diagnosis

[Guest guest]

I was diagnosed 25 years ago with stills but after a trip to the rhu

dept today am now confused they had many different diagnosis for it

and said they could not be sure which i have juvenile rumatoid

arthritis, stills or juvenile idopatic arthritis. I was 10 years old

when i first had problems and they have never had much luck in

controlling the disease most of my joints are badley damaged and i

still get the high temps rash and swelling which makes me think it is

stills. So far i have had bilateral hip replacements ankle fusion

left elbow replacement and my knees are now at the stage where

walking is imposible and i can only just weight bare. Today they

aggreed to give me a secound course of ritiximab which did help last

time(until funding was withdrawn) apparently as i have already had a

course they wll fund me but they are not funding any new patients

locally. I live in Norwich Norfolk UK with my parents who help me

with day to day care. The main problems i have at the moment are

sleeping and also i have a nasty leg ulcar which won't heel(had a

skin skin graft 11/07 but was hold yesterday this has not worked so

am back to square one) has anyone had any problems with circulation

and found any answers anything which i can do to help as replacement

surgery is out untill i have heeled my leg and i am not getting any

more mobile untill they do my nee replacemnts

sorry for going on but had a couple of bad days felt like i am

hitting my head up against a brick wall

thanks for listening and i hope everyone has a nice weekend

debbie uk