Re: Stan rarely posts and many other parents have moved on too...

[Guest guest]

I didn't mean to start anything. Please do not fight...we will take

close to recovered eve in this house...I was just wondering bc

's has lost the dx and she admits he still has issues. Stan's

lost the dx but isn't a public figure, so nobody has seen or met him

that I know of, so he is not OUT THERE like 's kid to show us

where we can hope to get with this thing...and I just don;t know

anybdoy - well 1 person whose kid is very close to recovered - but

just one...and I was wondering with so many of us posting here dos

anybody know -not heard about-actually know people who have brought

their kids out of this thing...it was not meant to offend. I am just

feeling guily bc Matt turns three in ugust and I am scraed that I

blew it already bc I pulled things bc I never found anybody to etell

me if we were going in the right direction or not...and the we though

the stuff we were doing that was helping was hurting....it feels like

almost back to square one in this house, even though I know we have

made great gains, but still, nothing like before...Di

> >

> > Nope, even the ones who are high funtioning and " seem " normal

still

> have little issues here and there... with socialization,

stimming, etc.

> >

> > Stan rarely posts and many other parents

have

> moved on too...

> >

> >

> > ...I am hoping this is bc their kids are recovered and their

lives

> are

> > busy with so much NORMAL now...for those who have followed this

list

> > for a long time are there many out there who have or know

recovered

> > kids...I am having a hard time finding any so I am wondering if

> anyone

> > else has been able to duplicate Stan's success wtih

antivirals...my

> son

> > is on Famvir and researching WAY back in the archives it seems

Stan

> is

> > very pro valtrex over Famvir...my osn like his showed no viral

> titers,

> > just very low NKcells...Mtt was a responder to Valtrex, but we

wre

> > doing the PTC supplements too...gut issues took us off all of

it,

> but

> > the gut issues were not bc of the supps or the valtrex as it

turns

> > out...I wonder if we have erred by the switch to Famvir as well

as

> > dropping PTC - anyone out there know recovered kids from PTC

> > protocol...or, gosh, fully recovered kids period? As I said

there

> are

> > not many with recovered kids who post...Christel is one of the

> > exceptions and I know there are a few others who are almost

there

> > too...I just have never MET a recovered kid...has anyone?

> >

> > Thanks. Di

> >

>

[Guest guest]

Kari - thanks. The distended belly - we have that too...we pulled

things that were helping bc we thought it caused that gut...it

didn;t. K in NY said to check out PEU as it creates tha

effect...protein energy undernourishment = a syndrome of

malabsortpion of protein wehre the body has trouble breaking it down

and getting what it needs from the protein consumed at every meal. He

had us give ProStat liquid protein brk and lunch to give the bod a

break from digestion, but still supply the nec protein for healing

etc...jury still out as we have started it only recently...I am not

sure as it has xylitol and I think the SCDer say that can feed bad

gut bugs - and I think they could be right. Matt was a clostridia

overgrowth case,so we worry about that sort of thing. DI

> >

> > ...I am hoping this is bc their kids are recovered and their

lives are

> > busy with so much NORMAL now...for those who have followed this

list

> > for a long time are there many out there who have or know

recovered

> > kids...I am having a hard time finding any so I am wondering if

anyone

> > else has been able to duplicate Stan's success wtih

antivirals...my son

> > is on Famvir and researching WAY back in the archives it seems

Stan is

> > very pro valtrex over Famvir...my osn like his showed no viral

titers,

> > just very low NKcells...Mtt was a responder to Valtrex, but we

wre

> > doing the PTC supplements too...gut issues took us off all of it,

but

> > the gut issues were not bc of the supps or the valtrex as it

turns

> > out...I wonder if we have erred by the switch to Famvir as well

as

> > dropping PTC - anyone out there know recovered kids from PTC

> > protocol...or, gosh, fully recovered kids period? As I said

there are

> > not many with recovered kids who post...Christel is one of the

> > exceptions and I know there are a few others who are almost there

> > too...I just have never MET a recovered kid...has anyone?

> >

> > Thanks. Di

> >

>

[Guest guest]

I've met two kids that I think are brilliant. One boy, one girl. Both

were severe to begin with.

I was watching them like a hawk and could not pick up one trait to

reveal them as ASD (ex ASD I should say).

So yeah, I've seen it with my own eyes.

diatplay wrote:

I didn't mean to start anything. Please do not fight...we will

take

close to recovered eve in this house...I was just wondering bc

's has lost the dx and she admits he still has issues. Stan's

lost the dx but isn't a public figure, so nobody has seen or met him

that I know of, so he is not OUT THERE like 's kid to show us

where we can hope to get with this thing...and I just don;t know

anybdoy - well 1 person whose kid is very close to recovered - but

just one...and I was wondering with so many of us posting here dos

anybody know -not heard about-actually know people who have brought

their kids out of this thing...it was not meant to offend. I am just

feeling guily bc Matt turns three in ugust and I am scraed that I

blew it already bc I pulled things bc I never found anybody to etell

me if we were going in the right direction or not...and the we though

the stuff we were doing that was helping was hurting....it feels like

almost back to square one in this house, even though I know we have

made great gains, but still, nothing like before...Di

> >

> > Nope, even the ones who are high funtioning and "seem" normal

still

> have little issues here and there... with socialization,

stimming, etc.

> >

> > Stan rarely posts and many other

parents

have

> moved on too...

