Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 Amy: I'm sorry I haven't written until now but I wanted to welcome you as well. If you have to be here I'm glad you found us. This is a great group of people. We're friends, confidants, supportive, basically a family. We have our spats, our debates, our disagreements but we're still supportive of one another. Now if you'll excuse me, Rubin, my son, has broken his arm while skateboarding. He's in a splint but he's in a bit of pain so I need to go out and get ibuprofen for him. All I have in the house are the ones I use and those are prescription. Take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2008 Report Share Posted February 18, 2008 Amy...welcome! I think I missed your original message. I try to read them all, but once I get behind, I've learned to just " wipe the slate clean and start over. " That's my first piece of advice--that it's okay to do that if you need to. Everyone here understands. My second piece is the one I remember most when we joined just a couple months ago, someone wrote to me and said to remember that the stories you hear on the group are usually the worst. There are people who have been able to go into remission and are so busy living their lives that you don't hear from them a lot. Remember that, hope is always a good thing. On the flip side, there is so much to learn and this is a great place to ask questions. The people here have become a part of our family in such a short time. So, welcome to the family Amy! Ellen...I'm so sorry to hear about Rubin. We will pray for a speedy recovery so he can get back out there! Jody BTW Amy...my husband Mark is the one with Stills. He was perfectly healthy this past Aug 10, then Aug 11th woke up and everything went downhill from there. He spent a month in the hospital and was dx during that time. He just went back to work part-time last week. Re: New member Amy: I'm sorry I haven't written until now but I wanted to welcome you as well. If you have to be here I'm glad you found us. This is a great group of people. We're friends, confidants, supportive, basically a family. We have our spats, our debates, our disagreements but we're still supportive of one another. Now if you'll excuse me, Rubin, my son, has broken his arm while skateboarding. He's in a splint but he's in a bit of pain so I need to go out and get ibuprofen for him. All I have in the house are the ones I use and those are prescription. Take care and be well. Ellen ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Hello, everyone. We are new to this group although not new to Yahoo groups in general. Been members/owners of lists for long before Yahoo took it over. :-) Anyone else from Arkansas here? We have had cows most of our lives and then got goats, too, in 1980 so we've been using/drinking raw goat and cow milk for many decades. Our grandkids are growing up on it now. We make cheese and butter with our milk, too. And the BEST homemade ice cream. :-) We originally came from a family ranch in NW Oklahoma, but have been homesteading since we moved to Arkansas in 1980. For almost 20 years we *were* breeding/showing reg. dairy goats until the scrapie program monster raised it's ugly head in the late 1990's (we saw the writing on the wall with that thing), and we sent almost every doe we had out of the country in export sales - without their papers. Now with the threat of the NAIS upon us, we are glad we did that when we did. We only have a handful of goats left for brush control and milk for our family. No more registering, no more showing, no more buying expensive goats from other breeders, etc. Any-hoo, we are doing what we can to hold on to the goats we have left - helped to form the Arkansas Animal Producer's Assoc. to fight to stop mandatory NAIS in our state. We have a bill we hope to get passed in January called the Freedom to Farm Act that will put the whoa on NAIS (and any other animal id type thing they might come up with in the future) in Arkansas - hopefully getting that passed into law will allow us to keep our goats and cows that we have left. If we cannot get the NAIS stopped in our state (and our nation), we will very regretfully have to get rid of the rest of our goats and cows as we will not register our property as premises with the NAIS. It would be very strange not having all the raw milk we want/need, but we can't risk our property since we have three families that live on it. We have people asking to get raw milk from us all the time and we *do* have a state law that says we can sell 100 gallons a month from the home without being labled " commercial " and coming under their laws (we've had that law about 20 years now and no one getting sick from raw milk that I know about). That amounts to about 3 gallons a day - can't make much money selling just 3 gallons a day but it is good that people at least can get the raw milk like that if they can find someone that still has the goats/cows to milk. Harder to find the cow milk as most of them are being milked in commercial cow dairies, not in backyards so much anymore. And the little family cow dairies are systematically being driven out of business so they are disappearing in our state like crazy. We have one that is fairly close to us (three miles away, but we all him " neighbor " ). He's so close to going out of business, it's scarey. And