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Hi, I am new to this group. I thought I had posted earlier, but it

looks ike it did not make it!

Anyway, I have 3 kids on the spectrum, 2 girls and 1 boy. My boy is 15

1/2 and has Aspergers and so does my 9 yr old daughter. I also have a

severe Autistic girl that is 11. She has been found to have a

duplication of the 15th chromosome, as well as I. I just found out

after being tested, after all my kids. She and i are the only one that

share this duplication! O well.

My main concern is as she is approaching puberty, how to handle those

issues!? She is somewhat verbal, but mostly echolaliac. Any good

social stories etc?!?

I look forward to communicating with many in this group!

Thanks for your help!

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Welcome. My daughter with ASD (9) has not reached full puberty yet so

I can't offer a lot. There is in the files section a great powerpoint

someone here made for their daughter. I have used it to read with my

daughter.

HTH,

Debi

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puberty issues, i looked up menstruation on net and found info, and some simple

drawings to try and explain it all...........she only just started, so its going

to be fun i can see. you just have to keep explaining and trying to do basic

explaining, which is so very hard. hannah hasnt a clue. She will happily walk

around the house and announce if she is bleeding or

not....................oooops............i told her you dont do that, you come

and either tell mummy or her big sister...... its going to be a long road i can

see.

Cheryl S [chez]

To: Autism_in_Girls@...: no_reply@...: Tue, 30

Dec 2008 00:48:32 +0000Subject: new to group

Hi, I am new to this group. I thought I had posted earlier, but it looks ike it

did not make it!Anyway, I have 3 kids on the spectrum, 2 girls and 1 boy. My boy

is 15 1/2 and has Aspergers and so does my 9 yr old daughter. I also have a

severe Autistic girl that is 11. She has been found to have a duplication of the

15th chromosome, as well as I. I just found out after being tested, after all my

kids. She and i are the only one that share this duplication! O well.My main

concern is as she is approaching puberty, how to handle those issues!? She is

somewhat verbal, but mostly echolaliac. Any good social stories etc?!?I look

forward to communicating with many in this group!Thanks for your help!

_________________________________________________________________

Messenger's gift to you! Download free emoticons today!

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  • 3 weeks later...

Thanks so much sondra!! I'm so excited to be in this group!

Sent from my BlackBerry® smartphone powered by Centennial Wireless.

Re: New to group

danielle welcome to the group and yhou indeed do have a much speical

miracle baby girl.

sondra adult with autism spectrum in Ohio

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Hi michelle,

well from our exspence with the hormone  it man them worse when they started and

she will not start tell she starts to grow hair in the lower arear and under

arms then you watch for a like my doctor said a corck ,lol ike a discharge then

she may start light or heavey and really my girl really it did not friten the i

cryed but it just made them just really hormonal like with us it take us about a

week to get back to normal well them it take about three weeks then there about

to start all over agian we have tried orthotri/cyclen it was still heavey and

too emtional alway crying then

 yasmin 28 really it helped with heavey bleeding and clotting but not much on

hormon isses then errin witch stopps the pioped all together but not with

jennifer she topped for about a year and half them her just made her self have

one so now we are on Yaz and we only have been on it for two and half weeks so

not shore yet, but  my dovtor did say the shot birth control will bring out more

behaviors so I'm not going that route. then the one you insert in side near your

uterus I really don';t care for that one it's like my mom said it aborts a baby

is does not stop the egg not saying she would be sexal acktive but if she was

thats what it would do so other then that I don't know but we did try like the

yasmin we would take all but the last  week witch was the other color were she

would start her period and we would do for about three months then on the fourth

month we would give her that week and then she would have a period. but jennifer

was still

really heavey back then too, well I hope I was so help to ya.