> >

> >

> > ...I am hoping this is bc their kids are recovered and their

lives

> are

> > busy with so much NORMAL now...for those who have followed

this

list

> > for a long time are there many out there who have or know

recovered

> > kids...I am having a hard time finding any so I am wondering

if

> anyone

> > else has been able to duplicate Stan's success wtih

antivirals...my

> son

> > is on Famvir and researching WAY back in the archives it

seems

Stan

> is

> > very pro valtrex over Famvir...my osn like his showed no viral

> titers,

> > just very low NKcells...Mtt was a responder to Valtrex, but

we

wre

> > doing the PTC supplements too...gut issues took us off all of

it,

> but

> > the gut issues were not bc of the supps or the valtrex as it

turns

> > out...I wonder if we have erred by the switch to Famvir as

well

as

> > dropping PTC - anyone out there know recovered kids from PTC

> > protocol...or, gosh, fully recovered kids period? As I said

there

> are

> > not many with recovered kids who post...Christel is one of the

> > exceptions and I know there are a few others who are almost

there

> > too...I just have never MET a recovered kid...has anyone?

> >

> > Thanks. Di

> >

>

[Guest guest]

Awesome, - thanks. This roadbump is hard bc we cannot figure

out if we should just try and go back to what was working before or

which way to go next...Matt was succeeding with the PTC stuff, but

Goldberg said that it was all BS and others told us they didn't have

a great trackrecord, so we bailed as it is so $$$$...also Stan did

not have to do such elaborate supping...we may have erred, bigtime.

We just do not know. We have yet to be able to get our kid to comply

with ANY healing diet protocol - sigh - he is just not eating much at

all these days, so the belly is flatter, but yikes...the food thing!

He is on Famvir and we guess/hope that it is doing what it

should...feelign a bit run down, chelation is not an option for our

copper toxic kiddo, and so far we are really disappointed in ABA...

But...it will get better...we have only been at this a year, and we

have stumbled too much of the way pulled in every direction. I blame

myself for that. Di

> > > >

> > > > Nope, even the ones who are high funtioning and " seem " normal

> > still

> > > have little issues here and there... with socialization,

> > stimming, etc.

> > > >

> > > > Stan rarely posts and many other

parents

> > have

> > > moved on too...

> > > >

> > > >

> > > > ...I am hoping this is bc their kids are recovered and their

> > lives

> > > are

> > > > busy with so much NORMAL now...for those who have followed

this

> > list

> > > > for a long time are there many out there who have or know

> > recovered

> > > > kids...I am having a hard time finding any so I am wondering

if

> > > anyone

> > > > else has been able to duplicate Stan's success wtih

> > antivirals...my

> > > son

> > > > is on Famvir and researching WAY back in the archives it seems

> > Stan

> > > is

> > > > very pro valtrex over Famvir...my osn like his showed no viral

> > > titers,

> > > > just very low NKcells...Mtt was a responder to Valtrex, but we

> > wre

> > > > doing the PTC supplements too...gut issues took us off all of

> > it,

> > > but

> > > > the gut issues were not bc of the supps or the valtrex as it

> > turns

> > > > out...I wonder if we have erred by the switch to Famvir as

well

> > as

> > > > dropping PTC - anyone out there know recovered kids from PTC

> > > > protocol...or, gosh, fully recovered kids period? As I said

> > there

> > > are

> > > > not many with recovered kids who post...Christel is one of the

> > > > exceptions and I know there are a few others who are almost

> > there

> > > > too...I just have never MET a recovered kid...has anyone?

> > > >

> > > > Thanks. Di

> > > >

> > >

> >

> >

>

[Guest guest]

I have seen Stan in person at an Autism One conference. His son is

still doing well. We started diet interventions at 3 1/2 years with

our twins and we had recovery within a year. At this point it is

managed recovery for my twins as we still do the diet and and some

supplementing. I will probably always do the diet, but my friends son

is not doing any diet or supplements any longer. He is now 10 and

really doing just fine.

Stan is very busy doing so much for the Autism community. He speaks at

conferences, attended the ralley in July, runs the childrens

cornerschool, researching, writing a book, and taking care of his

family.

Nickerson

diatplay wrote:

I didn't mean to start anything. Please do not fight...we will take close to recovered eve in this house...I was just wondering bc 's has lost the dx and she admits he still has issues. Stan's lost the dx but isn't a public figure, so nobody has seen or met him that I know of, so he is not OUT THERE like 's kid to show us where we can hope to get with this thing...and I just don;t know

anybdoy - well 1 person whose kid is very close to recovered - but just one...and I was wondering with so many of us posting here dos anybody know -not heard about-actually know people who have brought their kids out of this thing...it was not meant to offend. I am just feeling guily bc Matt turns three in ugust and I am scraed that I blew it already bc I pulled things bc I never found anybody to etell me if we were going in the right direction or not...and the we though the stuff we were doing that was helping was hurting....it feels like almost back to square one in this house, even though I know we have made great gains, but still, nothing like before...Di

>

> Nope, even the ones who are high funtioning and "seem" normal

still

have little issues here and there... with socialization,

stimming, etc.

>

> Stan rarely posts and many other parents

have

moved on too...

>

>

> ...I am hoping this is bc their kids are recovered and their

lives

are

> busy with so much NORMAL now...for those who have followed this

list

> for a long time are there many out there who have or know

recovered

> kids...I am having a hard time finding any so I am wondering if

anyone

> else has been able to duplicate Stan's success wtih

antivirals...my

son

> is on Famvir and researching WAY back in the archives it seems

Stan

is

> very pro valtrex over Famvir...my osn like his showed no viral

titers,

> just very low NKcells...Mtt was a responder to Valtrex, but we

wre

> doing the PTC supplements too...gut issues took us off all of

it,

but

> the gut issues were not bc of the supps or the valtrex as it

turns

> out...I wonder if we have erred by the switch to Famvir as well

as

> dropping PTC - anyone out there know recovered kids from PTC

> protocol...or, gosh, fully recovered kids period? As I said

there

are

> not many with recovered kids who post...Christel is one of the

> exceptions and I know there are a few others who are almost

there

> too...I just have never MET a recovered kid...has anyone?

