Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi Connie, Perhaps, “a shelf” would’nt be the best way to describe. Basically, the rods are so prominent at the top, you could rest/sit something small at the base of her neck without it falling off…..The rods are more prominent now, then they have ever been. HRH From: infantile_scoliosis [mailto:infantile_scoliosis ] On Behalf Of tovi39@... Sent: Friday, November 21, 2008 3:30 PM To: infantile_scoliosis Subject: Re: Olivia Update , So sorry to hear of this news. I wish I had some words of wisdom for you. I am trying to picture what you mean by shelf at the top of her rods " The only experience I have to contribute would be that had a cervical spinal fusion three years ago. Not for the same reasons but because of an unstable C1. His skull was fused to C2 and C3. There was a halo that followed the surgery. I believe it was for three months. I hope and pray the doctors figure a easy solution that makes it more comfortable for Olivia. I will be sending great energy and prayers your way!! Connie Olivia Update Well , Olivias rods are not eroding through her ribs. That’s the good news. The not so good news, is that her posterior hardware (dual Veptr 2 attached to iliac crests) touches her right scapula (shoulder blade), whi ch makes her not want to hold her shoulders back. Her shoulders are rolling forward (for almost 3 years now), which is also making her cervical vertebrae lean forward and that’s why the rods are now so much more prominent. She has literally developed a shelf at the top of the rods in back and the progression and leaning forward of her cervical vertebrae, is quite concerning. The only way to address this that I am aware of is fusion of segments in that area. I don’t want to sit and watch this get worse, until we have no other course but to fuse, so I am doing more research. I have just placed a call to her physical therapist, in order to be proactive about this until we figure out what the best plan of care for Olivia is, at this point. Does anyone out there have experience/advice on this? I think this a common occurrence for children with hardware of all types, but am not 100%...... Liz, I am so sorry we didn’t get to meet! it was wonderful meeting you and your beautiful family. Please let me know how the kiddos are doing after their edf cast applications, yesterday. Have a great weekend. HRH Traveling over the river or through the woods this holiday season? Get the MapQuest Toolbar. Directions, Traffic, Gas Prices More! Quote Link to comment Share on other sites More sharing options...
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