Subject: Re: new to group

To: Autism_in_Girls_and_Women

Date: Thursday, January 22, 2009, 10:20 PM

Hi Stacie. I'm new to this group too. I live in Wichita Falls,

Texas. I joined this group to find support and resources for my 8

year old daughter, Madeleine, who has autism. My most pressing

concern right now is that Maddie is beginning to show signs of puberty

already. I don't have any answers for you regarding your daughters'

periods - - I'm asking the same questions. I can't imagine having to

deal with my daughter's menses. I really don't want to put her or our

family through it if we can avoid it. I don't think she would

understand what is happening to her, and I think she would be very

frightened. I plan to speak with my OB about placing Madeleine on

birth control, with the hope of stopping her periods altogether, or at

least to have them just four times a year. I don't know if that's

safe or possible, but it's something I want to explore. I'm very

worried about the emotional changes that Maddie will undoubtedly go

through. It's hard enough right now -- I'm afraid of what's waiting

around the corner. I thought had some great suggestions.

Hopefully you'll receive some other helpful ideas. Good luck!

>

> Hi I'm stacie I live in Houston TX

> I would love to find new friends and resource , I have three

children

> with Autism two are girls 15 & 13 and man is it getting harder ,

since

> they started thier periods it like they just changed , ther

behaviors

> and everything just went down hill, hey if you know any good doctors

> please let me know, or any thing else and if I can help any one let

me

> know would love to try . thanks Stacie

>

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what are those , they are on some meds but not sure what your mean, please

explian

Subject: Re: new to group

To: Autism_in_Girls_and_Women

Date: Thursday, January 22, 2009, 10:06 PM

Hey Stacie, I'm Debi. Welcom. I have 11, 9, and 6 yr old daughters. I

feel your hormonal pain but probably not nearly so intensely... yet!

Are you doing any biomedical stuff? Diets, supplements, etc?

Debi

>

> Hi I'm stacie I live in Houston TX

> I would love to find new friends and resource , I have three children

> with Autism two are girls 15 & 13 and man is it getting harder , since

> they started thier periods it like they just changed , ther behaviors

> and everything just went down hill, hey if you know any good doctors

> please let me know, or any thing else and if I can help any one let me

> know would love to try . thanks Stacie

>

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Hi stacie. I'm danielle and I have a 6 year old blind autistic daughter and one

of my fears is how we are gonna handle when she has her period. I heard there

was medicine that can stop her from having it. She won't understand what's going

on at all so I'm really dreading having to make that decision for her.

Sent from my BlackBerry® smartphone powered by Centennial Wireless.

new to group

Hi I'm stacie I live in Houston TX

I would love to find new friends and resource , I have three children

with Autism two are girls 15 & 13 and man is it getting harder , since

they started thier periods it like they just changed , ther behaviors

and everything just went down hill, hey if you know any good doctors

please let me know, or any thing else and if I can help any one let me

know would love to try . thanks Stacie

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Hi Debi,

How are you?

I am new to this group and I wanted to get the word out. Please help

us spread the word. The professionals at the Autism Partnership work

tirelessly and are totally committed to raising public awareness and

helping families across the country.

In today's economy, many facilities are overcrowded and way too

expensive for families to afford. I had to tell you how amazing the

Autism Partnership is!

They wrote a book, " Sense and Nonsense In the Behavioral Treatment of

Autism, " how they firmly believe in ABA treatment. It's a wonderful

tool for parents!

They have a Rescue Program just like Nanny 911 where they will go to

a families home, or have the family come to them. CNN plans on doing

a piece in February please let me know if you'd like me to let you

know the date so you can watch! This is an incredible option.

Here's their next workshop hope you can attend!

HELPING CHILDREN WITH AUTISM

THROUGH APPLIED BEHAVIOR ANALYSIS

Autism Partnership is offering a 5-day workshop providing hands-on

training in Contemporary Applied Behavior Analysis (ABA) for parents,

professionals and paraprofessionals.

Autism Partnership Headquarters

200 Marina Drive

Seal Beach, CA

February 2 – 6, 2009

8:30 AM – 2:30 PM

$500/person $450/parents

To Register: Visit www.autismpartnersh ip.com ; email

info@autismpartners hip.com or call , extension " 0 " .

Applied Behavior Analysis is the most scientifically proven treatment

for children with autism. This five-day workshop for parents,

professionals and paraprofessionals focuses on teaching the methods

and skills needed to implement an ABA program.

