RE: - bad news

[Guest guest]

,

Are you sure the test was accurate? That seems like a huge drop! Sending prayers and if I come up with anything I will let you know - but as usual you seem to be on top of things! Don't forget blowing up balloons and blowing bubbles!

Hugs to Liv~Gail "In a study, scientists report that drinking beer can be good for the liver. I’m sorry, did I say “scientists”? I meant “Irish people.” -Tina Fey ************************************************ Mom to , 11/28/98 - ADHD/ODD/SID and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05, 04/20/06 & 6/12/08 Hyatt wrote:

Sorry, I must hi jack this post because I am working from the office, today. Olivia had a pulmonary appt. last Tuesday. It was determined that her lungs are functioning at 60%. 2 years ago they were functioning at 76%. Its strange how the pulmonary dept. thinks she is doing ~so~ well…(?) They have nothing to offer. I decided to have her bi-pap settings increased, she will transition from the piano to a wind instrument, and my Aunt (a professional singer) will come to our house regularly for breathing/singing exercizes/lessons. I am also in the process of purchasing a 3-wheel, recumbent (sp?) bike……If anyone out there has any more ideas, please share. I cant just sit here waiting for more lung deterioration.

For anyone out there dealing with severe scoliosis, whose child didn’t get the benefit of ET, please do whatever you can for your childs lungs. I thought bi-pap, breathing exercizes were enough and I can see that are not. Singing, bi-pap, wind instruments, etc.....

I’ll pass on whatever useful info I come across.

Thought you all should know.

Have a wonderful weekend!

HRH