>

> Thanks. Di

>

------------------------------------

[Guest guest]

Di - We're all looking for hope, me included. Seeing/knowing recovered kids is always inspiring. To me, being "recovered" means being indistinguishable from peers. The kids I know that have lost their diagnosis are still not indistinguishable from peers, although they are still adorable, doing great, and high functioning. I would give my right arm to get my child to this point. I don't/won't care if my son grows up to be a quirky person, I just pray for him to be a fully functioning, contributing, independant member of society someday.

I saw Stan at the last DAN conf. but I didn't get to talk to him. I do believe he presented at some point... maybe to the physician's group? I thought I read somewhere that he had ADD, not really autism per say.

As for the antivirals, we stopped using them for my son. We tried them for upwards of 9 months. Our DAN says if they haven't helped by now, they aren't going to.

Stan rarely posts and many other parents have> moved on too...> >> >> > ...I am hoping this is bc their kids are recovered and their lives> are> > busy with so much NORMAL now...for those who have followed this list> > for a long time are there many out there who have or know recovered> > kids...I am having a hard time finding any so I am wondering if> anyone> > else has been able to duplicate Stan's success wtih antivirals...my> son> > is on Famvir and researching WAY back in the archives it seems Stan> is> > very pro valtrex over Famvir...my osn like his showed no viral> titers,> > just very low NKcells...Mtt was a responder to Valtrex, but we wre> > doing the PTC supplements too...gut issues took us off all of it,> but> > the gut issues were not bc of the supps or the valtrex as it turns> > out...I wonder if we have erred by the switch to Famvir as well as> > dropping PTC - anyone out there know recovered kids from PTC> > protocol...or, gosh, fully recovered kids period? As I said there> are> > not many with recovered kids who post...Christel is one of the> > exceptions and I know there are a few others who are almost there> > too...I just have never MET a recovered kid...has anyone?> >> > Thanks. Di> >>

[Guest guest]

I think it was who made a suggestion about going out to www.onibasu.com and doing a search regarding the high copper issue and chelation with Andy Cutler protocol, so I did. I read out there that Andy has changed his viewpoint with regard to chelating high copper kids. I didn't read too much because I have yet to know if my child is copper toxic or not, but you may want to go out there, Di, and see if there's any information about it that may benefit your child. diatplay wrote: Awesome, - thanks. This roadbump is hard bc we cannot figure out if we should just try and go back to what was working before or which way to go next...Matt was succeeding with the PTC stuff, but Goldberg said that it was all BS and others told us they didn't have a great trackrecord, so we bailed as it is so $$$$...also Stan did not have to do such elaborate supping...we may have erred, bigtime. We just do not know. We have yet to be able to get our kid to comply with ANY healing diet protocol - sigh - he is just not eating much at all these days, so the belly is flatter, but yikes...the food thing! He is on Famvir and we guess/hope that it is doing what it should...feelign a bit run down, chelation is not an option for our copper toxic kiddo, and so far we are really disappointed in ABA...But...it will get better...we have only

been at this a year, and we have stumbled too much of the way pulled in every direction. I blame myself for that. Di> > > >> > > > Nope, even the ones who are high funtioning and "seem" normal> > still> > > have little issues here and there... with socialization,> > stimming, etc.> > > >> > > > Stan rarely posts and many other parents> > have> >

> moved on too...> > > >> > > >> > > > ...I am hoping this is bc their kids are recovered and their> > lives> > > are> > > > busy with so much NORMAL now...for those who have followed this> > list> > > > for a long time are there many out there who have or know> > recovered> > > > kids...I am having a hard time finding any so I am wondering if> > > anyone> > > > else has been able to duplicate Stan's success wtih> > antivirals...my> > > son> > > > is on Famvir and researching WAY back in the archives it seems> > Stan> > > is> > > > very pro valtrex over Famvir...my osn like his showed no viral> > > titers,> > > > just very low NKcells...Mtt was a responder to Valtrex, but we> >

wre> > > > doing the PTC supplements too...gut issues took us off all of> > it,> > > but> > > > the gut issues were not bc of the supps or the valtrex as it> > turns> > > > out...I wonder if we have erred by the switch to Famvir as well> > as> > > > dropping PTC - anyone out there know recovered kids from PTC> > > > protocol...or, gosh, fully recovered kids period? As I said> > there> > > are> > > > not many with recovered kids who post...Christel is one of the> > > > exceptions and I know there are a few others who are almost> > there> > > > too...I just have never MET a recovered kid...has anyone?> > > >> > > > Thanks. Di> > > >> > >> >>

>>

[Guest guest]

----- Original Message -----

From: diatplay

....I am hoping this is bc their kids are recovered and their lives are busy with so much NORMAL now...for those who have followed this list for a long time are there many out there who have or know recovered kids..

====>Di,

Are you looking for any recovered kids or kids who recovered on just antiviral treatment, rx or natural?

[Guest guest]

Di,

Please don't be discouraged. For my son's third birthday, we bought

a huge pizza from Sam's Club along with a big gluten and casein

FILLED cake. We were still cruisin' the drive thru's for chicken

nuggets and my son was absolutely in no therapy and we were

completely clueless about autism. It still seems surreal. We didn't

start the GFCF diet fully until he was 3 3/4 yrs. old. He is now 4

yrs. old and he has made big improvements. I tend to stick with

everything regardless if he seems to have a not so good reaction to

it...mainly in regards to antifungals and mb12. Sometimes " bad

reactions " means it is actually working...not that he isn't

tolerating it. I saw some bad with the good, but I am glad we stuck

it out. The beauty of your situation is that your son is SO YOUNG!!