he just had to have knee replacements in both knees so he's got three lady relatives doing his milking for him until he can get back on his feet again. He said if just one batch of milk gets rejected for some reason, he'll be out of the dairy business. If he could just sell his raw milk to local people who are constantly asking for it, he'd be able to stay in business and even make a nice profit. But he's not allowed to do that - he gets told what he will and will not get for his milk (last I heard it was about $12 for a hundredweight) *and* he gets to pay for the milk truck to come pick up his milk. He says that when his dad was running the dairy back in the 50's and 60's and 70's, he was selling raw milk to anyone who wanted it - no one got sick and the father made a good living, raising all his kids on that small dairy. The son has raised his kids on that dairy, too, but the wife had to go get a job to keep the bills paid. Now even that isn't enough. It's so sad to see someone you've known for decades not being able to just do what he's good at doing and being able to live at it all just because some know-it-all in an office somewhere says he can't sell his raw milk to people anymore. He and his family have been drinking their own raw milk for generations and never got sick from it. Seems safe enough to me. :-) Same for us - we've been using raw milk literally for generations. My father-in-law bought a Holstein cow at the local sale barn - she was being culled due to advanced age. He would go out to the pasture, plop down a pan of feed and she would stand there eating while he milked her. No stanchion, etc. Just out in the open. She gave so much milk, we had a hard time doing things with it - making ice cream, feeding pigs, etc. She was about 20 years old when my father-in-law finally sold her at that same sale barn and he got more for her than what he'd paid for her ten years earlier! Now THAT was a good family milk cow. LOL! Anita in Arkansas http://arkansasanimalproducers.8k.com http://libertymtnranch.faithweb.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Hi Olivia- I have adrenal insufficiency from a pituitary condition myself. I'm on Prednisone daily and also take Cortef during those days when my adrenals cannot keep up with the physical or mental stress (I was taking them daily during the holidays!). I hope your daughter's Dr. has given you something to give her in emergencies, ie. a minor car crash, surgery (minor surgery almost killed me) or even the stomach flu can send someone with low adrenal function into crisis and can potentially be fatal. My pituitary is virtually dead so I also have thyroid problems (among the long list of other hormone problems). I am on Synthroid for the thyroid disorder and was also on Armor though didn't see any difference. Basically it is a constant balancing act between the hormones. Your daughter should be tested regularly and hormone medications adjusted as needed. How has she tested on her thyroid tests? I had a tough time finding a good endo and am actually on my 6th in 5 yrs. I think the best for your daughter would be an endo who specializes in pituitary disorders because they understand the whole picture of how all the hormones work together. I don't know where you are located, but I have a great pituitary endocrinologist in Los Angeles who I traveled 5 hrs to see and would see regularly if he weren't so far (Dr. Friedman). He also prescribes androgens for females which a lot of Drs. don't feel comfortable doing. You can also go to www.pituitary.org and search their Dr. listings if he is too far from you. Elaine & Sierra (5, Rett Syndrome) > > Hi, I'm very glad to be a part of this group, many thanks for having me! > > Our 8 year old daughter wasn't actually diagnosed with autism, but > with developmental delay (at age 4), although physically, she has many > of the same issues (gut problems, mainly). We've been doing > biomedical intervention for a while now, and have seen a lot of > progress, primarily in her learning. Recently we decided to take her > to see a pediatric endocrinologist as she was showing signs of > precocious puberty. She's been diagnosed with Congenital Adrenal > Hyperplasia - which is supposedly a genetic disorder in which the > adrenals don't produce enough cortisol, leading to some serious > imbalances in androgens, testosterone,etc. > > I wonder if any of you have dealt with this, or something similar. > I've read up on natural hormones and it seems that giving her cortisol > will be a necessity, possibly for life. My concern is that her > thyroid will need attention as well, and conventional doctors don't > seem to be as aware of thyroid problems as more " alternative " ones. > It gets a bit more sticky when dealing with a prepubescent child! > > I also have one more question, if you wouldn't mind, and this is > actually for a friend in South America who has a girl with autism with > precocious puberty. Their doctor is recommending decapeptyl. Has > anyone used this? From what I can see on the web, it has some serious > side effects. I wonder if anyone has some input on the subject. > > Thank you so much in advance and I hope to get to know you all a bit > better! > > Take care, Olivia > Quote Link to comment Share on other sites More sharing options...
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