Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 First, we're on specialist number??? How do you organize and keep track of all the procedures, names addresses etc. for your child's care? My memory if full. I need a new organizational method for moth medical and school records. Any BTDT? Second, my DD had a major seizure about a month ago that landed her in the ER. We're now seeing a neurologist. He said the first EEG was normal, but that it didn't mean anything. He said she shows signs of Dyspraxia and that some neural motor paths have damage, though nothing severe. He also mentioned something about possible mild cerebal palsy. She's 7. Aren't these things that should have shown up in her testing at 4 or during her neuropsych eval this summer? Could one seizure have caused damage? He's ordering a 24 hour EEG, which I'm sure is going to be oh so fun. I had a difficult time getting her to keep her hands off the electrodes for the hour of the first EEG when she was contained on a bed... He's also ordering an MRI with and without contrast. Anyone with seizure experience? Quote Link to comment Share on other sites More sharing options...
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