I had no clue until my son was around 3 1/2. You still have time to

go back and try things again. Have you tried gfcf, very limited

sugar, antifungals, cod liver oil and mb12?? Although my son is on a

host of other supplements, these seem to be essential for him. Oh,

and my son had clostridia as well and we still have issues with

constipation at times, but he continues to gain more and more

language daily, his spaciness is completely gone, his comprehension

is so much better and he is just a pleasant person now, so something

is working. He is not recovered, but is on his way and our life is

so much easier now. Please don't give up and try not to concentrate

so much on the individual things...look at the big picture and take

a comprehensive approach. Not just diet, not just gut stuff, but the

bigger picture.

> > >

> > > Nope, even the ones who are high funtioning and " seem "

normal

> still

> > have little issues here and there... with socialization,

> stimming, etc.

> > >

> > > Stan rarely posts and many other

parents

> have

> > moved on too...

> > >

> > >

> > > ...I am hoping this is bc their kids are recovered and their

> lives

> > are

> > > busy with so much NORMAL now...for those who have followed

this

> list

> > > for a long time are there many out there who have or know

> recovered

> > > kids...I am having a hard time finding any so I am wondering

if

> > anyone

> > > else has been able to duplicate Stan's success wtih

> antivirals...my

> > son

> > > is on Famvir and researching WAY back in the archives it

seems

> Stan

> > is

> > > very pro valtrex over Famvir...my osn like his showed no

viral

> > titers,

> > > just very low NKcells...Mtt was a responder to Valtrex, but

we

> wre

> > > doing the PTC supplements too...gut issues took us off all

of

> it,

> > but

> > > the gut issues were not bc of the supps or the valtrex as it

> turns

> > > out...I wonder if we have erred by the switch to Famvir as

well

> as

> > > dropping PTC - anyone out there know recovered kids from PTC

> > > protocol...or, gosh, fully recovered kids period? As I said

> there

> > are

> > > not many with recovered kids who post...Christel is one of

the

> > > exceptions and I know there are a few others who are almost

> there

> > > too...I just have never MET a recovered kid...has anyone?

> > >

> > > Thanks. Di

> > >

> >

>

[Guest guest]

I've met 3 recovered kids but know of more. One I've met recovered

using Yasko. the other treating lyme, the third did DAN, then Yasko

then homeopathy.

>

> ...I am hoping this is bc their kids are recovered and their lives

are

> busy with so much NORMAL now...for those who have followed this

list

> for a long time are there many out there who have or know recovered

> kids...I am having a hard time finding any so I am wondering if

anyone

> else has been able to duplicate Stan's success wtih antivirals...my

son

> is on Famvir and researching WAY back in the archives it seems Stan

is

> very pro valtrex over Famvir...my osn like his showed no viral

titers,

> just very low NKcells...Mtt was a responder to Valtrex, but we wre

> doing the PTC supplements too...gut issues took us off all of it,

but

> the gut issues were not bc of the supps or the valtrex as it turns

> out...I wonder if we have erred by the switch to Famvir as well as

> dropping PTC - anyone out there know recovered kids from PTC

> protocol...or, gosh, fully recovered kids period? As I said there

are

> not many with recovered kids who post...Christel is one of the

> exceptions and I know there are a few others who are almost there

> too...I just have never MET a recovered kid...has anyone?

>

> Thanks. Di

>

[Guest guest]

I know of a few recovered kids:

- my nephew - he was severe; biggest WOW for him was having adenoids and tonsils removed - it completely pulled him out of his black hole and is when language developed; also avoids allergens and takes CLO

- another boy in my former town - did full diet/biomed around age 3 and is fully recovered

- 2 boys of parents I met at the rally - they attribute their boys recoveries to SCD & NAET but have also done chelation by chlorella, therapies, supp's,etc.

Dana

-----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of ratlenhum@...Sent: Thursday, July 24, 2008 1:14 AMTo: mb12 valtrex Subject: Re: Stan rarely posts and many other parents have moved on too...

The most recovered kid I know in person just still has a minor speech delay. Very minor and he's indistinguishable from peers.

He's also never done a single biomed thing.

other than him, I don't know any recovered kids in person

Kerrie

In a message dated 7/24/2008 1:00:33 A.M. Eastern Daylight Time, diatplay writes:

....I just have never MET a recovered kid...has anyone?

Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

[Guest guest]

what is CLO?

Subject: RE: Stan rarely posts and many other parents have moved on too...To: mb12 valtrex Date: Thursday, July 24, 2008, 8:59 AM

I know of a few recovered kids:

- my nephew - he was severe; biggest WOW for him was having adenoids and tonsils removed - it completely pulled him out of his black hole and is when language developed; also avoids allergens and takes CLO

- another boy in my former town - did full diet/biomed around age 3 and is fully recovered

- 2 boys of parents I met at the rally - they attribute their boys recoveries to SCD & NAET but have also done chelation by chlorella, therapies, supp's,etc.

Dana

Re: Stan rarely posts and many other parents have moved on too...

The most recovered kid I know in person just still has a minor speech delay. Very minor and he's indistinguishable from peers.

He's also never done a single biomed thing.

other than him, I don't know any recovered kids in person

Kerrie

In a message dated 7/24/2008 1:00:33 A.M. Eastern Daylight Time, diatplayyahoo (DOT) com writes:

....I just have never MET a recovered kid...has anyone?

Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.