Families receive one-on-one attention and supportive feedback which

can increase their child's desire to learn as well as teach

communication and play. Topics covered in the workshop include:

Learning and practicing behavior management techniques

Using Flexible Discrete Trial Teaching

Understanding how to apply these techniques at home and in the

community

Autism Partnership is the nation's premier agency dedicated to

providing intensive behavior intervention for children with autism

and their families. Established in 1994 by world-renowned

psychologists Ron Leaf and McEachin, Autism Partnership offers a

comprehensive program and a variety of proven services, including in-

home, in-classroom and one-on-one, as well as lectures and workshops.

All programs are handled by expert teachers and tailored to each

individual child, family and caregiver, with the goal of helping that

child achieve their best life. For more information, visit

www.autismpartnersh ip.com

Please give them a call and tell them Audrey sent you!

>

>

> Subject: Re: new to group

> To: Autism_in_Girls_and_Women

> Date: Thursday, January 22, 2009, 10:06 PM

>

>

>

>

>

>

> Hey Stacie, I'm Debi. Welcom. I have 11, 9, and 6 yr

> old daughters. I

> feel your hormonal pain but probably not nearly so

> intensely... yet!

>

> Are you doing any biomedical stuff? Diets, supplements,

> etc?

>

> Debi

>

>

> >

> > Hi I'm stacie I live in Houston TX

> > I would love to find new friends and resource , I have

> three children

> > with Autism two are girls 15 & 13 and man is it

> getting harder , since

> > they started thier periods it like they just changed ,

> ther behaviors

> > and everything just went down hill, hey if you know

> any good doctors

> > please let me know, or any thing else and if I can

> help any one let me

> > know would love to try . thanks Stacie

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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Some of us have found that our kids on gluten-free, casein-free diets

have improved behavior. These are proteins found in wheat and milk.

There is also some research to support the majority of kids with

autism are deficient and/or do not process vitamin b-12 so giving them

that vitamin supplement in the form of methycobalamin (mb-12) improves

their physiological function and behavior. There are several other

supplements and diets that some families use with success. All of

these are considered " biomedical " because it helps address the

underlying physiology associated with autism.

Still, some kids with autism seem to not respond regardless of

biomedical interventions tried. Unfortunately, none of it is 100%.

Hope this helps. Don't know if you've followed McCarthy in the

news at all, this is some of what she's been talking about.

Debi

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I'm fine now.

I read about this. I wish I lived in CA. Autism Partnerships sometimes

comes to Knoxville for school stuff.

Debi

>

> Hi Debi,

>

> How are you?

>

> I am new to this group and I wanted to get the word out. Please help

> us spread the word. The professionals at the Autism Partnership work

> tirelessly and are totally committed to raising public awareness and

> helping families across the country.

>

> In today's economy, many facilities are overcrowded and way too

> expensive for families to afford. I had to tell you how amazing the

> Autism Partnership is!

>

>

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Hey Debi,

They will come to your home if need be to do an intervention and follow-up every

other month. Kind of like Nanny 911. You should give them a buzz!

>

> Subject: Re: new to group

> To: Autism_in_Girls_and_Women

> Date: Friday, January 23, 2009, 4:07 PM

> I'm fine now.

>

> I read about this. I wish I lived in CA. Autism

> Partnerships sometimes

> comes to Knoxville for school stuff.

>

> Debi

>

>

> >

> > Hi Debi,

> >

> > How are you?

> >

> > I am new to this group and I wanted to get the word

> out. Please help

> > us spread the word. The professionals at the Autism

> Partnership work

> > tirelessly and are totally committed to raising public

> awareness and

> > helping families across the country.

> >

> > In today's economy, many facilities are

> overcrowded and way too

> > expensive for families to afford. I had to tell you

> how amazing the

> > Autism Partnership is!

