He said lets go three or four months for the next xray unless we see that his back is changing and then come in sooner. He started school a couple weeks ago when he turned 3. We are a little concerned that his Chiari Malformation may be growing back. He had a headache last week at school and is having a few pee accidents a couple times a week. I am in the process of contacting his Neurosurgeon for an appointment. I will let everyone know what happens after we go to the doctor.Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari

Malformation__________________________________________________

[Guest guest]

Hi Rochelle,I know it was news you did not want to hear about his curve, BUT 5 degrees is still so low!Sorry to hear about the Chiari.......I will be praying about that.Please keep us posted.TashaMommy of twin boys- and 3 years oldFort Worth, Texas is 7.5 degrees and brace free during the day!!!Casting 14 months and bracing 10 monthsSubject: Devyn's Xray yesterdayTo: infantile_scoliosis Date: Friday, October 17, 2008, 9:21 AM

Hello Everyone,

Have been very busy the last couple of weeks and haven't been

able to respond to any posts. I wanted to let everyone know about

devyn's appointment yesterday. He bounced from being completely

straight back to 5 degrees. His doc said this is normal and anything

under 10 degrees is considered in the normal range. He said lets go

three or four months for the next xray unless we see that his back is

changing and then come in sooner. He started school a couple weeks ago

when he turned 3. We are a little concerned that his Chiari

Malformation may be growing back. He had a headache last week at school

and is having a few pee accidents a couple times a week. I am in the

process of contacting his Neurosurgeon for an appointment. I will let

everyone know what happens after we go to the doctor.

Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari Malformation

__________________________________________________

[Guest guest]

We'll be thinking of you & your little guy & hoping for the best!

Jay

Subject: Devyn's Xray yesterdayTo: infantile_scoliosis Date: Friday, October 17, 2008, 9:21 AM

Hello Everyone,Have been very busy the last couple of weeks and haven't been able to respond to any posts. I wanted to let everyone know about devyn's appointment yesterday. He bounced from being completely straight back to 5 degrees. His doc said this is normal and anything under 10 degrees is considered in the normal range. He said lets go three or four months for the next xray unless we see that his back is changing and then come in sooner. He started school a couple weeks ago when he turned 3. We are a little concerned that his Chiari Malformation may be growing back. He had a headache last week at school and is having a few pee accidents a couple times a week. I am in the process of contacting his Neurosurgeon for an appointment. I will let everyone know what happens after we go to the doctor.Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari

Malformation__________________________________________________

[Guest guest]

Tasha

We are not so worried about the curve it just is something to

watch. It could be a sign that the chiari has started to grow back

the two come together hand in hand, that is why they think his could

be considered congenital. When the chiari grows back it starts to

push on the spine again and most children with chiari have scoliosis

and after decompression it usually resolves if it is a small curve.

Larger curves like the one Devyn first had usually need help on

correcting. It is just another thing that tells us it is time for an

appointment to see if the chiari has come back. Thanks for thinking

of us.

Rochelle

>

> Subject: Devyn's Xray yesterday

> To: infantile_scoliosis

> Date: Friday, October 17, 2008, 9:21 AM

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> Hello Everyone,

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> Have been very busy the last couple of weeks and haven't

been

>

> able to respond to any posts. I wanted to let everyone know about

>

> devyn's appointment yesterday. He bounced from being completely

>

> straight back to 5 degrees. His doc said this is normal and

anything

>

> under 10 degrees is considered in the normal range. He said lets go

>

> three or four months for the next xray unless we see that his back

is

>

> changing and then come in sooner. He started school a couple weeks

ago

>

> when he turned 3. We are a little concerned that his Chiari

>

> Malformation may be growing back. He had a headache last week at

school

>

> and is having a few pee accidents a couple times a week. I am in

the

>

> process of contacting his Neurosurgeon for an appointment. I will

let

>

> everyone know what happens after we go to the doctor.

>

>

>

> Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari Malformation

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[Guest guest]

Steph and Jay

Thank you i will update as soon as we have an appointment as

everyone knows MRI's usually take time to get an appointment.

Rochelle

>

>

> Subject: Devyn's Xray yesterday

> To: infantile_scoliosis

> Date: Friday, October 17, 2008, 9:21 AM

>

>

>

>

>

>

> Hello Everyone,

> Have been very busy the last couple of weeks and haven't been

> able to respond to any posts. I wanted to let everyone know about

> devyn's appointment yesterday. He bounced from being completely

> straight back to 5 degrees. His doc said this is normal and

anything

> under 10 degrees is considered in the normal range. He said lets go

> three or four months for the next xray unless we see that his back

is

> changing and then come in sooner. He started school a couple weeks

ago

> when he turned 3. We are a little concerned that his Chiari

> Malformation may be growing back. He had a headache last week at

school

> and is having a few pee accidents a couple times a week. I am in

the

> process of contacting his Neurosurgeon for an appointment. I will

let

> everyone know what happens after we go to the doctor.

>

> Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari Malformation

>

>

>

>

>

>

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> __________________________________________________

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[Guest guest]

Rochelle,Thanks so much for explaining all that. I wondered if the 2 went together. Keep us posted and I will be thinking about you guys.TashaMommy of twin boys- and 3 years oldFort Worth, Texas is 7.5 degrees and brace free during the day!!!Casting 14 months and bracing 10 monthsSubject: Re: Devyn's Xray yesterdayTo: infantile_scoliosis Date: Saturday, October 18, 2008, 10:12 AM

Tasha

We are not so worried about the curve it just is something to

watch. It could be a sign that the chiari has started to grow back

the two come together hand in hand, that is why they think his could

be considered congenital. When the chiari grows back it starts to

push on the spine again and most children with chiari have scoliosis

and after decompression it usually resolves if it is a small curve.