[Guest guest]

yes, sorry, rereading this now my reply was too rushed ... and sounds

harsh, apologies

gonna take the risk of sounding harsh again (don't mean to, honest) -

how many kids do you know personally/have met who are doing biomed or

any other intensive autism treatment?

nx

> >

> > Nope, even the ones who are high funtioning and " seem " normal

still

> have little issues here and there... with socialization, stimming,

etc.

> >

> > Stan rarely posts and many other parents

have

> moved on too...

> >

> >

> > ...I am hoping this is bc their kids are recovered and their lives

> are

> > busy with so much NORMAL now...for those who have followed this

list

> > for a long time are there many out there who have or know

recovered

> > kids...I am having a hard time finding any so I am wondering if

> anyone

> > else has been able to duplicate Stan's success wtih

antivirals...my

> son

> > is on Famvir and researching WAY back in the archives it seems

Stan

> is

> > very pro valtrex over Famvir...my osn like his showed no viral

> titers,

> > just very low NKcells...Mtt was a responder to Valtrex, but we wre

> > doing the PTC supplements too...gut issues took us off all of it,

> but

> > the gut issues were not bc of the supps or the valtrex as it turns

> > out...I wonder if we have erred by the switch to Famvir as well as

> > dropping PTC - anyone out there know recovered kids from PTC

> > protocol...or, gosh, fully recovered kids period? As I said there

> are

> > not many with recovered kids who post...Christel is one of the

> > exceptions and I know there are a few others who are almost there

> > too...I just have never MET a recovered kid...has anyone?

> >

> > Thanks. Di

> >

>

[Guest guest]

I have known personally 2 recovered kids' who's parents did not use diet or biomed I am sorry to say.I still do biomed and diet for my kid.But sometimes get discouraged whn I meet other ASD not doing this and they are so much better off than my own son.Not trying to be negative but that is my reality so far.I hear of alot of recvered kids' through biomed but also have never met any.

Thanks for listening...

"To accomplish great things, we must not only act, wemust dream; not only plan but also believe."

Subject: Re: Stan rarely posts and many other parents have moved on too...To: mb12 valtrex Received: Thursday, July 24, 2008, 12:51 PM

yes, sorry, rereading this now my reply was too rushed ... and soundsharsh, apologiesgonna take the risk of sounding harsh again (don't mean to, honest) - how many kids do you know personally/have met who are doing biomed orany other intensive autism treatment?nx> >> > Nope, even the ones who are high funtioning and "seem" normalstill> have little issues here and there... with socialization, stimming,etc.> >> > Stan rarely posts and many other parentshave> moved on too...> >> >> > ...I am hoping this is bc their kids are recovered and their lives> are> > busy with so much NORMAL now...for those who have followed thislist> > for a long time are there many out there who have or knowrecovered> > kids...I am having a hard time finding

any so I am wondering if> anyone> > else has been able to duplicate Stan's success wtihantivirals.. .my> son> > is on Famvir and researching WAY back in the archives it seemsStan> is> > very pro valtrex over Famvir...my osn like his showed no viral> titers,> > just very low NKcells...Mtt was a responder to Valtrex, but we wre> > doing the PTC supplements too...gut issues took us off all of it,> but> > the gut issues were not bc of the supps or the valtrex as it turns> > out...I wonder if we have erred by the switch to Famvir as well as> > dropping PTC - anyone out there know recovered kids from PTC> > protocol...or, gosh, fully recovered kids period? As I said there> are> > not many with recovered kids who post...Christel is one of the> > exceptions and I know there are a few others who are

almost there> > too...I just have never MET a recovered kid...has anyone?> >> > Thanks. Di> >>

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cod liver oil

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: Stan rarely posts and many other parents have moved on too...

The most recovered kid I know in person just still has a minor speech delay. Very minor and he's indistinguishable from peers.

He's also never done a single biomed thing.

other than him, I don't know any recovered kids in person

Kerrie

In a message dated 7/24/2008 1:00:33 A.M. Eastern Daylight Time, diatplayyahoo (DOT) com writes:

....I just have never MET a recovered kid...has anyone?

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[Guest guest]

we have several here on groups. my son is also recovered and the news did a story on him this last april for autism awareness month and we had all kinds of people coming up to us at his birthday party saying they had NO idea he had autism....

he was SEVER, to the point they told us he would never talk again and would need to live in a padded room with a helmet because of hisself abuse. had no lang, only ate animal crackers and gram crackers and drank a gallon of milk a day and or he was going to be institutionalized. we found the gfcf diet and life started to change rapidly....we read dr Shaws biological treatments for autism and PDD and it was life changing. he is completely mainstreamed now ect

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Stan rarely posts and many other parentshave> moved on too...> >> >> > ...I am hoping this is bc their kids are recovered and their lives> are> > busy with so much NORMAL now...for those who have followed thislist> > for a long time are there many out there who have or knowrecovered> > kids...I am having a hard time finding any so I am wondering if> anyone> > else has been able to duplicate Stan's success wtihantivirals.. .my> son> > is on Famvir and researching WAY back in the archives it seemsStan> is> > very pro valtrex over Famvir...my osn like his showed no viral> titers,> > just very low NKcells...Mtt was a responder to Valtrex, but we wre> > doing the PTC supplements too...gut issues took us off all of it,> but> > the gut issues were not bc of the supps or the valtrex as it turns> > out...I wonder if we have erred by the switch to Famvir as well as> > dropping PTC - anyone out there know recovered kids from PTC> > protocol...or, gosh, fully recovered kids period? As I said there> are> > not many with recovered kids who post...Christel is one of the> > exceptions and I know there are a few others who are almost there> > too...I just have never MET a recovered kid...has anyone?> >> > Thanks. Di> >>

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[Guest guest]

heck we all stim in ways, play with our hair, bite our nails when board, stair out the window and day dream, rock in our chairs, play with our cell phones ect, there are NT people who could care less to be social, doesn't make them autistic, just not social or board ect.....

