Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Welcome back Colleen! I am so glad to hear you had a great time on your Alaskan Cruise, and that you felt good. The flares can be so frustrating, can't they? Emotional stress can certainly wreak havoc with our healing. I have experienced it myself, and all I can say is take that time to take care of yourself, and have positive, kind and good thoughts. Negativity can bring you down so fast, and it just isn't worth it. I have had experiences where emotional stress can feel like a chain dragging you down to a deep, dark pit, and hallelujah, thank God for His mercies, for they are new every morning! I hope that you have faith to give you hope....we all need hope. You are very lucky to have your blood work come back normal. I think those like you who have no abnormalities have a much better chance for complete healing--it all just takes time. Keep writing, as we love to hear from you, and want to be there for you now...especially with your husband gone. I'm really sorry about that, Colleen. Hugs, Patty ----- Original Message ----- From: cricket5641000 Sent: Thursday, September 04, 2003 2:02 PM Subject: Hi, everyone Well Im back from Alaska. The cruise was wonderful, we had such a great time. And I felt pretty good. Boy alot has changed since I've been gone. There are so many new members. And even a member with the same name as me.I had a really bad flar up last week, that put me down, but I am feeling better now. The flars seem to get shorter and shorter. I know that the stress that I am under since my husband left has not helped in my healing, and I am trying to relax and take it easy. (this is so hard for me to do) My mind won't shut off and right now I don't think it would be to bad to have a little brain fog going on.Still get that dam burning skin....................my blood cells are a mess again but Doctor Brodsky told me that its the stress that I am under. All my blood work from the RH doctor came back normal so that is good news.Colleen (Cricket) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Kellie, Hang in there; friends are praying for you two. > I haven't posted in awhile......decided that it was probably about time, it > s all piling up! > > has one shot left on his 48 weeks of treatment. It's been ugly...and > now they are suggesting the possibility of keeping him on longer. He may > have to take charge and demand at the least, a break for awhile. He's been > undetectable since 10 weeks, but the Doctors are cautiously optimistic. > > So, a biopsy was ordered and because of the varices, they opted for a > transjugular biopsy, which was not successful. So, just as things are > getting insanely overwhelming, they are ordering a regular needle biopsy > which will require a 2 day hospital stay. As always; trying to look on the > positive side, in-patient will probably work out better...the last few times > he's had procedures we've wound up there all day and into the evening...in > other words they probably should have kept him overnight but didn't. At > least this way, we won't be crammed into a little 2x2 room with no place to > sit for twelve hours. (and he gets platelets, which give him a few really > good days) > > He's getting tired.....the other day he told his nurse coordinator, " I'm > getting tired, I need a break " . She responded, " well, I'm tired too > ! God, this gets insane.....she gets paid (well) to be tired, he barely > scrapes by on a lick and a promise, not to mention he's on treatment, she is > not! Talk about " dysfunction at the junction " ! > > I had looked forward to this month because usually things slow sound a > little bit and I am trying to carve out a small Christmas for morale's sake. > Well, a biopsy was finally scheduled for ME, and it's going to be this next > Thursday. ly, I'm not even all that concerned about being sick anymore > (I am a tough cookie) ...I'm more concerned about my family falling apart > behind all this insanity. Someday's it feels like we are hanging on by a > thread. > > Meanwhile, I got a call the other day from social services, saying that it's > possible that when we were found eligible for services back in June, it may > have been a mistake and if it is we'll be cut off and have to pay back the > money. So, they've demanded our presence at an appointment this week (of > course) and we have to go and explain ourselves for $100 per month. We have > been (barely) surviving on $821 per month for a year now and every time we > turn around they are trying to take something away. It infuriates me that we > have to deal with ALL this at once. The focus needs to be on all this > medical stuff, not this petty bureaucratic bs. > > I am so in need of some help with all this and have yet to be able to find > someone who is knowledgeable in all these areas and who understands how it > all works