> >

> >

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In a message dated 1/22/2009 12:12:56 A.M. Eastern Standard Time,

sanntownley@... writes:

I'm stacie I live in Houston TX

hi stacie. im eric married to pennie with our 11 year old daughter. we

live in michigan i hope you get the help you need. and welcome to the group

eric abbys dad

**************From Wall Street to Main Street and everywhere in between, stay

up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom00000023)

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In a message dated 1/23/2009 7:58:07 A.M. Eastern Standard Time,

pinkcallieblind@... writes:

I heard there was medicine that can stop her from having it

be careful that stuff can mess them up but i understand some people have to

use it.

eric abbys dad

**************From Wall Street to Main Street and everywhere in between, stay

up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom00000023)

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how do you get a hold of them . I would really like to know also

> From: Debi <fightingautism@ yahoo.com>

> Subject: [Autism_in_Girls_ and_Women] Re: new to group

> To: Autism_in_Girls_ and_Women@ yahoogroups. com

> Date: Friday, January 23, 2009, 4:07 PM

> I'm fine now.

>

> I read about this. I wish I lived in CA. Autism

> Partnerships sometimes

> comes to Knoxville for school stuff.

>

> Debi

>

>

> >

> > Hi Debi,

> >

> > How are you?

> >

> > I am new to this group and I wanted to get the word

> out. Please help

> > us spread the word. The professionals at the Autism

> Partnership work

> > tirelessly and are totally committed to raising public

> awareness and

> > helping families across the country.

> >

> > In today's economy, many facilities are

> overcrowded and way too

> > expensive for families to afford. I had to tell you

> how amazing the

> > Autism Partnership is!

> >

> >

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Yes there are absolute horror stories. I plan to stay away from it not

worth the risk just for convenience. jay

-- Re: new to group

In a message dated 1/23/2009 7:58:07 A.M. Eastern Standard Time,

pinkcallieblind@... writes:

I heard there was medicine that can stop her from having it

be careful that stuff can mess them up but i understand some people have to

use it.

eric abbys dad

**************From Wall Street to Main Street and everywhere in between,

stay

up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom00000023)

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Abby just got her first period last Saturday. I have to say, she handled it

great. It's odd, she has been calmer since it started. Her anxiety level is

down. Go figure, I figured it would have been the opposite.

Pennie

Abby's Mom

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100000075x1215855013x1201028747/aol?redir=http://\

www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De

cemailfooterNO62)

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--I must admit I was shocked to notice signs of 'development' in my 8

year old daughter several years ago. If everything else is delayed,

why not that!!

I talked with her developmental pediatrician about things down the

road and she suggested getting her the depo shot. It is a once every

3 month birth control shot that also stops periods. I don't think my

daughter could handle having a period. she is 10 now and even more

developed and I don't feel it will be too long before we deal with

this. the other up side to the shot is that it regulated hormones all

month long so there is not that up and down hormone surge. the levels

remain constant helping with hormonal behavior, etc.

anyway, it is the way I am thinking of going when the time comes.

- In Autism_in_Girls_and_Women , " msdickson2309 "

wrote:

>

> Hi Stacie. I'm new to this group too. I live in Wichita Falls,

> Texas. I joined this group to find support and resources for my 8

> year old daughter, Madeleine, who has autism. My most pressing

> concern right now is that Maddie is beginning to show signs of

puberty

> already. I don't have any answers for you regarding your

daughters'

> periods - - I'm asking the same questions. I can't imagine having

to

> deal with my daughter's menses. I really don't want to put her or

our

> family through it if we can avoid it. I don't think she would

> understand what is happening to her, and I think she would be very

> frightened. I plan to speak with my OB about placing Madeleine on

> birth control, with the hope of stopping her periods altogether, or

at

> least to have them just four times a year. I don't know if that's

> safe or possible, but it's something I want to explore. I'm very

> worried about the emotional changes that Maddie will undoubtedly go

> through. It's hard enough right now -- I'm afraid of what's

waiting

> around the corner. I thought had some great suggestions.

> Hopefully you'll receive some other helpful ideas. Good luck!