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Stan rarely posts and many other parents havemoved on too...>>> ...I am hoping this is bc their kids are recovered and their livesare> busy with so much NORMAL now...for those who have followed this list> for a long time are there many out there who have or know recovered> kids...I am having a hard time finding any so I am wondering ifanyone> else has been able to duplicate Stan's success wtih antivirals...myson> is on Famvir and researching WAY back in the archives it seems Stanis> very pro valtrex over Famvir...my osn like his showed no viraltiters,> just very low NKcells...Mtt was a responder to Valtrex, but we wre> doing the PTC supplements too...gut issues took us off all of it,but> the gut issues were not bc of the supps or the valtrex as it turns> out...I wonder if we have erred by the switch to Famvir as well as> dropping PTC - anyone out there know recovered kids from PTC> protocol...or, gosh, fully recovered kids period? As I said thereare> not many with recovered kids who post...Christel is one of the> exceptions and I know there are a few others who are almost there> too...I just have never MET a recovered kid...has anyone?>> Thanks. Di>Internal Virus Database is out of date.

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[Guest guest]

kari sounds like your remaining issues are yeast and IGG related, if you test there those should be easy to resolve issues physically speaking

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: Stan rarely posts and many other parents have moved on too...

I think that's a tough question. There are probably so many levels of"recovery". For instance, to most people, even trained therapists, myson appears recovered. The few of us who know him and his issues bestknow that there are still a few things to work on. His hypersensitivehearing and his distended abdomen are the two clues that I have thatsomething is still not quite right with him. He also has some verysmall auditory processing issues. and he has a little troubleinitiating conversations with peers. Even those seem to be resolvingnow (when it does totally, I think we'll probably drop his IEP). Myhusband and I won't claim to be recovered until those issues areresolved AND he is able to eat normally AND he is off most of hissupplements. we'll never go back to standard american diet afterlearning so much about food additives, but i would like my kid to beable to eat something closer to normal. I'm not sure if everyone's ideas of recovery are the same, though. Iknow McCarthy and Stan both talk about recovery like it'sgetting hit by a bus. There will always be some underlying issues. Maybe their kids still have a few of these things going on? I don'tknow...anyway, for what it's worth, has come a LONG way. That beingsaid, I don't think he was as bad off as a lot of kids to begin with.Always had auditory hypersensitivity that altered our lives...wherewe could take him, what we could do, etc. big language delays. couldn't answer yes/no questions until he was almost 4 years old. conversations only started happening with PRT and TONS of therapy. one on one at preschool, ST, OT, group ST. and everything we did athome. and then there was his aggressive behavior. the worst everseen by our local autism clinic. improved, but not perfect. but thenagain, what 6 year old boy behaves perfectly? We feel strongly thatthe progress wouldn't have happened without taking gluten out. caseinwas out for a while as well, but seems to be the gluten that gives waymore problems. we've treated for clostridia, currently on SCD (wecheat on supplements only) doing MB12 injections. His progress overthe last two years has been really great. We're definitely pleased, but will feel even better when we can gethis hearing regulated, drop the IEP (which we really only have in casehis condition would ever worsen...easy to keep, nearly impossible toget back), and get this gut in tip top shape I think we'll drophis classroom aide in October...KariI >> ...I am hoping this is bc their kids are recovered and their lives are > busy with so much NORMAL now...for those who have followed this list > for a long time are there many out there who have or know recovered > kids...I am having a hard time finding any so I am wondering if anyone > else has been able to duplicate Stan's success wtih antivirals...my son > is on Famvir and researching WAY back in the archives it seems Stan is > very pro valtrex over Famvir...my osn like his showed no viral titers, > just very low NKcells...Mtt was a responder to Valtrex, but we wre > doing the PTC supplements too...gut issues took us off all of it, but > the gut issues were not bc of the supps or the valtrex as it turns > out...I wonder if we have erred by the switch to Famvir as well as > dropping PTC - anyone out there know recovered kids from PTC > protocol...or, gosh, fully recovered kids period? As I said there are > not many with recovered kids who post...Christel is one of the > exceptions and I know there are a few others who are almost there > too...I just have never MET a recovered kid...has anyone?> > Thanks. Di>Internal Virus Database is out of date.

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[Guest guest]

that is what my son is now, how bad off was he?

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Re: Stan rarely posts and many other parents have moved on too...

The most recovered kid I know in person just still has a minor speech delay. Very minor and he's indistinguishable from peers.

He's also never done a single biomed thing.

other than him, I don't know any recovered kids in person

Kerrie

In a message dated 7/24/2008 1:00:33 A.M. Eastern Daylight Time, diatplay writes:

....I just have never MET a recovered kid...has anyone?

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[Guest guest]

" how many kids do you know personally/have met who are doing biomed " -

- I am the first of any friends I have with autistic children to do

biomed intervention. That is why the online community is so

incredibly important to me. I would have no support if it weren't

for my new online friends who support and share their biomed

experiences. My family doesn't support my decision and if I were hit

by a Mac truck today, my son's biomed would end.

That said...I have counseled 2 new friends with autistic children

into biomedical intervention. One is just starting, the other is 2

months in with AMAZING gains. Other than a few quirks, you'd never

tell that he is autistic. And to think, just over a year ago, they

had considered institutionalizing their son. Thank God for the

biomed community!!!!!!!!!!!

I believe that there are only a fraction of autistic parents who are

going out on a limb as we are. Most are taking the advice of their

western med (non DAN) doctors and doing nothing at all but therapy.