together. (county, state and federal) I live in fear on a daily > basis that I will fill out a form wrong, or say the wrong thing to the wrong > person, wind up in trouble and lose one of these services that we so > desperately need right now, just out of overwhelm and exhaustion. With all > this going on, my thinking gets fuzzy and it's easy to make mistakes. > > We know what our situation is, we know what our lives are like, but these > days honestly it seems like if there is a way to try to blame us for > something or a way to try to deny services they do it. All this is scaring > the shit out of me, and is not helping our health. We are starting to feel > like puppets on strings, they yank, we have to jump. > We had a long talk the other day and decided that we'll do all that's asked > this month, get all the test results, all the information we need and then > re-evaluate and make some decisions of our own for the coming new year. It > feels as though we have lost control of our own lives.....that's the worst > part. This week I will celebrate 16 years of sobriety and I have to say; > this has been the hardest year ever. > > Please keep us in your thoughts and prayers for the upcoming week.....for > the stregnth to get up and show up and for the wisdom to make the right > decisions..... > > thank you for being here. > > Kelli > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Well hi there Cat I'm 41 R/A , O/A , DDD , raynards you can catch me here with mail or on as kentuckycowboy1 , at times want say what kind of mood you'll catch me in most of the time if its not ok i'll not be on though . type me in and send me a message if you like i'll answer to the best of my experinces if that will help or just chat . john --- cat_lady20042003 <cat_lady20042003@...> wrote: > I was diagnosed with RA 13 years ago and have been > trying to find a > chat line for people with RA. I'm interested in > talking to people > who've been through the same kind of things as I > have. > > > > > > ______________________________________________________ Click here to donate to the Hurricane Katrina relief effort. http://store./redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Hi CatJudy, welcome to the forum Dorey www.LivngWithRheumatoidarthritis.com ----- Original Message ----- From: " cat_lady20042003 " <cat_lady20042003@...> <Rheumatoid Arthritis > Sent: Thursday, September 08, 2005 5:18 PM Subject: Hi, everyone >I was diagnosed with RA 13 years ago and have been trying to find a > chat line for people with RA. I'm interested in talking to people > who've been through the same kind of things as I have. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 I use this as a message board and I usually check it a couple of times a day. If you don't need instant interaction this is a good place to be. I think some people here chat also but I'm not into that. God bless. ----- Original Message ----- From: cat_lady20042003 Rheumatoid Arthritis Sent: Thursday, September 08, 2005 5:18 PM Subject: Hi, everyone I was diagnosed with RA 13 years ago and have been trying to find a chat line for people with RA. I'm interested in talking to people who've been through the same kind of things as I have. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 hola I HOPE EVERYONE IS DOING FINE ,,,,DAY AFTER DAY ITS SO PLEASENT TO ENTER AND LEARN AND SEE HOW ALL WE SHARE ....THAT GREAT ...AND LEARN MORE EVERYDAY...SENDING TO ALL OF YOU MY PRAYERS AND BLEESINGS AND LOVE ...ALWAYS CARMEN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Sending Blessings and love your way to Carmen. Namaste, Debbie >> hola I HOPE EVERYONE IS DOING FINE ,,,,DAY AFTER DAY ITS SO > PLEASENT TO ENTER AND LEARN AND SEE HOW ALL WE SHARE ....THAT > GREAT ...AND LEARN MORE EVERYDAY...SENDING TO ALL OF YOU MY PRAYERS > AND BLEESINGS AND LOVE ...ALWAYS CARMEN> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Hi Carmen , My name is Anastasia we havn't met yet>>> it is nice to met you I hope you are having a blessed day In love and Light Anastasiacmr_estrella <cmr_estrella@...> wrote: hola I HOPE EVERYONE IS DOING FINE ,,,,DAY AFTER DAY ITS SO PLEASENT TO ENTER AND LEARN AND SEE HOW ALL WE SHARE ....THAT GREAT ...AND LEARN MORE EVERYDAY...SENDING TO ALL OF YOU MY PRAYERS AND BLEESINGS AND LOVE ...ALWAYS CARMENAnastasia Park yourself in front of a world of choices in alternative vehicles.Visit the Auto Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Hello Carmen my love. Boundless blessings and love back to you! Metta,Stefanie>> hola I HOPE EVERYONE IS DOING FINE ,,,,DAY AFTER DAY ITS SO > PLEASENT TO ENTER AND LEARN AND SEE HOW ALL WE SHARE ....THAT > GREAT ...AND LEARN MORE EVERYDAY...SENDING TO ALL OF YOU MY PRAYERS > AND BLEESINGS AND LOVE ...ALWAYS CARMEN> Quote Link to comment Share on other sites More sharing options...
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