>

>

>

>

>

>

> >

> > Hi I'm stacie I live in Houston TX

> > I would love to find new friends and resource , I have three

> children

> > with Autism two are girls 15 & 13 and man is it getting harder ,

> since

> > they started thier periods it like they just changed , ther

> behaviors

> > and everything just went down hill, hey if you know any good

doctors

> > please let me know, or any thing else and if I can help any one

let

> me

> > know would love to try . thanks Stacie

> >

>

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has any one had there duaghters starts thhe rocking and like a lala land stage

when they first started there cycle its been about three years now and we have

been though many meds and found nothing to help her, her whole behavior and

rocking and lala land came when she started and has not went away its like it

took over her after starting

>

> Hi Stacie. I'm new to this group too. I live in Wichita Falls,

> Texas. I joined this group to find support and resources for my 8

> year old daughter, Madeleine, who has autism. My most pressing

> concern right now is that Maddie is beginning to show signs of

puberty

> already. I don't have any answers for you regarding your

daughters'

> periods - - I'm asking the same questions. I can't imagine having

to

> deal with my daughter's menses. I really don't want to put her or

our

> family through it if we can avoid it. I don't think she would

> understand what is happening to her, and I think she would be very

> frightened. I plan to speak with my OB about placing Madeleine on

> birth control, with the hope of stopping her periods altogether, or

at

> least to have them just four times a year. I don't know if that's

> safe or possible, but it's something I want to explore. I'm very

> worried about the emotional changes that Maddie will undoubtedly go

> through. It's hard enough right now -- I'm afraid of what's

waiting

> around the corner. I thought had some great suggestions.

> Hopefully you'll receive some other helpful ideas. Good luck!

>

>

>

>

>

>

> >

> > Hi I'm stacie I live in Houston TX

> > I would love to find new friends and resource , I have three

> children

> > with Autism two are girls 15 & 13 and man is it getting harder ,

> since

> > they started thier periods it like they just changed , ther

> behaviors

> > and everything just went down hill, hey if you know any good

doctors

> > please let me know, or any thing else and if I can help any one

let

> me

> > know would love to try . thanks Stacie

> >

>

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man i wish jennifers & sarah were, they got worse but they took it well too

Subject: Re: Re: new to group

To: Autism_in_Girls_and_Women

Date: Saturday, January 24, 2009, 9:29 PM

Abby just got her first period last Saturday. I have to say, she handled it

great. It's odd, she has been calmer since it started. Her anxiety level is

down. Go figure, I figured it would have been the opposite.

Pennie

Abby's Mom

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID=

62%26bcd= De

cemailfooterNO62)

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thank you I hope so too

Subject: Re: new to group

To: Autism_in_Girls_and_Women

Date: Saturday, January 24, 2009, 12:19 PM

In a message dated 1/22/2009 12:12:56 A.M. Eastern Standard Time,

sanntownley@ yahoo.com writes:

I'm stacie I live in Houston TX

hi stacie. im eric married to pennie with our 11 year old daughter. we

live in michigan i hope you get the help you need. and welcome to the group

eric abbys dad

************ **From Wall Street to Main Street and everywhere in between, stay

up-to-date with the latest news. (http://aol.com? ncid=emlcntaolco m00000023)

Link to comment
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my daughter rocks on the couch, kicks her legs in the air, especially when she

thinks no one is looking. When we go to church, she never just sits on the

chairs, she likes to put her feet on the chair infront, so i always try and make

sure we have a seat where it looks like no one else wants to sit....she will put

her feet down, if someone does sit there, she knows to. these kind of behaviours

i think, release something in our kids that we simply do not understand, i don't

think its something that should be stopped, sure, pick the time and place of

course. Its the same with vibrations, she simply loves it when we cut the grass

and she can go and put her chin on the mower and just stands there with eyes

closed, it obviously feels great, and maybe relieves the stress of the

day............haven't a clue. Hannah isn't on any medication, only some

protein drinks, when i remember...as her diet is shocking to say the least, but

she looks healthy, and is the one that never gets sick out of all of us. she has

only just started her periods, so the next one will be interesting, by the way,

she is 14, she will turn 15 in october.