I also believe that most of these parents don't even know that their

child could be helped....Pitty!!

hugs, karen

> > >

> > > Nope, even the ones who are high funtioning and " seem " normal

> still

> > have little issues here and there... with socialization,

stimming,

> etc.

> > >

> > > Stan rarely posts and many other

parents

> have

> > moved on too...

> > >

> > >

> > > ...I am hoping this is bc their kids are recovered and their

lives

> > are

> > > busy with so much NORMAL now...for those who have followed

this

> list

> > > for a long time are there many out there who have or know

> recovered

> > > kids...I am having a hard time finding any so I am wondering

if

> > anyone

> > > else has been able to duplicate Stan's success wtih

> antivirals...my

> > son

> > > is on Famvir and researching WAY back in the archives it seems

> Stan

> > is

> > > very pro valtrex over Famvir...my osn like his showed no viral

> > titers,

> > > just very low NKcells...Mtt was a responder to Valtrex, but

we wre

> > > doing the PTC supplements too...gut issues took us off all of

it,

> > but

> > > the gut issues were not bc of the supps or the valtrex as it

turns

> > > out...I wonder if we have erred by the switch to Famvir as

well as

> > > dropping PTC - anyone out there know recovered kids from PTC

> > > protocol...or, gosh, fully recovered kids period? As I said

there

> > are

> > > not many with recovered kids who post...Christel is one of the

> > > exceptions and I know there are a few others who are almost

there

> > > too...I just have never MET a recovered kid...has anyone?

> > >

> > > Thanks. Di

> > >

> >

>

[Guest guest]

I truly believe in biomedical approach to autism. That being said, I do not "know" a child who has recovered. The only other autistic kids I "know" are the kids in my son's special education class. The parents of these kids (and their teacher) have not heard of biomed. I am a strange human to them who is trying new and "dangerous" things like chelation. This is why I do not "know" an autistic who has recovered.

Likewise, I do not know a cancer patient who has recovered. Does anyone doubt there are cancer patients who have recovered?

Subject: Re: Stan rarely posts and many other parents have moved on too...To: mb12 valtrex Date: Thursday, July 24, 2008, 1:36 PM

"how many kids do you know personally/have met who are doing biomed" -- I am the first of any friends I have with autistic children to do biomed intervention. That is why the online community is so incredibly important to me. I would have no support if it weren't for my new online friends who support and share their biomed experiences. My family doesn't support my decision and if I were hit by a Mac truck today, my son's biomed would end.That said...I have counseled 2 new friends with autistic children into biomedical intervention. One is just starting, the other is 2 months in with AMAZING gains. Other than a few quirks, you'd never tell that he is autistic. And to think, just over a year ago, they had considered institutionalizing their son. Thank God for the biomed community!!! !!!!!!!!I believe that there are only a fraction of autistic parents who are going out on a limb as we are.

Most are taking the advice of their western med (non DAN) doctors and doing nothing at all but therapy. I also believe that most of these parents don't even know that their child could be helped....Pitty! !hugs, karen> > >> > > Nope, even the ones who are high funtioning and "seem" normal> still> > have little issues here and there... with

socialization, stimming,> etc.> > >> > > Stan rarely posts and many other parents> have> > moved on too...> > >> > >> > > ...I am hoping this is bc their kids are recovered and their lives> > are> > > busy with so much NORMAL now...for those who have followed this> list> > > for a long time are there many out there who have or know> recovered> > > kids...I am having a hard time finding any so I am wondering if> > anyone> > > else has been able to duplicate Stan's success

wtih> antivirals.. .my> > son> > > is on Famvir and researching WAY back in the archives it seems> Stan> > is> > > very pro valtrex over Famvir...my osn like his showed no viral> > titers,> > > just very low NKcells...Mtt was a responder to Valtrex, but we wre> > > doing the PTC supplements too...gut issues took us off all of it,> > but> > > the gut issues were not bc of the supps or the valtrex as it turns> > > out...I wonder if we have erred by the switch to Famvir as well as> > > dropping PTC - anyone out there know recovered kids from PTC> > > protocol...or, gosh, fully recovered kids period? As I said there> > are> > > not many with recovered kids who post...Christel is one of the> > > exceptions and I know there are a few others who are

almost there> > > too...I just have never MET a recovered kid...has anyone?> > >> > > Thanks. Di> > >> >>

[Guest guest]

Our friend's daughter lost her diagnosis through ABA alone. No diet or

biomeds. She was 2 1/2 when she started a full time, 35 hour a week

ABA program and was in it for 2 full years. She still has sensory

issues and is still a very picky eater. She doesn't do a lot of

pretend play and prefers to play with boys. But she no longer

qualifies as autistic.

I used to have a different view of recovery. I realize now that the

child can still have issues, like sensory, auditory processing etc.

But they will not meet the critera for the diagnosis of autism anymore.

This child is the only child I know in person who has recovered.

>

> ...I am hoping this is bc their kids are recovered and their lives are

> busy with so much NORMAL now...for those who have followed this list

> for a long time are there many out there who have or know recovered

> kids...I am having a hard time finding any so I am wondering if anyone

> else has been able to duplicate Stan's success wtih antivirals...my son

> is on Famvir and researching WAY back in the archives it seems Stan is

> very pro valtrex over Famvir...my osn like his showed no viral titers,

> just very low NKcells...Mtt was a responder to Valtrex, but we wre

> doing the PTC supplements too...gut issues took us off all of it, but

> the gut issues were not bc of the supps or the valtrex as it turns

> out...I wonder if we have erred by the switch to Famvir as well as

> dropping PTC - anyone out there know recovered kids from PTC

> protocol...or, gosh, fully recovered kids period? As I said there are

> not many with recovered kids who post...Christel is one of the

> exceptions and I know there are a few others who are almost there

> too...I just have never MET a recovered kid...has anyone?