Larger curves like the one Devyn first had usually need help on

correcting. It is just another thing that tells us it is time for an

appointment to see if the chiari has come back. Thanks for thinking

of us.

Rochelle

> From: Rochelle West /Devyn West <coolesttwinkie@ ...>

> Subject: [infantile_scoliosi s] Devyn's Xray yesterday

> To: infantile_scoliosis @yahoogroups. com

> Date: Friday, October 17, 2008, 9:21 AM

>

>

>

>

>

>

>

>

>

>

>

> Hello Everyone,

>

> Have been very busy the last couple of weeks and haven't

been

>

> able to respond to any posts. I wanted to let everyone know about

>

> devyn's appointment yesterday. He bounced from being completely

>

> straight back to 5 degrees. His doc said this is normal and

anything

>

> under 10 degrees is considered in the normal range. He said lets go

>

> three or four months for the next xray unless we see that his back

is

>

> changing and then come in sooner. He started school a couple weeks

ago

>

> when he turned 3. We are a little concerned that his Chiari

>

> Malformation may be growing back. He had a headache last week at

school

>

> and is having a few pee accidents a couple times a week. I am in

the

>

> process of contacting his Neurosurgeon for an appointment. I will

let

>

> everyone know what happens after we go to the doctor.

>

>

>

> Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari Malformation

>

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> ____________ _________ _________ _________ _________ __

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[Guest guest]

Landon's curve went from zero after casting to 12 degrees at his last appt a couple months ago. We have a MRI scheduled December 4th for a follow up to his Chiari surgery (decompression done Feb 08). I wake up at night terrified the Chiari is not gone and that is why his curve is coming back. I will be praying everything checks out ok with Devyn. Please keep me posted.

Tammy

mom to Landon 2 yrs ~ Infantile Scoliosis & Chiari Malformation

Devyn's Xray yesterday

Hello Everyone,Have been very busy the last couple of weeks and haven't been able to respond to any posts. I wanted to let everyone know about devyn's appointment yesterday. He bounced from being completely straight back to 5 degrees. His doc said this is normal and anything under 10 degrees is considered in the normal range. He said lets go three or four months for the next xray unless we see that his back is changing and then come in sooner. He started school a couple weeks ago when he turned 3. We are a little concerned that his Chiari Malformation may be growing back. He had a headache last week at school and is having a few pee accidents a couple times a week. I am in the process of contacting his Neurosurgeon for an appointment. I will let everyone know what happens after we go to the doctor.Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari Malformation

[Guest guest]

Tammy

I will let you know when we have aour appointment scheduled.

Please let me know what Landon's MRI shows in December. He was at

zero in his brace in May and then went to 9 degrees with no brace for

a month, then in August was at zero again without a brace and now two

months later back to 5degrees. He is having a lot of potty accidents

and has been potty trained since July. The accidents started about 2

and 1/2 weeks ago. We asked him today if it just comes out or if he

knows he has to go potty. He said it just comes out and it's an

accident. This is where we are concerned. Just little key factors to

say it is time for an MRI. Plese keep me posted on Landon.

Rochelle

>

> Landon's curve went from zero after casting to 12 degrees at his

last appt a couple months ago. We have a MRI scheduled December 4th

for a follow up to his Chiari surgery (decompression done Feb 08). I

wake up at night terrified the Chiari is not gone and that is why his

curve is coming back. I will be praying everything checks out ok

with Devyn. Please keep me posted.

>

>

> Tammy

> mom to Landon 2 yrs ~ Infantile Scoliosis & Chiari Malformation

>

>

>

>

>

> Devyn's Xray yesterday

>

>

> Hello Everyone,

> Have been very busy the last couple of weeks and haven't been

> able to respond to any posts. I wanted to let everyone know about

> devyn's appointment yesterday. He bounced from being completely

> straight back to 5 degrees. His doc said this is normal and

anything

> under 10 degrees is considered in the normal range. He said lets

go

> three or four months for the next xray unless we see that his

back is

> changing and then come in sooner. He started school a couple

weeks ago

> when he turned 3. We are a little concerned that his Chiari

> Malformation may be growing back. He had a headache last week at

school

> and is having a few pee accidents a couple times a week. I am in

the

> process of contacting his Neurosurgeon for an appointment. I will

let

> everyone know what happens after we go to the doctor.

>

> Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari

Malformation

>

[Guest guest]

Tammy,

Just wanted to wish you well... I will be thinking of you... Steph

Subject: Re: Devyn's Xray yesterdayTo: infantile_scoliosis Date: Sunday, October 19, 2008, 3:02 AM

Landon's curve went from zero after casting to 12 degrees at his last appt a couple months ago. We have a MRI scheduled December 4th for a follow up to his Chiari surgery (decompression done Feb 08). I wake up at night terrified the Chiari is not gone and that is why his curve is coming back. I will be praying everything checks out ok with Devyn. Please keep me posted.

Tammy

mom to Landon 2 yrs ~ Infantile Scoliosis & Chiari Malformation

[infantile_scoliosi s] Devyn's Xray yesterday

Hello Everyone,Have been very busy the last couple of weeks and haven't been able to respond to any posts. I wanted to let everyone know about devyn's appointment yesterday. He bounced from being completely straight back to 5 degrees. His doc said this is normal and anything under 10 degrees is considered in the normal range. He said lets go three or four months for the next xray unless we see that his back is changing and then come in sooner. He started school a couple weeks ago when he turned 3. We are a little concerned that his Chiari Malformation may be growing back. He had a headache last week at school and is having a few pee accidents a couple times a week. I am in the process of contacting his Neurosurgeon for an appointment. I will let everyone know what happens after we go to the doctor.Rochelle mom to Devyn 3yrs Infantile Scoliosis, Chiari

Malformation__________________________________________________