Cheryl S [chez]

To: Autism_in_Girls_and_Women@...: sanntownley@...:

Sat, 24 Jan 2009 19:35:29 -0800Subject: Re: Re: new

to group

has any one had there duaghters starts thhe rocking and like a lala land stage

when they first started there cycle its been about three years now and we have

been though many meds and found nothing to help her, her whole behavior and

rocking and lala land came when she started and has not went away its like it

took over her after starting>> Hi Stacie. I'm new to this group too. I live in Wichita Falls, >

Texas. I joined this group to find support and resources for my 8 > year old

daughter, Madeleine, who has autism. My most pressing > concern right now is

that Maddie is beginning to show signs of puberty > already. I don't have any

answers for you regarding your daughters' > periods - - I'm asking the same

questions. I can't imagine having to > deal with my daughter's menses. I really

don't want to put her or our > family through it if we can avoid it. I don't

think she would > understand what is happening to her, and I think she would be

very > frightened. I plan to speak with my OB about placing Madeleine on > birth

control, with the hope of stopping her periods altogether, or at > least to have

them just four times a year. I don't know if that's > safe or possible, but it's

something I want to explore. I'm very > worried about the emotional changes that

Maddie will undoubtedly go > through. It's hard enough right now -- I'm afraid

of what's waiting > around the corner. I thought had some great

suggestions. > Hopefully you'll receive some other helpful ideas. Good luck!> >

> > > > > >> > Hi I'm stacie I live in Houston TX> > I

would love to find new friends and resource , I have three > children > > with

Autism two are girls 15 & 13 and man is it getting harder , > since > > they

started thier periods it like they just changed , ther > behaviors > > and

everything just went down hill, hey if you know any good doctors > > please let

me know, or any thing else and if I can help any one let > me > > know would

love to try . thanks Stacie> >>[Non-text portions of this message have been

removed]

_________________________________________________________________

Get rid of those unwanted christmas presents! Get what you want at ebay.

http://a.ninemsn.com.au/b.aspx?URL=http%3A%2F%2Frover%2Eebay%2Ecom%2Frover%2F1%2\

F705%2D10129%2D5668%2D323%2F4%3Fid%3D10 & _t=763807330 & _r=hotmailTAGLINES & _m=EXT

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Hi Stacey,

Great to hear from you. Here's information on the Autism Partnership. Please

give them a call. Where do you live? Please tell them that Audrey sent you.

Address:

200 MARINA DR.

SEAL BEACH, CA 90740

Phone:

Toll Free: , press “0â€

Fax:

Email: info@...

Here is information on their next workshop. We are trying to get schools,

caregivers and speacial needs teachers to attend as their schools may be able to

pay for them to attend. So please spread the word!

HELPING CHILDREN WITH AUTISM

THROUGH APPLIED BEHAVIOR ANALYSIS

Autism Partnership is offering a 5-day workshop providing hands-on training in

Contemporary Applied Behavior Analysis (ABA) for parents, professionals and

paraprofessionals.

Autism Partnership Headquarters

200 Marina Drive

Seal Beach, CA

February 2 – 6, 2009

8:30 AM – 2:30 PM

$500/person $450/parents

Applied Behavior Analysis is the most scientifically proven treatment for

children with autism. This five-day workshop for parents, professionals and

paraprofessionals focuses on teaching the methods and skills needed to implement

an ABA program.

Families receive one-on-one attention and supportive feedback which can increase

their child’s desire to learn as well as teach communication and play. Topics

covered in the workshop include:

Learning and practicing behavior management techniques

Using Flexible Discrete Trial Teaching

Understanding how to apply these techniques at home and in the community

>

> > From: Debi <fightingautism@ yahoo.com>

> > Subject: [Autism_in_Girls_ and_Women] Re: new to group

> > To: Autism_in_Girls_ and_Women@ yahoogroups. com

> > Date: Friday, January 23, 2009, 4:07 PM

> > I'm fine now.

> >

> > I read about this. I wish I lived in CA. Autism

> > Partnerships sometimes

> > comes to Knoxville for school stuff.

> >

> > Debi

> >

> >

> > >

> > > Hi Debi,

> > >

> > > How are you?

> > >

> > > I am new to this group and I wanted to get the

> word

> > out. Please help

> > > us spread the word. The professionals at the

> Autism

> > Partnership work

> > > tirelessly and are totally committed to raising

> public

> > awareness and

> > > helping families across the country.

> > >

> > > In today's economy, many facilities are

> > overcrowded and way too

> > > expensive for families to afford. I had to tell

> you

> > how amazing the

> > > Autism Partnership is!

> > >

> > >

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