>

> Thanks. Di

>

[Guest guest]

I think she meant we don't see Ethan all the time. In case I'm wrong,

I have met Stan, too. He was very visible at the DAN! in NJ in April

but I met and talked with him in Malta, NY at a very small meeting in

February. He even sprayed my nose with MB12 and I hugged him twice.

Very kind, personable, and feels like he's your brother.

Anywho, I have been quiet, mostly busy, checking other sources,

tweaking our treatments, and trying to teach others along the way. We

are not recovered BUT if were talking I think almost every

other manifestation of autism would be overlooked in her case. I

believe we're nearing the end of most gut issues but I'd rather wait

until the end of the year to decide for sure. That will give us a

whole year plus recovering the gut. It wasn't super bad to start.

I am sorry if anyone new feels like we all disappeared. I felt I was

the new kid anyway and many others were much smarter. I do check back

from time to time, especially if I have a question, but I don't read

all the dailies anymore. If I can be of help to anyone feel free to

email me directly.

Love to all, Darlene

> I have seen Stan in person at an Autism One conference. His son is

still

> doing well. We started diet interventions at 3 1/2 years with our

twins

> and we had recovery within a year. At this point it is managed recovery

> for my twins as we still do the diet and and some supplementing. I

will

> probably always do the diet, but my friends son is not doing any

diet or

> supplements any longer. He is now 10 and really doing just fine.

> Stan is very busy doing so much for the Autism community. He speaks at

> conferences, attended the ralley in July, runs the childrens

> cornerschool, researching, writing a book, and taking care of his

family.

> Nickerson

[Guest guest]

I don't doubt it! My dad just recovered from stage 3 mouth cancer!

Anything is possible. I believe in biomeds too. I know my child will

be recovered one day.

> > > >

> > > > Nope, even the ones who are high funtioning and " seem " normal

> > still

> > > have little issues here and there... with socialization,

> stimming,

> > etc.

> > > >

> > > > Stan rarely posts and many other

> parents

> > have

> > > moved on too...

> > > >

> > > >

> > > > ...I am hoping this is bc their kids are recovered and their

> lives

> > > are

> > > > busy with so much NORMAL now...for those who have followed

> this

> > list

> > > > for a long time are there many out there who have or know

> > recovered

> > > > kids...I am having a hard time finding any so I am wondering

> if

> > > anyone

> > > > else has been able to duplicate Stan's success wtih

> > antivirals.. .my

> > > son

> > > > is on Famvir and researching WAY back in the archives it seems

> > Stan

> > > is

> > > > very pro valtrex over Famvir...my osn like his showed no viral

> > > titers,

> > > > just very low NKcells...Mtt was a responder to Valtrex, but

> we wre

> > > > doing the PTC supplements too...gut issues took us off all of

> it,

> > > but

> > > > the gut issues were not bc of the supps or the valtrex as it

> turns

> > > > out...I wonder if we have erred by the switch to Famvir as

> well as

> > > > dropping PTC - anyone out there know recovered kids from PTC

> > > > protocol...or, gosh, fully recovered kids period? As I said

> there

> > > are

> > > > not many with recovered kids who post...Christel is one of the

> > > > exceptions and I know there are a few others who are almost

> there

> > > > too...I just have never MET a recovered kid...has anyone?

> > > >

> > > > Thanks. Di

> > > >

> > >

> >

>

[Guest guest]

i know that when you get your child to a certain point you shout it from the roof tops but then you want to enjoy the fruits of your labor as well and move into the world you worked so hard to get to, doing more normal things, more social events, wtih people WITHOUT special needs children, so YOUR newly recovered child can have that interaction and continual challenge to grow with peers.

I have felt that pull at times, but I have an NT daughter with ASD health issues but has never been on spectrum, (sure she would have been if we had vaccinated) and my son still has mito issues that we deal with and PANDAS. I also made a promise way back in the darkest days that if God brought us on this trip from vermont to california as I put it, that when we got to California we would help others find there way to. so I remain to do so. I have an aspie adult friend as well that I am trying to continueally learn for what things help her and unwravel her issues. she has made great gains this last year as well. just because they aren't here anymore doesn't mean they aren't around, there are 1000's of recovered kids now, from DAN protical so to put it, they just may not linger now as they aren't in need of the support that is here. they have recieved there schooling in what to do, and now have graduated so to speak and are now using those skills in the real world, just like we go on to do jobs after college.

Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwishes

Stan rarely posts and many other parents have moved on too...

....I am hoping this is bc their kids are recovered and their lives are busy with so much NORMAL now...for those who have followed this list for a long time are there many out there who have or know recovered kids...I am having a hard time finding any so I am wondering if anyone else has been able to duplicate Stan's success wtih antivirals...my son is on Famvir and researching WAY back in the archives it seems Stan is very pro valtrex over Famvir...my osn like his showed no viral titers, just very low NKcells...Mtt was a responder to Valtrex, but we wre doing the PTC supplements too...gut issues took us off all of it, but the gut issues were not bc of the supps or the valtrex as it turns out...I wonder if we have erred by the switch to Famvir as well as dropping PTC - anyone out there know recovered kids from PTC protocol...or, gosh, fully recovered kids period? As I said there are not many with recovered kids who post...Christel is one of the exceptions and I know there are a few others who are almost there too...I just have never MET a recovered kid...has anyone?Thanks. DiInternal Virus Database is out of date.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.0/1556 - Release Date: 7/16/2008 4:56 PM