Re: update on Holly Jean, now 18 months and 12 degree curve

[Guest guest]

,So sorry to hear about all that is going on with your back. I pray things are better soon for you.And I am SO happy to hear about Holly and what sounds like a resolving curve.That is GREAT news! Thanks for updating us and please keep us posted.TashaMommy of twin boys- and 3 1/2 years oldFort Worth, Texas is currently in a brace at night.Casting 14 months.Subject: update on Holly now 18 months and 12 degree curveTo: infantile_scoliosis Date: Wednesday, December 3, 2008, 2:28 PM

I have not posted in a while, due to some recent health issues, but i

have been keeping up with the group each and every day. I continue to

be inspired by the parents and children in this group. I myself have

had 2 back surgeries in the past 7 weeks (discectomies due to massive a

disc herniation compromising my nerve function)and am still recovering.

Trying to hold off on a fusion for a while.

However, I wanted to post an update regarding Holly (now 18 months

old) as she had a follow up with her ortho at Children's Hospital in DC

2 weeks ago. Her curve (intially at 36 degrees when she was 6 months

old) seems to be holding at 12 degrees. The large hump on the right

side of her back is completely gone. She still has an awkward gait but

her hips look good according to the docs. We follow up in another 5

months. So we will continue to hold off on casting but are keeping a

watchful eye.

(mom to Holly 18 months, I.S., 36 degrees then 27 then 12 and now

12 degrees)

[Guest guest]

Great news! We are all praying and pulling for you. Thanks for sharing teh uplifting news!

Jill

Subject: update on Holly now 18 months and 12 degree curveTo: infantile_scoliosis Date: Wednesday, December 3, 2008, 3:28 PM

I have not posted in a while, due to some recent health issues, but i have been keeping up with the group each and every day. I continue to be inspired by the parents and children in this group. I myself have had 2 back surgeries in the past 7 weeks (discectomies due to massive a disc herniation compromising my nerve function)and am still recovering. Trying to hold off on a fusion for a while. However, I wanted to post an update regarding Holly (now 18 months old) as she had a follow up with her ortho at Children's Hospital in DC 2 weeks ago. Her curve (intially at 36 degrees when she was 6 months old) seems to be holding at 12 degrees. The large hump on the right side of her back is completely gone. She still has an awkward gait but her hips look good according to the docs. We follow up in another 5 months. So we will continue to hold off on casting but are keeping a watchful

eye.(mom to Holly 18 months, I.S., 36 degrees then 27 then 12 and now 12 degrees)

[Guest guest]

Thanks for the wonderful news! It sounds like she is doing well! Wishing you a speedy recovery also! Steph

Subject: update on Holly now 18 months and 12 degree curveTo: infantile_scoliosis Date: Wednesday, December 3, 2008, 8:28 PM

I have not posted in a while, due to some recent health issues, but i have been keeping up with the group each and every day. I continue to be inspired by the parents and children in this group. I myself have had 2 back surgeries in the past 7 weeks (discectomies due to massive a disc herniation compromising my nerve function)and am still recovering. Trying to hold off on a fusion for a while. However, I wanted to post an update regarding Holly (now 18 months old) as she had a follow up with her ortho at Children's Hospital in DC 2 weeks ago. Her curve (intially at 36 degrees when she was 6 months old) seems to be holding at 12 degrees. The large hump on the right side of her back is completely gone. She still has an awkward gait but her hips look good according to the docs. We follow up in another 5 months. So we will continue to hold off on casting but are keeping a watchful

eye.(mom to Holly 18 months, I.S., 36 degrees then 27 then 12 and now 12 degrees)